Michele W Re: if you were coming home now....

[Guest guest]

Oh my gosh Michele-

you have made me remember how y and I joked we could suction by Braille....

I would drive, suction pump on the center console, in the car seat in the

front, and I could suction his nose or trache wile driving and not look at him

and hit the target without injury nearly 100%....

This is an excellent reminder, and I will keep it in mind.

Thanks!

yuka

RE: if you were coming home now....

Yuka-

Also-In the beginning, it was impossible to go to doctor appts alone.

Aubrie was vomiting terribly, I was still pumping breast milk and feeding it

via tube. so a friend always came with to appts. It wasn't always the same

friend. But someone was nearly always able to go with me. Keep in mind it

was a day long trip as we are 2+ hours from the Children's Hospital so these

folks had to take off work and make their own child care arrangements to

join me.

Michele W