Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 when did u c that dr have u been in LOL i no silly me cant c y they would suggest one but never can tell > > Hi all > > What if anything can be done for obstructive sleep apnoea? > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > most > of the night, > when we check her shes blue lipped and a good shake does the trick!! > When I try and prize open her mouth her tongue is firmly at the back > occluding her airway. > > Its not helping with our sleep, selfish i know...I mentioned this in > passing > in the hospital restuarant > to her respiratory consultant...who said the ENT may suggest a > trach...this > was just a quick chat in a queue!! > > This scared me half to death...I know some of the kids have trachs but I > thought if we > have managed 2 years 4 months without one...should we be considering one > or > should we > put up with the no sleep. > > Suggestions and comments greatly appreciated Les x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I just had my tonsils out as well as the turbinate bone in my nose and its helped really well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 sorry it drive me little crazy, what is LOL stand for? just curious, michele s. Re: obstructive sleep when did u c that dr have u been in LOL i no silly me cant c y they would suggest one but never can tell > > Hi all > > What if anything can be done for obstructive sleep apnoea? > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > most > of the night, > when we check her shes blue lipped and a good shake does the trick!! > When I try and prize open her mouth her tongue is firmly at the back > occluding her airway. > > Its not helping with our sleep, selfish i know...I mentioned this in > passing > in the hospital restuarant > to her respiratory consultant...who said the ENT may suggest a > trach...this > was just a quick chat in a queue!! > > This scared me half to death...I know some of the kids have trachs but I > thought if we > have managed 2 years 4 months without one...should we be considering one > or > should we > put up with the no sleep. > > Suggestions and comments greatly appreciated Les x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Your not crazy. hehe. LOL stands for laugh out loud. here are a few others you may see frequently on this list roflmao = rolling on the floor laughing my ass off imo = in my opinion also imho wich means in my humble opionion here is a short list of others... Popular Internet Slang atm (at the moment) b2w (back to work) bbl (be back later) brb (be right back) lmao (laughing my ass off) lmfao (laughing my fat ass off) rofl (roll on floor laughing) roflmao (roll on floor laughing my ass off) ttyl (talk to you later) idc (i dont care) idk (I don't know) jk (just kidding) ty (thank you) g2g *or* gtg(got to go) OMG (oh my God) Try to limit use of internet slang/short forms though, not a lot of people understand the shortforms and its just easier to read the longer word then try to guess what the short forms might mean. I tend to ignore posts from people that use a lot of short form of words and slang cause I have no idea what they have said. Chantelle -- I have 4 eyes, 4 ears, a guide cat and a cat that speaks mouse! - me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Positioning was important for Kennedy, we had to get her onto her side as much as possible for optimal night time breathing, we used to put a roll behind her back. I've heard of some kids doing better after having tonsils & adenoids out as well. > > Hi all > > What if anything can be done for obstructive sleep apnoea? > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > most > of the night, > when we check her shes blue lipped and a good shake does the trick!! > When I try and prize open her mouth her tongue is firmly at the back > occluding her airway. > > Its not helping with our sleep, selfish i know...I mentioned this in > passing > in the hospital restuarant > to her respiratory consultant...who said the ENT may suggest a > trach...this > was just a quick chat in a queue!! > > This scared me half to death...I know some of the kids have trachs but I > thought if we > have managed 2 years 4 months without one...should we be considering one > or > should we > put up with the no sleep. > > Suggestions and comments greatly appreciated Les x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 ah i see i get it, it like text messages young people use. michele s. Re: obstructive sleep Your not crazy. hehe. LOL stands for laugh out loud. here are a few others you may see frequently on this list roflmao = rolling on the floor laughing my ass off imo = in my opinion also imho wich means in my humble opionion here is a short list of others... Popular Internet Slang atm (at the moment) b2w (back to work) bbl (be back later) brb (be right back) lmao (laughing my ass off) lmfao (laughing my fat ass off) rofl (roll on floor laughing) roflmao (roll on floor laughing my ass off) ttyl (talk to you later) idc (i dont care) idk (I don't know) jk (just kidding) ty (thank you) g2g *or* gtg(got to go) OMG (oh my God) Try to limit use of internet slang/short forms though, not a lot of people understand the shortforms and its just easier to read the longer word then try to guess what the short forms might mean. I tend to ignore posts from people that use a lot of short form of words and slang cause I have no idea what they have said. Chantelle -- I have 4 eyes, 4 ears, a guide cat and a cat that speaks mouse! - me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Has she been on CPAP at night before? If her tongue truly is the culprit, this might not solve the problem. But it is not invasive and might be worth a try. (mom to Evan, 21 months) Amelie Chan amelie.m.chan@...> wrote: Hi all What if anything can be done for obstructive sleep apnoea? Amelie frequently stops breathing in her sleep, her sats monitor alarms most of the night, when we check her shes blue lipped and a good shake does the trick!! When I try and prize open her mouth her tongue is firmly at the back occluding her airway. Its not helping with our sleep, selfish i know...I mentioned this in passing in the hospital restuarant to her respiratory consultant...who said the ENT may suggest a trach...this was just a quick chat in a queue!! This scared me half to death...I know some of the kids have trachs but I thought if we have managed 2 years 4 months without one...should we be considering one or should we put up with the no sleep. Suggestions and comments greatly appreciated Les x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Our son obstructed terribly , we did a tonsil and adenoidectomy and it was like nite and day. It totally cured him. I would highly recommend it. The recovery will be rocky though. Peyton spent a day or two in the PICU. After surgery, he was breathing so badly his ENT saw him and was already talking about doing some complex surgery to move his tounge etc. Then after a couple of days, the swelling went down and he was doing really well. I would really recommend looking into it. They saw Peyton's tonsils and said they were just a little big, then when they did the surgery and saw his adenoid(you actually only have one and you can't see it by looking in the throat) they said it was huge and covering the whole back of his airway!!! Best of luck to you! Corrie mom to Peyton 10 CHARGE, Cy 7, 4, and Tate 8mos. CHARGE > > Has she been on CPAP at night before? If her tongue truly is the > culprit, this might not solve the problem. But it is not invasive and might > be worth a try. > > (mom to Evan, 21 months) > > > > Amelie Chan amelie.m.chan@... > > wrote: > Hi all > > What if anything can be done for obstructive sleep apnoea? > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > most > of the night, > when we check her shes blue lipped and a good shake does the trick!! > When I try and prize open her mouth her tongue is firmly at the back > occluding her airway. > > Its not helping with our sleep, selfish i know...I mentioned this in > passing > in the hospital restuarant > to her respiratory consultant...who said the ENT may suggest a > trach...this > was just a quick chat in a queue!! > > This scared me half to death...I know some of the kids have trachs but I > thought if we > have managed 2 years 4 months without one...should we be considering one > or > should we > put up with the no sleep. > > Suggestions and comments greatly appreciated Les x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Thanks for the advice everyone...Amelie has been on CPAP in the early days inbetween being vented. I dont see how she would tolerate that now she knows how to mess with everything, she is wising up by the minute, for someone with poor vision and no hearing and only three days in school to date, school commented on how quick she is to do tasks given, like show me and then I will do it...its finally lovely to see her working away at things and solving them. As for the tongue and apnoea, I will ask about her tonsils and adenoids, we have a joint visit with ENT and respiratory in June, perhaps with the tonsils out of the way there may be a little more room, it certainly sounds like the easier option if its feasible. We have requested an MRI scan of her auditory nerves...I know they say she hasnt got them!! (98%) but that 2% is nagging me!! We have started BSL and that will now be our main focus for language, we have also participated in the 'deaf role model' new to the deaf society (RNID) whereby deaf people with diffferent degrees and communication issues visit you at home and tell you of their life, you get the opportunity to ask lots of questions we have found it really useful, for those of you in the UK who may be interested!. love to you all Les x > > Has she been on CPAP at night before? If her tongue truly is the > culprit, this might not solve the problem. But it is not invasive and might > be worth a try. > > (mom to Evan, 21 months) > > > > Amelie Chan amelie.m.chan@... > > wrote: > Hi all > > What if anything can be done for obstructive sleep apnoea? > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > most > of the night, > when we check her shes blue lipped and a good shake does the trick!! > When I try and prize open her mouth her tongue is firmly at the back > occluding her airway. > > Its not helping with our sleep, selfish i know...I mentioned this in > passing > in the hospital restuarant > to her respiratory consultant...who said the ENT may suggest a > trach...this > was just a quick chat in a queue!! > > This scared me half to death...I know some of the kids have trachs but I > thought if we > have managed 2 years 4 months without one...should we be considering one > or > should we > put up with the no sleep. > > Suggestions and comments greatly appreciated Les x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Corrie thanks for this just spotted it close to posting, I will print this as well to show our ENT its great to hear of things working to improve our childrens lives, this could simply be one of the issues going on here! thanks Les x > > Our son obstructed terribly , we did a tonsil and adenoidectomy and it > was > like nite and day. It totally cured him. I would highly recommend it. The > recovery will be rocky though. Peyton spent a day or two in the PICU. > After > surgery, he was breathing so badly his ENT saw him and was already talking > about doing some complex surgery to move his tounge etc. Then after a > couple > of days, the swelling went down and he was doing really well. > > I would really recommend looking into it. They saw Peyton's tonsils and > said > they were just a little big, then when they did the surgery and saw his > adenoid(you actually only have one and you can't see it by looking in the > throat) they said it was huge and covering the whole back of his airway!!! > > Best of luck to you! > > Corrie > mom to Peyton 10 CHARGE, Cy 7, 4, and Tate 8mos. CHARGE > > On 4/26/07, Key Storrs evansmomndad@...> > wrote: > > > > Has she been on CPAP at night before? If her tongue truly is the > > culprit, this might not solve the problem. But it is not invasive and > might > > be worth a try. > > > > (mom to Evan, 21 months) > > > > > > > > Amelie Chan amelie.m.chan@...< > amelie.m.chan%40googlemail.com>> > > wrote: > > Hi all > > > > What if anything can be done for obstructive sleep apnoea? > > > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > > most > > of the night, > > when we check her shes blue lipped and a good shake does the trick!! > > When I try and prize open her mouth her tongue is firmly at the back > > occluding her airway. > > > > Its not helping with our sleep, selfish i know...I mentioned this in > > passing > > in the hospital restuarant > > to her respiratory consultant...who said the ENT may suggest a > > trach...this > > was just a quick chat in a queue!! > > > > This scared me half to death...I know some of the kids have trachs but I > > thought if we > > have managed 2 years 4 months without one...should we be considering one > > or > > should we > > put up with the no sleep. > > > > Suggestions and comments greatly appreciated Les x > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Try the tonsils and adnoids. It helped my son go from obstruction to just a little snoring. That was years ago. At least get an opinion on it. i know we had to take video tapes of the occlusion for them to really see and understand it. Once they did, he was booked for surgery. They also did something with the throat to open it up. I dont know what that was. The ENT said that his airway and all of the structures in the back were smaller, too. At one point they thought Bradley would need a trach but he somehow got better...he hasnt needed one so far and now he is 16 years old. ck > >Reply-To: CHARGE >To: CHARGE >Subject: Re: obstructive sleep >Date: Thu, 26 Apr 2007 23:18:22 +0100 > >Corrie > >thanks for this just spotted it close to posting, I will print this as well >to show our ENT >its great to hear of things working to improve our childrens lives, this >could simply be one >of the issues going on here! >thanks Les x > > > > > > > Our son obstructed terribly , we did a tonsil and adenoidectomy and it > > was > > like nite and day. It totally cured him. I would highly recommend it. >The > > recovery will be rocky though. Peyton spent a day or two in the PICU. > > After > > surgery, he was breathing so badly his ENT saw him and was already >talking > > about doing some complex surgery to move his tounge etc. Then after a > > couple > > of days, the swelling went down and he was doing really well. > > > > I would really recommend looking into it. They saw Peyton's tonsils and > > said > > they were just a little big, then when they did the surgery and saw his > > adenoid(you actually only have one and you can't see it by looking in >the > > throat) they said it was huge and covering the whole back of his >airway!!! > > > > Best of luck to you! > > > > Corrie > > mom to Peyton 10 CHARGE, Cy 7, 4, and Tate 8mos. CHARGE > > > > On 4/26/07, Key Storrs >evansmomndad@...> > > wrote: > > > > > > Has she been on CPAP at night before? If her tongue truly is the > > > culprit, this might not solve the problem. But it is not invasive and > > might > > > be worth a try. > > > > > > (mom to Evan, 21 months) > > > > > > > > > > > > Amelie Chan >amelie.m.chan@...< > > amelie.m.chan%40googlemail.com>> > > > wrote: > > > Hi all > > > > > > What if anything can be done for obstructive sleep apnoea? > > > > > > Amelie frequently stops breathing in her sleep, her sats monitor >alarms > > > most > > > of the night, > > > when we check her shes blue lipped and a good shake does the trick!! > > > When I try and prize open her mouth her tongue is firmly at the back > > > occluding her airway. > > > > > > Its not helping with our sleep, selfish i know...I mentioned this in > > > passing > > > in the hospital restuarant > > > to her respiratory consultant...who said the ENT may suggest a > > > trach...this > > > was just a quick chat in a queue!! > > > > > > This scared me half to death...I know some of the kids have trachs but >I > > > thought if we > > > have managed 2 years 4 months without one...should we be considering >one > > > or > > > should we > > > put up with the no sleep. > > > > > > Suggestions and comments greatly appreciated Les x > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 most chargers i read of hear have soem form of aponea weather its sevear or mild i have been bad now mild my main thing i do is talk i my sleep i no its crazy to no that but people do tell me LOL loads of hugs ellen > > Try the tonsils and adnoids. It helped my son go from obstruction to > just a > little snoring. That was years ago. At least get an opinion on it. i know > we had to take video tapes of the occlusion for them to really see and > understand it. Once they did, he was booked for surgery. They also did > something with the throat to open it up. I dont know what that was. The > ENT > said that his airway and all of the structures in the back were smaller, > too. At one point they thought Bradley would need a trach but he somehow > got > better...he hasnt needed one so far and now he is 16 years old. ck > > >From: " Amelie Chan " amelie.m.chan@... > > > >Reply-To: CHARGE > >To: CHARGE > >Subject: Re: obstructive sleep > >Date: Thu, 26 Apr 2007 23:18:22 +0100 > > > >Corrie > > > >thanks for this just spotted it close to posting, I will print this as > well > >to show our ENT > >its great to hear of things working to improve our childrens lives, this > >could simply be one > >of the issues going on here! > >thanks Les x > > > > > >On 26/04/07, Mike & Corrie Young mcyoung6@...> > wrote: > > > > > > Our son obstructed terribly , we did a tonsil and adenoidectomy and it > > > was > > > like nite and day. It totally cured him. I would highly recommend it. > >The > > > recovery will be rocky though. Peyton spent a day or two in the PICU. > > > After > > > surgery, he was breathing so badly his ENT saw him and was already > >talking > > > about doing some complex surgery to move his tounge etc. Then after a > > > couple > > > of days, the swelling went down and he was doing really well. > > > > > > I would really recommend looking into it. They saw Peyton's tonsils > and > > > said > > > they were just a little big, then when they did the surgery and saw > his > > > adenoid(you actually only have one and you can't see it by looking in > >the > > > throat) they said it was huge and covering the whole back of his > >airway!!! > > > > > > Best of luck to you! > > > > > > Corrie > > > mom to Peyton 10 CHARGE, Cy 7, 4, and Tate 8mos. CHARGE > > > > > > On 4/26/07, Key Storrs > >evansmomndad@... 40yahoo.com>> > > > wrote: > > > > > > > > Has she been on CPAP at night before? If her tongue truly is the > > > > culprit, this might not solve the problem. But it is not invasive > and > > > might > > > > be worth a try. > > > > > > > > (mom to Evan, 21 months) > > > > > > > > > > > > > > > > Amelie Chan > >amelie.m.chan@... < > amelie.m.chan%40googlemail.com>< > > > amelie.m.chan%40googlemail.com>> > > > > wrote: > > > > Hi all > > > > > > > > What if anything can be done for obstructive sleep apnoea? > > > > > > > > Amelie frequently stops breathing in her sleep, her sats monitor > >alarms > > > > most > > > > of the night, > > > > when we check her shes blue lipped and a good shake does the trick!! > > > > When I try and prize open her mouth her tongue is firmly at the back > > > > occluding her airway. > > > > > > > > Its not helping with our sleep, selfish i know...I mentioned this in > > > > passing > > > > in the hospital restuarant > > > > to her respiratory consultant...who said the ENT may suggest a > > > > trach...this > > > > was just a quick chat in a queue!! > > > > > > > > This scared me half to death...I know some of the kids have trachs > but > >I > > > > thought if we > > > > have managed 2 years 4 months without one...should we be considering > > >one > > > > or > > > > should we > > > > put up with the no sleep. > > > > > > > > Suggestions and comments greatly appreciated Les x > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Meagan had SEVERE sleep apnea (the obstructive type); she would quit breathing 70 times an hour. We were told the tonsils and adenoids should come out, but if that didn't do the trick, a trache was going to be the next step. Three weeks after the tonsillectomy, the obstruction is gone! I don't even hear her snoring most of the time. It's actually scary. For two and a half years she has slept so nosily; now we have to put our hands on her chest to make sure she is still breathing! Good luck! , mommy to Meagan (CHaRgE) and 2 year old twins, and big brother 4 years, married to the best daddy in the world for 9 years! The mention of my child's name might make me cry. Not mentioning my child's name will break my heart. Unknown Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Amelie has been on CPAP in the early days inbetween being vented. I dont see how she would tolerate that now she knows how to mess with everything... Evan won't tollerate it either--if he is awake. We put it on him after he falls asleep and then take it off when he first stirs in the morning (he'll usually go back to sleep for another 1/2 hr). (mom to Evan, 21 months) Amelie Chan amelie.m.chan@...> wrote: Thanks for the advice everyone...Amelie has been on CPAP in the early days inbetween being vented. I dont see how she would tolerate that now she knows how to mess with everything, she is wising up by the minute, for someone with poor vision and no hearing and only three days in school to date, school commented on how quick she is to do tasks given, like show me and then I will do it...its finally lovely to see her working away at things and solving them. As for the tongue and apnoea, I will ask about her tonsils and adenoids, we have a joint visit with ENT and respiratory in June, perhaps with the tonsils out of the way there may be a little more room, it certainly sounds like the easier option if its feasible. We have requested an MRI scan of her auditory nerves...I know they say she hasnt got them!! (98%) but that 2% is nagging me!! We have started BSL and that will now be our main focus for language, we have also participated in the 'deaf role model' new to the deaf society (RNID) whereby deaf people with diffferent degrees and communication issues visit you at home and tell you of their life, you get the opportunity to ask lots of questions we have found it really useful, for those of you in the UK who may be interested!. love to you all Les x > > Has she been on CPAP at night before? If her tongue truly is the > culprit, this might not solve the problem. But it is not invasive and might > be worth a try. > > (mom to Evan, 21 months) > > > > Amelie Chan amelie.m.chan@... > > wrote: > Hi all > > What if anything can be done for obstructive sleep apnoea? > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > most > of the night, > when we check her shes blue lipped and a good shake does the trick!! > When I try and prize open her mouth her tongue is firmly at the back > occluding her airway. > > Its not helping with our sleep, selfish i know...I mentioned this in > passing > in the hospital restuarant > to her respiratory consultant...who said the ENT may suggest a > trach...this > was just a quick chat in a queue!! > > This scared me half to death...I know some of the kids have trachs but I > thought if we > have managed 2 years 4 months without one...should we be considering one > or > should we > put up with the no sleep. > > Suggestions and comments greatly appreciated Les x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 great news brandi > > Amelie has been on CPAP in the early days > inbetween being vented. > I dont see how she would tolerate that now she knows how to mess with > everything... > > Evan won't tollerate it either--if he is awake. We put it on him after he > falls asleep and then take it off when he first stirs in the morning (he'll > usually go back to sleep for another 1/2 hr). > > (mom to Evan, 21 months) > > Amelie Chan amelie.m.chan@... > > wrote: > Thanks for the advice everyone...Amelie has been on CPAP in the early days > inbetween being vented. > I dont see how she would tolerate that now she knows how to mess with > everything, she is wising up by > the minute, for someone with poor vision and no hearing and only three > days > in school to date, school commented on how quick she is to do tasks given, > like show me and then I will do it...its finally lovely to see her working > away at things and solving them. > > As for the tongue and apnoea, I will ask about her tonsils and adenoids, > we > have a joint visit with ENT and respiratory in June, > perhaps with the tonsils out of the way there may be a little more room, > it > certainly sounds like the easier option if its feasible. > > We have requested an MRI scan of her auditory nerves...I know they say she > hasnt got them!! (98%) but that 2% is nagging me!! > We have started BSL and that will now be our main focus for language, we > have also participated in the 'deaf role model' new to the > deaf society (RNID) whereby deaf people with diffferent degrees and > communication issues visit you at home and tell you of their life, > you get the opportunity to ask lots of questions we have found it really > useful, for those of you in the UK who may be interested!. > > love to you all Les x > > On 26/04/07, Key Storrs evansmomndad@...> > wrote: > > > > Has she been on CPAP at night before? If her tongue truly is the > > culprit, this might not solve the problem. But it is not invasive and > might > > be worth a try. > > > > (mom to Evan, 21 months) > > > > > > > > Amelie Chan amelie.m.chan@...< > amelie.m.chan%40googlemail.com>> > > wrote: > > Hi all > > > > What if anything can be done for obstructive sleep apnoea? > > > > Amelie frequently stops breathing in her sleep, her sats monitor alarms > > most > > of the night, > > when we check her shes blue lipped and a good shake does the trick!! > > When I try and prize open her mouth her tongue is firmly at the back > > occluding her airway. > > > > Its not helping with our sleep, selfish i know...I mentioned this in > > passing > > in the hospital restuarant > > to her respiratory consultant...who said the ENT may suggest a > > trach...this > > was just a quick chat in a queue!! > > > > This scared me half to death...I know some of the kids have trachs but I > > thought if we > > have managed 2 years 4 months without one...should we be considering one > > or > > should we > > put up with the no sleep. > > > > Suggestions and comments greatly appreciated Les x > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 This is very encouraging as Amelie snores dreadfully and is very loud during sleep, it definitely sounds like what a lot of the parents are describing as a tonsil adenoid issue. fingers crossed in June when we go to ENT we can get some answers, thanks Les x > > Meagan had SEVERE sleep apnea (the obstructive type); she would quit > breathing 70 times an hour. We were told the tonsils and adenoids should > come out, but if that didn't do the trick, a trache was going to be the > next > step. Three weeks after the tonsillectomy, the obstruction is gone! I > don't > even hear her snoring most of the time. It's actually scary. For two and a > half years she has slept so nosily; now we have to put our hands on her > chest to make sure she is still breathing! > > Good luck! > > , mommy to Meagan (CHaRgE) and 2 year old twins, and big > brother > 4 years, married to the best daddy in the world for 9 years! > > The mention of my child's name might make me cry. Not mentioning my > child's name will break my heart. Unknown > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 Les, Quickie reply. Just as everyone says. was a noisy breather, had obstructive apnoea and snored dreadfully. She had her tonsils out just over one year ago and it changed everything. Initially, the breathing got worse for a couple of days but the ENT was not concerned and said this was normal. Now, if no colds or sinus issues, she breathes very quietly in her sleep. Good luck in June. Canteen conversations are best taken with a pinch of salt (no pun intended!). Flo > > > > This is very encouraging as Amelie snores dreadfully and is very loud > during > sleep, it definitely sounds like > what a lot of the parents are describing as a tonsil adenoid issue. > fingers crossed in June when we go to ENT we can get some answers, > thanks Les x > > > Flo (UK) Mum to - CHARGE - (6) and Elly (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Cheers Flo I really hope its as simple as tonsils that we be great news and maybe some sleep. Darren Met with Contact a family today for a conference in Manchester, he has just been informed by a Government official that it is illegal to withhold Direct Payment money due to lack of funds!! He has given us a web site to download the official rules on it all...but I thought it was rather interesting that my money was found thre days after my letter from houses of Parliament!! Long story short our social worker has just informed me that if they help out with a sleep over, they will need to reduce my direct payments which I have waited a year for...its insane and driving me crazy!! moan over Les x > > Les, > Quickie reply. Just as everyone says. was a noisy breather, had > obstructive apnoea and snored dreadfully. She had her tonsils out just > over > one year ago and it changed everything. Initially, the breathing got worse > for a couple of days but the ENT was not concerned and said this was > normal. Now, if no colds or sinus issues, she breathes very quietly in her > sleep. > > Good luck in June. Canteen conversations are best taken with a pinch of > salt (no pun intended!). > > Flo > > On 27/04/07, Amelie Chan amelie.m.chan@...> > wrote: > > > > > > > > This is very encouraging as Amelie snores dreadfully and is very loud > > during > > sleep, it definitely sounds like > > what a lot of the parents are describing as a tonsil adenoid issue. > > fingers crossed in June when we go to ENT we can get some answers, > > thanks Les x > > > > > > > Flo (UK) > Mum to - CHARGE - (6) and Elly (4) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Something I've not seen anyone mention. had a super glottoplasty, which is basically a trimming of a floppy projection over her voicebox, which was a major contributor to her apnea. We just did a sleep study to confirm the results, but we saw a huge difference once the swelling from the surgery went down. From what I've read/heard - this seems to be a somewhat uncommon procedure for ENTs, as it's a little bit new, but in the right situation, it's really effective. If you find a surgeon who does them, they usually do a lot, as they get great results. Good luck, Christian Lobaugh in OK > > Cheers Flo > > I really hope its as simple as tonsils that we be great news and maybe > some > sleep. > Darren Met with Contact a family today for a conference in Manchester, he > has just been informed by > a Government official that it is illegal to withhold Direct Payment money > due to lack of funds!! > He has given us a web site to download the official rules on it all...but > I > thought it was rather interesting > that my money was found thre days after my letter from houses of > Parliament!! > > Long story short our social worker has just informed me that if they help > out with a sleep over, they will > need to reduce my direct payments which I have waited a year for...its > insane and driving me crazy!! > > moan over Les x > > On 28/04/07, Flo Njeru flo.njeru@...> > wrote: > > > > Les, > > Quickie reply. Just as everyone says. was a noisy breather, had > > obstructive apnoea and snored dreadfully. She had her tonsils out just > > over > > one year ago and it changed everything. Initially, the breathing got > worse > > for a couple of days but the ENT was not concerned and said this was > > normal. Now, if no colds or sinus issues, she breathes very quietly in > her > > sleep. > > > > Good luck in June. Canteen conversations are best taken with a pinch of > > salt (no pun intended!). > > > > Flo > > > > On 27/04/07, Amelie Chan amelie.m.chan@... > > > > > wrote: > > > > > > > > > > > > This is very encouraging as Amelie snores dreadfully and is very loud > > > during > > > sleep, it definitely sounds like > > > what a lot of the parents are describing as a tonsil adenoid issue. > > > fingers crossed in June when we go to ENT we can get some answers, > > > thanks Les x > > > > > > > > > > > Flo (UK) > > Mum to - CHARGE - (6) and Elly (4) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 I have copied and pasted all the obstructive stories to take with me tomorrow, it will be interesting to see if they do this, and could it be a contributing factor. cheers Les x > > Something I've not seen anyone mention. had a super glottoplasty, > which is basically a trimming of a floppy projection over her voicebox, > which was a major contributor to her apnea. We just did a sleep study to > confirm the results, but we saw a huge difference once the swelling from > the > surgery went down. > > From what I've read/heard - this seems to be a somewhat uncommon procedure > for ENTs, as it's a little bit new, but in the right situation, it's > really > effective. If you find a surgeon who does them, they usually do a lot, as > they get great results. > > Good luck, > Christian Lobaugh in OK > > On 4/30/07, Amelie Chan amelie.m.chan@...> > wrote: > > > > Cheers Flo > > > > I really hope its as simple as tonsils that we be great news and maybe > > some > > sleep. > > Darren Met with Contact a family today for a conference in Manchester, > he > > has just been informed by > > a Government official that it is illegal to withhold Direct Payment > money > > due to lack of funds!! > > He has given us a web site to download the official rules on it > all...but > > I > > thought it was rather interesting > > that my money was found thre days after my letter from houses of > > Parliament!! > > > > Long story short our social worker has just informed me that if they > help > > out with a sleep over, they will > > need to reduce my direct payments which I have waited a year for...its > > insane and driving me crazy!! > > > > moan over Les x > > > > On 28/04/07, Flo Njeru flo.njeru@... > > > > wrote: > > > > > > Les, > > > Quickie reply. Just as everyone says. was a noisy breather, > had > > > obstructive apnoea and snored dreadfully. She had her tonsils out just > > > over > > > one year ago and it changed everything. Initially, the breathing got > > worse > > > for a couple of days but the ENT was not concerned and said this was > > > normal. Now, if no colds or sinus issues, she breathes very quietly in > > her > > > sleep. > > > > > > Good luck in June. Canteen conversations are best taken with a pinch > of > > > salt (no pun intended!). > > > > > > Flo > > > > > > On 27/04/07, Amelie Chan amelie.m.chan@... > > > > > > > > > wrote: > > > > > > > > > > > > > > > > This is very encouraging as Amelie snores dreadfully and is very > loud > > > > during > > > > sleep, it definitely sounds like > > > > what a lot of the parents are describing as a tonsil adenoid issue. > > > > fingers crossed in June when we go to ENT we can get some answers, > > > > thanks Les x > > > > > > > > > > > > > > > Flo (UK) > > > Mum to - CHARGE - (6) and Elly (4) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 I have copied and pasted all the obstructive stories to take with me tomorrow, it will be interesting to see if they do this, and could it be a contributing factor. cheers Les x > > Something I've not seen anyone mention. had a super glottoplasty, > which is basically a trimming of a floppy projection over her voicebox, > which was a major contributor to her apnea. We just did a sleep study to > confirm the results, but we saw a huge difference once the swelling from > the > surgery went down. > > From what I've read/heard - this seems to be a somewhat uncommon procedure > for ENTs, as it's a little bit new, but in the right situation, it's > really > effective. If you find a surgeon who does them, they usually do a lot, as > they get great results. > > Good luck, > Christian Lobaugh in OK > > On 4/30/07, Amelie Chan amelie.m.chan@...> > wrote: > > > > Cheers Flo > > > > I really hope its as simple as tonsils that we be great news and maybe > > some > > sleep. > > Darren Met with Contact a family today for a conference in Manchester, > he > > has just been informed by > > a Government official that it is illegal to withhold Direct Payment > money > > due to lack of funds!! > > He has given us a web site to download the official rules on it > all...but > > I > > thought it was rather interesting > > that my money was found thre days after my letter from houses of > > Parliament!! > > > > Long story short our social worker has just informed me that if they > help > > out with a sleep over, they will > > need to reduce my direct payments which I have waited a year for...its > > insane and driving me crazy!! > > > > moan over Les x > > > > On 28/04/07, Flo Njeru flo.njeru@... > > > > wrote: > > > > > > Les, > > > Quickie reply. Just as everyone says. was a noisy breather, > had > > > obstructive apnoea and snored dreadfully. She had her tonsils out just > > > over > > > one year ago and it changed everything. Initially, the breathing got > > worse > > > for a couple of days but the ENT was not concerned and said this was > > > normal. Now, if no colds or sinus issues, she breathes very quietly in > > her > > > sleep. > > > > > > Good luck in June. Canteen conversations are best taken with a pinch > of > > > salt (no pun intended!). > > > > > > Flo > > > > > > On 27/04/07, Amelie Chan amelie.m.chan@... > > > > > > > > > wrote: > > > > > > > > > > > > > > > > This is very encouraging as Amelie snores dreadfully and is very > loud > > > > during > > > > sleep, it definitely sounds like > > > > what a lot of the parents are describing as a tonsil adenoid issue. > > > > fingers crossed in June when we go to ENT we can get some answers, > > > > thanks Les x > > > > > > > > > > > > > > > Flo (UK) > > > Mum to - CHARGE - (6) and Elly (4) > > > > > > Quote Link to comment Share on other sites More sharing options...
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