Re: Couple of pictures and update

[Guest guest]

That boy is SO ADORABLE! I love the shades and the balls pics so much,

especially the close up of his beautiful face in the balls. I think

Kerstin's idea is such a great one - it's hard when they're babies to always

be around " typical " kids; it's nice to get together with others who get it

once in a while.

Keep sending more Cai photos!!

Kennedy's Mom

(www.chargesyndrome.info)

>

> Hello all,

>

> I am unfortunately very busy at work as well as the chaos living in

> " chargeland " brings (B.T.W. I find chargeland is much more exciting

> than disneyland :-) ) so I still read but unable to post, I meant to

> reply to Ellen about my blog but time slips through my fingers these

> days faster than a full nappy or is that diaper

>

> Anyway just a quick update and some pictures

>

> Kerstin has been busy and set up a local play group for handicapped

> children and mothers which will meet every three weeks. the first

> meeting was a success and enjoyed by all who attended, she also created

> a website herself www.kunterbunt-spielgruppe.ch - I just registered the

> name and site and loaded it up for her, she did the rest - its in

> german, and sorry its slow to load, I will try and speed it up when I

> get a chance.

>

> Oh and before I forget, we are hoping to be in llandudno in north wales

> for the week end july beginning August and wonder if anyone would like

> to meet up for an afternoon, preferably the same afternoon ;-).

>

> here is a picture of the group if you don't have time to wait for the site

>

> http://thattimeoflife.smugmug.com/photos/149897339-L.jpg

>

> and a couple of cai

>

> http://thattimeoflife.smugmug.com/photos/152501813-L.jpg

>

> http://thattimeoflife.smugmug.com/photos/154744285-L.jpg

>

> http://thattimeoflife.smugmug.com/photos/154744283-L.jpg

>

> and in case you have lost the link and if you have a few hours to spare

> and want to keep updated ( I update every week)

>

> http://thattimeoflife.smugmug.com/Itsy%20becomes%20Cai

>

> We are heading to the charge conference in Germany in a couple of weeks

> so see any list members there.

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

I love the pictures of him in the ball pit those are adorable!!

Great job on the playgroup and I hope things continue to go well.

Hugs,

Crystal mom to (11), (4), and Eva (2 year old CHARGEr)

wife to Dan in Illinois

>

> Hello all,

>

> I am unfortunately very busy at work as well as the chaos living

in

> " chargeland " brings (B.T.W. I find chargeland is much more

exciting

> than disneyland :-) ) so I still read but unable to post, I

meant to

> reply to Ellen about my blog but time slips through my fingers

these

> days faster than a full nappy or is that diaper

>

> Anyway just a quick update and some pictures

>

> Kerstin has been busy and set up a local play group for

handicapped

> children and mothers which will meet every three weeks. the first

> meeting was a success and enjoyed by all who attended, she also

created

> a website herself www.kunterbunt-spielgruppe.ch - I just

registered the

> name and site and loaded it up for her, she did the rest - its in

> german, and sorry its slow to load, I will try and speed it up

when I

> get a chance.

>

> Oh and before I forget, we are hoping to be in llandudno in north

wales

> for the week end july beginning August and wonder if anyone would

like

> to meet up for an afternoon, preferably the same afternoon ;-).

>

> here is a picture of the group if you don't have time to wait for

the site

>

> http://thattimeoflife.smugmug.com/photos/149897339-L.jpg

>

> and a couple of cai

>

> http://thattimeoflife.smugmug.com/photos/152501813-L.jpg

>

> http://thattimeoflife.smugmug.com/photos/154744285-L.jpg

>

> http://thattimeoflife.smugmug.com/photos/154744283-L.jpg

>

> and in case you have lost the link and if you have a few hours to

spare

> and want to keep updated ( I update every week)

>

> http://thattimeoflife.smugmug.com/Itsy%20becomes%20Cai

>

> We are heading to the charge conference in Germany in a couple of

weeks

> so see any list members there.

>

[Guest guest]

I took the " grande tour " , Cai's been busier than we knew, but he looks grand

and adorable (love the shades) and strong and pink!!! Pink's such a goooood

thing.

We love pink!

BTW.....llandudno ....you promise you didn't make that up??!?

;-)

in Ma.

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