RE: Eustachion tube reconstruction?

[Guest guest]

Tonya,

My daughter (non CHARGE) has non functioning eutachion tubes in both ears.. she

has had

PE tubes since she was 1yo, she's now 28. There was talk about doing a

dialation but they said

that the probability of scar tissue and the like would likely close them back up

so we never did it.

She has done fine. She's on her 14th set of PE tubes and is so used to it now

when they fall out

she just has them replaced in the docs office.

Casey

________________________________________________________________________________\

____

Looking for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

http://farechase.yahoo.com/

[Guest guest]

Aubrie had malformed - especially curved - and narrow eustacian tubes as a

baby. The dr also thought she was likely to need PE tubes forever. But the

last set fell out a few years ago and she hasn't needed them replaced.

If your daughter needs PE tubes for a long time, it's not too big a deal,

really. However, I think it's possible that the dr is wrong, her eustacian

tube will grow, and she may outgrow the need for PE tubes. Our kids defy

the odds all the time. The typical rules definitely don't apply to CHARGE.

Michele W

Aubrie's mom 9 yrs

[Guest guest]

tonya i have funny eustation tubes and a hole in one ear drum ive had two

ents one retired so now ive got another one whos acutaly a paed ent but he

still sees me coz he sees many chargers and coz he knows me best well

neither he or my old dr has mentioned surgery for it my old dr thought hed

have do something but when he got in he found the skin or stuff he thought

was a prob was acutlay just a lot of wax wichcoz of my tubes and my current

one says we need keep an eye on my earmakes funy wistly noises when i blow

my nose but otherwise im ok with a few checks a year and i do tend to get an

earinfection if ive had a cold or somethign but a antibiotic drop cures that

>

> Aubrie had malformed - especially curved - and narrow eustacian tubes as

> a

> baby. The dr also thought she was likely to need PE tubes forever. But the

> last set fell out a few years ago and she hasn't needed them replaced.

>

> If your daughter needs PE tubes for a long time, it's not too big a deal,

> really. However, I think it's possible that the dr is wrong, her eustacian

> tube will grow, and she may outgrow the need for PE tubes. Our kids defy

> the odds all the time. The typical rules definitely don't apply to CHARGE.

>

> Michele W

> Aubrie's mom 9 yrs

>

>