RE: Re: absent semi-circular canals

[Guest guest]

I am not sure if my post went through before but here goes again...OUr son

who is now 16 years old has a malformed cochlea and the semi circular

canals are small. He did learn to walk when he was 4. HIs balance is

actually quite good, considering. Dont give up hope! It will happen. They

have to learn to compensate with the balance, but they can do so. Hang in

there! ck

>

>Reply-To: CHARGE

>To: CHARGE

>Subject: Re: absent semi-circular canals

>Date: Wed, 09 May 2007 22:10:29 -0000

>

>Saw this article in April issue of Wired magazine where they discuss

>sensory prosthetics including one that helped people with inner ear

>damage restore their balance. This stuff is way in the future but

>thought some might find it interesting.

>

>http://www.wired.com/wired/archive/15.04/esp.html

>

>Jeff

>

>

>

> >

> > Hi. It's been a few months since I've posted due to lack of having

> > enough time. My son Luke is 2 1/2 with CHARGE. We just found out the

> > results of the CT scan he had done on his inner ear last week. It

> > showed that he has little or no semi-circular canals. I thought I was

> > prepared for this result, since he obviously has balance issues, but I

> > was really hoping he would have at least some part of the semi-circular

> > canals present. Now, I'm really worried about how much more difficult

> > things will be for him since he has almost no sense of balance. I'm

> > hoping someone can give me some feedback on the potential for kids in

> > this situation. What can I expect? Walking, I hope? Thanks.

> >

> > Snyder, mom to Luke (2 1/2 yrs., CHARGE)

> > www.caringbridge.org/mn/lukejoseph

> >

>

>

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