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I believe it's the same for us CHARGErs, as it is for the rest.

Trish Gray tgluvly@...> wrote: Hi, I was just wondering if any

of you were given special instructions

with our CHARGE kids as to how high of a temp they can have before we

have to worry. With my other two, it was 102, Just wondering... my

pediatrician doesn't have an oncall doctor over the weekends so I can't

ask him.

Trish Mom to DeJay 5, ah, 3, and Sammy 4 mth CHARGEr

Sincerely yours; Krista Bach.

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well we measure in c here so its if i get over 38.5 we worry with me coz i

generaly run warm anyway

>

> I believe it's the same for us CHARGErs, as it is for the rest.

>

> Trish Gray tgluvly@... > wrote: Hi, I was just

> wondering if any of you were given special instructions

> with our CHARGE kids as to how high of a temp they can have before we

> have to worry. With my other two, it was 102, Just wondering... my

> pediatrician doesn't have an oncall doctor over the weekends so I can't

> ask him.

>

> Trish Mom to DeJay 5, ah, 3, and Sammy 4 mth CHARGEr

>

> Sincerely yours; Krista Bach.

>

> ---------------------------------

> All new Yahoo! Mail -

> ---------------------------------

> Get a sneak peak at messages with a handy reading pane.

>

>

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Trish,

many kids with CHARGE either have a different " normal " temp and/or

difficulty regulating their body temps. I know of several who

normally run low - around 97 or 97.5 And lots of kids have

" unexplained fevers (or maybe just elevated temp) " - sometimes every

day (which leads to lots of extra workups, being sent home form

school, etc). As you probably know, everyone has variations in their

temp during the day - it's lowest early in the morning and highest

late in the afternoon. That's for typical people. It may be

different for kids with CHARGE.

So the best I can tel you is to know your child. If you are worried

RIGHT NOW, keep an eye on it (is it changing?) and observe how Sammy

feels. Kids can get fussy JUST because they are hot from fever, but

also if they really are sick. Trust your gut. Hope that helps a little.

Meg

not a doctor, but lots of experience with CHARGE and her own 3 kids.

>

> Hi, I was just wondering if any of you were given special instructions

> with our CHARGE kids as to how high of a temp they can have before we

> have to worry. With my other two, it was 102, Just wondering... my

> pediatrician doesn't have an oncall doctor over the weekends so I can't

> ask him.

>

> Trish Mom to DeJay 5, ah, 3, and Sammy 4 mth CHARGEr

>

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Trish

Amélie has a labile temp every day of her life! highest at around 6am.

We take her temp 2-3 hourly as part of every day routine. Amélie had

problems

as a newborn maintaining her temp more so than the average newborn, as so

we took this as part of her.

If you know thats your childs norm then its easier

to manage, Amélies school also know this and they keep up regular temp

checks,

and paracetamol when required.

les x

>

> Trish,

> many kids with CHARGE either have a different " normal " temp and/or

> difficulty regulating their body temps. I know of several who

> normally run low - around 97 or 97.5 And lots of kids have

> " unexplained fevers (or maybe just elevated temp) " - sometimes every

> day (which leads to lots of extra workups, being sent home form

> school, etc). As you probably know, everyone has variations in their

> temp during the day - it's lowest early in the morning and highest

> late in the afternoon. That's for typical people. It may be

> different for kids with CHARGE.

>

> So the best I can tel you is to know your child. If you are worried

> RIGHT NOW, keep an eye on it (is it changing?) and observe how Sammy

> feels. Kids can get fussy JUST because they are hot from fever, but

> also if they really are sick. Trust your gut. Hope that helps a little.

> Meg

> not a doctor, but lots of experience with CHARGE and her own 3 kids.

>

>

> >

> > Hi, I was just wondering if any of you were given special instructions

> > with our CHARGE kids as to how high of a temp they can have before we

> > have to worry. With my other two, it was 102, Just wondering... my

> > pediatrician doesn't have an oncall doctor over the weekends so I can't

> > ask him.

> >

> > Trish Mom to DeJay 5, ah, 3, and Sammy 4 mth CHARGEr

> >

>

>

>

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Trish,

To say that CHARGErs are different and yet the same goes here too.

runs a normally low average body temp, about 97. Even through

all the pneumonias, ear infections and all he's never really ran a 'temp'

When he had his appendicitis a couple years ago he never ran a temp

tho his white cell count was WAY high and when the did the op they

told me his appendix was so infected it was about to burst. But all my

kids are that way. So we go here more on behavior than anything else

Course it's alot easier now when they can tell you what's going on.

Casey

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