Re: A Book On CHARGE Syndrome By CHARGErs.

[Guest guest]

We've changed the e-mail to krista_amy@...

Sorry about that.

Krista Bach stillannemurray@...> wrote:

Hello Everyone;

I was sitting at my computer thinking about us, and a brillient idea came to me.

After discussing it with both Ellen Howe and Amy Park, I decided to tell you

what my idea is, and hope that you find it equally exciting as we do.

What I would like to do is for us to make a book together. From one end of the

world to the other, Canadians, Americans, Australians, Europeans united in one

book about CHARGE. From different nationalities, religions, ages, backgrounds,

together as one voice to bring awareness of a Syndrome that needs to be brought

to the world's attention.

Today I would like you to take the time and write about you. It can be as short

as a paragraph, and as long as a page. But it won't go further than one page

about you. The stories will be sent to either Amy Park or Krista Bach by

personal e-mail, or regular mail. The dead line will be July 2008, with the

publication of this book by Christmas 2008.

There are many ways this book can be done. You can reveal who you are if you

want to. If you want to remain anomanous, you can just state your age, and where

you're from.

An example is " I'm 28 years old and from Ontario, Canada. "

If you run into any problems, we are here for you. You're not alone, you don't

have to write perfectly, and you don't have to rush through this. Amy Park and I

are already starting to plan a meeting place, where we can all meet up and talk

about how to put this book together to get published.

We are in this together. All of us from every part of the world. This is our

book.

Our e-mail address is KnA@...

Thank you. Sincerely yours; Amy Park & Krista Bach.

---------------------------------

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with the All-new Yahoo! Mail

[Guest guest]

Krista and Amy, this is a brilliant idea for sure.

One question. for those who may not be in a position to write a page or half

page or whatever, about themselves, what do you think of the idea of them

submitting a drawing they make?

Anyway, nice idea. It will be lovely to see and read in its entirety.

:-)

Re: A Book On CHARGE Syndrome By CHARGErs.

>

>We've changed the e-mail to krista_amy@...

>

> Sorry about that.

>

>Krista Bach stillannemurray@...> wrote:

> Hello Everyone;

>

>I was sitting at my computer thinking about us, and a brillient idea came to

me. After discussing it with both Ellen Howe and Amy Park, I decided to tell you

what my idea is, and hope that you find it equally exciting as we do.

>

>What I would like to do is for us to make a book together. From one end of the

world to the other, Canadians, Americans, Australians, Europeans united in one

book about CHARGE. From different nationalities, religions, ages, backgrounds,

together as one voice to bring awareness of a Syndrome that needs to be brought

to the world's attention.

>

>Today I would like you to take the time and write about you. It can be as short

as a paragraph, and as long as a page. But it won't go further than one page

about you. The stories will be sent to either Amy Park or Krista Bach by

personal e-mail, or regular mail. The dead line will be July 2008, with the

publication of this book by Christmas 2008.

>

>There are many ways this book can be done. You can reveal who you are if you

want to. If you want to remain anomanous, you can just state your age, and where

you're from.

>

>An example is " I'm 28 years old and from Ontario, Canada. "

>

>If you run into any problems, we are here for you. You're not alone, you don't

have to write perfectly, and you don't have to rush through this. Amy Park and I

are already starting to plan a meeting place, where we can all meet up and talk

about how to put this book together to get published.

>

>We are in this together. All of us from every part of the world. This is our

book.

>Our e-mail address is KnA@...

>

>Thank you. Sincerely yours; Amy Park & Krista Bach.

>

>---------------------------------

>Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new Yahoo! Mail

>

>

[Guest guest]

Wonderful Idea, and send it to krista_amy@... or you can send it to our

address. Just ask us

Keedy wkeedy@...> wrote: Krista and Amy, this is a

brilliant idea for sure.

One question. for those who may not be in a position to write a page or half

page or whatever, about themselves, what do you think of the idea of them

submitting a drawing they make?

Anyway, nice idea. It will be lovely to see and read in its entirety.

:-)

Re: A Book On CHARGE Syndrome By CHARGErs.

>

>We've changed the e-mail to krista_amy@...

>

> Sorry about that.

>

>Krista Bach stillannemurray@...> wrote:

> Hello Everyone;

>

>I was sitting at my computer thinking about us, and a brillient idea came to

me. After discussing it with both Ellen Howe and Amy Park, I decided to tell you

what my idea is, and hope that you find it equally exciting as we do.

>

>What I would like to do is for us to make a book together. From one end of the

world to the other, Canadians, Americans, Australians, Europeans united in one

book about CHARGE. From different nationalities, religions, ages, backgrounds,

together as one voice to bring awareness of a Syndrome that needs to be brought

to the world's attention.

>

>Today I would like you to take the time and write about you. It can be as short

as a paragraph, and as long as a page. But it won't go further than one page

about you. The stories will be sent to either Amy Park or Krista Bach by

personal e-mail, or regular mail. The dead line will be July 2008, with the

publication of this book by Christmas 2008.

>

>There are many ways this book can be done. You can reveal who you are if you

want to. If you want to remain anomanous, you can just state your age, and where

you're from.

>

>An example is " I'm 28 years old and from Ontario, Canada. "

>

>If you run into any problems, we are here for you. You're not alone, you don't

have to write perfectly, and you don't have to rush through this. Amy Park and I

are already starting to plan a meeting place, where we can all meet up and talk

about how to put this book together to get published.

>

>We are in this together. All of us from every part of the world. This is our

book.

>Our e-mail address is KnA@...

>

>Thank you. Sincerely yours; Amy Park & Krista Bach.

>

>---------------------------------

>Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new Yahoo! Mail

>

>

[Guest guest]

Excellent idea. This is one to maybe pass on to other people with CHARGE

who are not on this list. I am sure we all know some whose lives have

inspired us but are not here to see this lovely idea. Looking forward to

the development of a great project.

Flo

>

> Wonderful Idea, and send it to krista_amy@...or

you can send it to our address. Just ask us

>

> Keedy wkeedy@... > wrote: Krista

> and Amy, this is a brilliant idea for sure.

>

> One question. for those who may not be in a position to write a page or

> half page or whatever, about themselves, what do you think of the idea of

> them submitting a drawing they make?

>

> Anyway, nice idea. It will be lovely to see and read in its entirety.

>

> :-)

>

> Re: A Book On CHARGE Syndrome By CHARGErs.

> >

> >We've changed the e-mail to krista_amy@...

> >

> > Sorry about that.

> >

> >Krista Bach stillannemurray@... >

> wrote:

> > Hello Everyone;

> >

> >I was sitting at my computer thinking about us, and a brillient idea came

> to me. After discussing it with both Ellen Howe and Amy Park, I decided to

> tell you what my idea is, and hope that you find it equally exciting as we

> do.

> >

> >What I would like to do is for us to make a book together. From one end

> of the world to the other, Canadians, Americans, Australians, Europeans

> united in one book about CHARGE. From different nationalities, religions,

> ages, backgrounds, together as one voice to bring awareness of a Syndrome

> that needs to be brought to the world's attention.

> >

> >Today I would like you to take the time and write about you. It can be as

> short as a paragraph, and as long as a page. But it won't go further than

> one page about you. The stories will be sent to either Amy Park or Krista

> Bach by personal e-mail, or regular mail. The dead line will be July 2008,

> with the publication of this book by Christmas 2008.

> >

> >There are many ways this book can be done. You can reveal who you are if

> you want to. If you want to remain anomanous, you can just state your age,

> and where you're from.

> >

> >An example is " I'm 28 years old and from Ontario, Canada. "

> >

> >If you run into any problems, we are here for you. You're not alone, you

> don't have to write perfectly, and you don't have to rush through this. Amy

> Park and I are already starting to plan a meeting place, where we can all

> meet up and talk about how to put this book together to get published.

> >

> >We are in this together. All of us from every part of the world. This is

> our book.

> >Our e-mail address is KnA@...

> >

> >Thank you. Sincerely yours; Amy Park & Krista Bach.

> >

> >

>

--

Flo (UK)

Mum to - CHARGE - (7) and Elly (5)

[Guest guest]

I am going for it, I'll do it in Spanish and English ....good idea

Ramiro Arteaga

Braulio 15 months

Mulberry FL

Flo Njeru flo.njeru@...> wrote:

Excellent idea. This is one to maybe pass on to other people with

CHARGE

who are not on this list. I am sure we all know some whose lives have

inspired us but are not here to see this lovely idea. Looking forward to

the development of a great project.

Flo

>

> Wonderful Idea, and send it to krista_amy@...or

you can send it to our address. Just ask us

>

> Keedy wkeedy@... > wrote: Krista

> and Amy, this is a brilliant idea for sure.

>

> One question. for those who may not be in a position to write a page or

> half page or whatever, about themselves, what do you think of the idea of

> them submitting a drawing they make?

>

> Anyway, nice idea. It will be lovely to see and read in its entirety.

>

> :-)

>

> Re: A Book On CHARGE Syndrome By CHARGErs.

> >

> >We've changed the e-mail to krista_amy@...

> >

> > Sorry about that.

> >

> >Krista Bach stillannemurray@... >

> wrote:

> > Hello Everyone;

> >

> >I was sitting at my computer thinking about us, and a brillient idea came

> to me. After discussing it with both Ellen Howe and Amy Park, I decided to

> tell you what my idea is, and hope that you find it equally exciting as we

> do.

> >

> >What I would like to do is for us to make a book together. From one end

> of the world to the other, Canadians, Americans, Australians, Europeans

> united in one book about CHARGE. From different nationalities, religions,

> ages, backgrounds, together as one voice to bring awareness of a Syndrome

> that needs to be brought to the world's attention.

> >

> >Today I would like you to take the time and write about you. It can be as

> short as a paragraph, and as long as a page. But it won't go further than

> one page about you. The stories will be sent to either Amy Park or Krista

> Bach by personal e-mail, or regular mail. The dead line will be July 2008,

> with the publication of this book by Christmas 2008.

> >

> >There are many ways this book can be done. You can reveal who you are if

> you want to. If you want to remain anomanous, you can just state your age,

> and where you're from.

> >

> >An example is " I'm 28 years old and from Ontario, Canada. "

> >

> >If you run into any problems, we are here for you. You're not alone, you

> don't have to write perfectly, and you don't have to rush through this. Amy

> Park and I are already starting to plan a meeting place, where we can all

> meet up and talk about how to put this book together to get published.

> >

> >We are in this together. All of us from every part of the world. This is

> our book.

> >Our e-mail address is KnA@...

> >

> >Thank you. Sincerely yours; Amy Park & Krista Bach.

> >

> >

>

--

Flo (UK)

Mum to - CHARGE - (7) and Elly (5)

[Guest guest]

This is wonderful news. Great idea!

, Randy & Garland Goodwin

---- Krista Bach stillannemurray@...> wrote:

=============

Hello Everyone;

I was sitting at my computer thinking about us, and a brillient idea came to

me. After discussing it with both Ellen Howe and Amy Park, I decided to tell you

what my idea is, and hope that you find it equally exciting as we do.

What I would like to do is for us to make a book together. From one end of the

world to the other, Canadians, Americans, Australians, Europeans united in one

book about CHARGE. From different nationalities, religions, ages, backgrounds,

together as one voice to bring awareness of a Syndrome that needs to be brought

to the world's attention.

Today I would like you to take the time and write about you. It can be as

short as a paragraph, and as long as a page. But it won't go further than one

page about you. The stories will be sent to either Amy Park or Krista Bach by

personal e-mail, or regular mail. The dead line will be July 2008, with the

publication of this book by Christmas 2008.

There are many ways this book can be done. You can reveal who you are if you

want to. If you want to remain anomanous, you can just state your age, and where

you're from.

An example is " I'm 28 years old and from Ontario, Canada. "

If you run into any problems, we are here for you. You're not alone, you don't

have to write perfectly, and you don't have to rush through this. Amy Park and I

are already starting to plan a meeting place, where we can all meet up and talk

about how to put this book together to get published.

We are in this together. All of us from every part of the world. This is our

book.

Our e-mail address is KnA@...

Thank you. Sincerely yours; Amy Park & Krista Bach.

---------------------------------

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new Yahoo! Mail