A Book On CHARGE Syndrome By CHARGErs.

July 28, 2007

Hello Everyone;

I was sitting at my computer thinking about us, and a brillient idea came to

me. After discussing it with both Ellen Howe and Amy Park, I decided to tell you

what my idea is, and hope that you find it equally exciting as we do.

What I would like to do is for us to make a book together. From one end of the

world to the other, Canadians, Americans, Australians, Europeans united in one

book about CHARGE. From different nationalities, religions, ages, backgrounds,

together as one voice to bring awareness of a Syndrome that needs to be brought

to the world's attention.

Today I would like you to take the time and write about you. It can be as

short as a paragraph, and as long as a page. But it won't go further than one

page about you. The stories will be sent to either Amy Park or Krista Bach by

personal e-mail, or regular mail. The dead line will be July 2008, with the

publication of this book by Christmas 2008.

There are many ways this book can be done. You can reveal who you are if you

want to. If you want to remain anomanous, you can just state your age, and where

you're from.

An example is " I'm 28 years old and from Ontario, Canada. "

If you run into any problems, we are here for you. You're not alone, you don't

have to write perfectly, and you don't have to rush through this. Amy Park and I

are already starting to plan a meeting place, where we can all meet up and talk

about how to put this book together to get published.

We are in this together. All of us from every part of the world. This is our

book.

Our e-mail address is KnA@...

Thank you. Sincerely yours; Amy Park & Krista Bach.

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