Jump to content
RemedySpot.com

Re: Dry Hair

Rate this topic


Guest guest

Recommended Posts

Guest guest

-

You bring up a good point. Rasha is the same way-we have to give

Miralax once a week to keep things in order and her hair is dry too.

I noticed that it has become dryer over the last year. I thought it

was just because she's taking to pulling it out by the handful.

Janay

Mom to Rasha(20 months old)

>

> Do any CHARGERS or children with CHARGE have trouble with dry

hair. My

> son is 20 months and he has dry hair and consitpation

issues. We

> have done some bowel cleanouts and started Murilax and extra water

> which has all helped with the consitpation but we continue to have

> problems with dry brittle hair. The doctor just checked for

thyroid

> problem and it turned up normal. I am at a loss as to why his

hair is

> so dry. I have 3 other boys and they don't seem to have this

problem,

> nor do my husband or I so I am wondering if it is related to

having

> CHARGE syndrome?

>

> Thanks for your help!

> PROUD mom to

>

Link to comment
Share on other sites

Guest guest

hmmm i had this prob to they figured was some meds im on so id check all ur

meds to see the sideeffects

>

> -

>

> You bring up a good point. Rasha is the same way-we have to give

> Miralax once a week to keep things in order and her hair is dry too.

> I noticed that it has become dryer over the last year. I thought it

> was just because she's taking to pulling it out by the handful.

>

> Janay

> Mom to Rasha(20 months old)

>

>

> >

> > Do any CHARGERS or children with CHARGE have trouble with dry

> hair. My

> > son is 20 months and he has dry hair and consitpation

> issues. We

> > have done some bowel cleanouts and started Murilax and extra water

> > which has all helped with the consitpation but we continue to have

> > problems with dry brittle hair. The doctor just checked for

> thyroid

> > problem and it turned up normal. I am at a loss as to why his

> hair is

> > so dry. I have 3 other boys and they don't seem to have this

> problem,

> > nor do my husband or I so I am wondering if it is related to

> having

> > CHARGE syndrome?

> >

> > Thanks for your help!

> > PROUD mom to

> >

>

>

>

Link to comment
Share on other sites

Guest guest

Check the thyroid levels - dry hair and constipation can be a sign of

hypothyroidism - Kennedy doesn't have it, but I do!

www.chargesyndrome.info

>

> hmmm i had this prob to they figured was some meds im on so id check all

> ur

> meds to see the sideeffects

>

> On 01/05/07, jkhayes95 jkhayes95@... >

> wrote:

> >

> > -

> >

> > You bring up a good point. Rasha is the same way-we have to give

> > Miralax once a week to keep things in order and her hair is dry too.

> > I noticed that it has become dryer over the last year. I thought it

> > was just because she's taking to pulling it out by the handful.

> >

> > Janay

> > Mom to Rasha(20 months old)

> >

> >

> > >

> > > Do any CHARGERS or children with CHARGE have trouble with dry

> > hair. My

> > > son is 20 months and he has dry hair and consitpation

> > issues. We

> > > have done some bowel cleanouts and started Murilax and extra water

> > > which has all helped with the consitpation but we continue to have

> > > problems with dry brittle hair. The doctor just checked for

> > thyroid

> > > problem and it turned up normal. I am at a loss as to why his

> > hair is

> > > so dry. I have 3 other boys and they don't seem to have this

> > problem,

> > > nor do my husband or I so I am wondering if it is related to

> > having

> > > CHARGE syndrome?

> > >

> > > Thanks for your help!

> > > PROUD mom to

> > >

> >

> >

> >

>

>

Link to comment
Share on other sites

Guest guest

had some funky hair in the back which was attributed to the fact that

she scooted on the back of her head somewhat like an inch worm to get around.

This was before she could crawl mind you. The texture of her hair made me think

of carpet. We used a really good children's conditioner on it and still do

actually. The name is " BEBE " . Now that part of her hair is the prettiest b/c it

has such beautiful curls. Go figure.

---- Original Message -----

From: erinsefcik

To: CHARGE

Sent: Monday, April 30, 2007 5:00 PM

Subject: Dry Hair

Do any CHARGERS or children with CHARGE have trouble with dry hair. My

son is 20 months and he has dry hair and consitpation issues. We

have done some bowel cleanouts and started Murilax and extra water

which has all helped with the consitpation but we continue to have

problems with dry brittle hair. The doctor just checked for thyroid

problem and it turned up normal. I am at a loss as to why his hair is

so dry. I have 3 other boys and they don't seem to have this problem,

nor do my husband or I so I am wondering if it is related to having

CHARGE syndrome?

Thanks for your help!

PROUD mom to

Link to comment
Share on other sites

Guest guest

Hi,

has always had constipation problems but he also had some

extensive stomach surgeries in the past. He also has been on Miralax

for a long time. His bowel movements off of the Miralax are extremely

large ( clog the toilet large). Over the years we have encouraged him

to always drink plenty of water. He almost always has something to

drink in his hands now but still occasionaly will have a constipation

problem.

I have extremely dry skin. Something I do is massage baby oil into my

skin while I am still wet from a shower then towel dry. Also my

doctor recommended Jergen's lotion. Of all the lotions I've tried

that seems to work the best. My husband has a problem with sometimes

getting intense itching on his arms. Daughter has the same thing and

they would scatch themselves raw on their arms. They have

prescription cream they use but the doctor also recommends that they

use only Dove or Tone soaps. Hope some of this info can be helpful.

mom to 31

>

> Do any CHARGERS or children with CHARGE have trouble with dry

hair. My

> son is 20 months and he has dry hair and consitpation

issues. We

> have done some bowel cleanouts and started Murilax and extra water

> which has all helped with the consitpation but we continue to have

> problems with dry brittle hair. The doctor just checked for

thyroid

> problem and it turned up normal. I am at a loss as to why his hair

is

> so dry. I have 3 other boys and they don't seem to have this

problem,

> nor do my husband or I so I am wondering if it is related to having

> CHARGE syndrome?

>

> Thanks for your help!

> PROUD mom to

>

Link to comment
Share on other sites

Guest guest

>

> Do any CHARGERS or children with CHARGE have trouble with dry hair. My

> son is 20 months and he has dry hair and consitpation issues. We

> have done some bowel cleanouts and started Murilax and extra water

> which has all helped with the consitpation but we continue to have

> problems with dry brittle hair. The doctor just checked for thyroid

> problem and it turned up normal. I am at a loss as to why his hair is

> so dry. I have 3 other boys and they don't seem to have this problem,

> nor do my husband or I so I am wondering if it is related to having

> CHARGE syndrome?

>

> Thanks for your help!

> PROUD mom to

>

:

I am new to CHARGE as my daughter Angelina has recently been

diagnosed. In addition to the Charge, Angelina also has Hirschsprungs

disease, an intestinal dirsorder where part of the cells that move the

large bowel are missing. This often first presents as constipation.

I'm not sure if any other Chargers have Hirschprungs, but you may want

to rule that out.

mom of Angelina 2 1/2

Link to comment
Share on other sites

Guest guest

Hey !!!!

I've been waiting to see if you'd turn up as I lost your number that

Jane passed me. How's Angelina?

Janay

Rasha's Mom

> >

> > Do any CHARGERS or children with CHARGE have trouble with dry

hair. My

> > son is 20 months and he has dry hair and consitpation

issues. We

> > have done some bowel cleanouts and started Murilax and extra

water

> > which has all helped with the consitpation but we continue to

have

> > problems with dry brittle hair. The doctor just checked for

thyroid

> > problem and it turned up normal. I am at a loss as to why his

hair is

> > so dry. I have 3 other boys and they don't seem to have this

problem,

> > nor do my husband or I so I am wondering if it is related to

having

> > CHARGE syndrome?

> >

> > Thanks for your help!

> > PROUD mom to

> >

>

> :

>

> I am new to CHARGE as my daughter Angelina has recently been

> diagnosed. In addition to the Charge, Angelina also has

Hirschsprungs

> disease, an intestinal dirsorder where part of the cells that move

the

> large bowel are missing. This often first presents as constipation.

> I'm not sure if any other Chargers have Hirschprungs, but you may

want

> to rule that out.

>

>

> mom of Angelina 2 1/2

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...