Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Hi , As a 19 year old Karlee goes to bed around 9:00. She actually gets up pretty well around 6:00. However, it doesn't seem to make a lot of difference. It's like you said - working overtime to hear and balance are fatiguing. RE: absent semi-circular canals - Aubrie is also very fatigued. We don't know for sure about her semicircular canals. But I do know her balance is off, her muscle tone is weak, etc. We think those motor issues contribute to her fatigue, but so do her hearing and vision. It takes a lot of effort to attend to everything when your senses are compromised. I'm sort of encouraged to know that Karlee still has a respite room. Aubrie does - and I am comforted to know that it is possible to continue it on indefinitely. We also encourage lots of eating - never mind any school rules about snacks! How early does Karlee have to go to bed? Aubrie still goes to bed at 7:30 or 8 in order to get up at 6am. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
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