Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Dear - Thank you for chiming in. Every voice we add to our presence gives comfort and assurance. At this point the physicians have decided to discharge the baby home, awaiting the lungs to mature further prior to repairing the heart. So exciting to go home - so much worry with the desaturation issues.... Thank you again- yuka W Re: Coarctation of Aorta (CoA), Ventricular Septal Defect (VSD) and pulmonary stenosis Our little Jillyan had her CoA repair at 20 days of age (was supposed to have been at 3 mos -- but Jillyan had other plans to get out of the hospital earlier). She was actually in congestive heart failure when she was rushed into surgery and we got a different baby once this was fixed - reflux stopped completely and she started drinking from a bottle. Her VSD is so small it is considered a non-issue. She did have subaortic stenosis and we finally had to have surgery in 8/05. Again -- after the second heart surgery we got a different child -- she tolerated longer therapy sessions and finally began to walk and also this year went to school full time. Little did we know that the stenosis was making her sicker than we thought. We had the surgery done as the pressure of the blood flowing into the defective aortic valve was increasing and they wanted to prevent valve replacement surgery. My husband and I didn't want two heart surgeries, but both improved her quality of life and she surprises us constantly. Huggins Mom to Jillyan (now 6) and Hailey (10) Recent Activity a.. 2New Members Visit Your Group Healthy Eating A Yahoo! resource for families on how to eat healthy Yahoo! TV " The 9 " Daily count down of top Web finds. Biz Resources Y! Small Business Articles, tools, forms, and more. . ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.9.2/858 - Release Date: 6/21/07 1:46 PM Quote Link to comment Share on other sites More sharing options...
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