Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 hope all is well and just gets better. JD is Okay...BUT We had an emergency life threatening situation with JD develop yesterday afternoon. It seems JD went through an accidental decannulation yesterday about mid afternoon. His trach did come out and JD experienced rapid respiratory distress. We did not have a nurse with us yesterday until nighttime. Mandy was with JD and by his side through the entire situation and handled the situation completely as she was trained to do. There was no trouble getting JD's trach back in. JD did lose consciousness and changed colors due to lack of oxygen for about a short time but as soon as his airway was reestablished with putting the trach in he responded beautifully. JD was administed about 1 liter of oxygen for about 30 minutes to keep his saturations up and help him with his breathing. We were able to wean him down to 1/8 of a liter by about nine o'clock last night. JD experienced life threatening vital signs as for a period there was o2 saturations in the 60's and higher heart rates which stabilized as soon as his airway was reestablished. We estimate total time of decannulation at about 2 -3 minutes maximum however it seemed like forever. Let me assure you that JD is fine and had a restful night. As of today he is breathing room air and not having any oxygen administered. We called JD pulmonologist like we always do and have been doing daily to keep him abreast of the situation. We were advised to watch JD and not bring him in. JD will go to vent clinic tomorrow for a regularly scheduled appointment and undergo a complete physical to determine if he is ready to face surgery for the choanal atresia repair. We still do not know if this is a go. Hopefully tomorrow we will have some more answers. As I have said before we believe this will be a last minute decision to do this surgery. We ask that everyone stay put and keep there fingers crossed. We are unsure about yesterdays situation and it might have thrown a wrench into things. But we dont know. Again we ask for everyone to pray and stay put. We will keep you informed when we know more. At this point we just dont know. We believe we are very close to this surgery becoming a reality but we just dont know. This decision rests in the hands of his doctors and ultimately in the hands of God if it is time. Our faith continues to rest in God to guide us. I can assure you that God's plan for JD will prevail whatever happens. All I can say as of yesterday is that Mandy handled the situation beautifully and it is so apparent that God was by her side through the whole situation. We are very nervous and emotionally distraught as to the events that occurred yesterday afternoon but our complete trust remains in God. As you can see everyday is serious when it comes to JD and his health. Our faith remains in God and we have placed the health of both of our children in His hands. We look to Him for guidance in making decisions and caring for our child when serious life threatening situations like this arise as they have. We will keep you informed. We ask for you to continue with your daily lives and pray for us and our children. Again we will keep you informed. Until we have more news we remain as servants to a risen Lord who is Christ Jesus. May the peace, power, love, grace and mercy of our Lord be with all of you. We remain In His Grip. In His Loving Hands, , Mandy, Olivia (19 months) and Barton (cHArgEd 19 months) __________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 yes its always very scary, and thank goodness you handled the situation well. its amazing how well we learn to provide nursing care for our little ones without the nursing degree!! Amelie frightens us to death most nights when she falls asleep, she constantly plummets to low 50's on sats and would typically carry on dropping if we didnt shake the living daylight out of her to wake her, then she takes a gulp of breath, and nods back of to sleep as if nothing happened, until the next episode, shes in 2 litres oxygen 24/7 and its driving us insane! keep up the vigilant good work, its all in gods hands! Lesley > > hope all is well and just gets better. > > > JD is Okay...BUT > > We had an emergency life threatening situation with JD develop yesterday > afternoon. It seems JD went through an accidental decannulation yesterday > about mid afternoon. His trach did come out and JD experienced rapid > respiratory distress. We did not have a nurse with us yesterday until > nighttime. Mandy was with JD and by his side through the entire situation > and handled the situation completely as she was trained to do. There was no > trouble getting JD's trach back in. JD did lose consciousness and changed > colors due to lack of oxygen for about a short time but as soon as his > airway was reestablished with putting the trach in he responded beautifully. > JD was administed about 1 liter of oxygen for about 30 minutes to keep his > saturations up and help him with his breathing. We were able to wean him > down to 1/8 of a liter by about nine o'clock last night. JD experienced life > threatening vital signs as for a period there was o2 saturations in the 60's > and higher heart rates which stabilized as soon as his airway was > reestablished. We estimate total time of decannulation at about 2 -3 minutes > maximum however it seemed like forever. Let me assure you that JD is fine > and had a restful night. As of today he is breathing room air and not having > any oxygen administered. > > We called JD pulmonologist like we always do and have been doing daily to > keep him abreast of the situation. We were advised to watch JD and not bring > him in. JD will go to vent clinic tomorrow for a regularly scheduled > appointment and undergo a complete physical to determine if he is ready to > face surgery for the choanal atresia repair. We still do not know if this is > a go. Hopefully tomorrow we will have some more answers. As I have said > before we believe this will be a last minute decision to do this surgery. We > ask that everyone stay put and keep there fingers crossed. We are unsure > about yesterdays situation and it might have thrown a wrench into things. > But we dont know. Again we ask for everyone to pray and stay put. We will > keep you informed when we know more. At this point we just dont know. We > believe we are very close to this surgery becoming a reality but we just > dont know. This decision rests in the hands of his doctors and ultimately in > the hands of God if it is time. Our faith continues to rest in God to guide > us. I can assure you that God's plan for JD will prevail whatever happens. > > All I can say as of yesterday is that Mandy handled the situation > beautifully and it is so apparent that God was by her side through the whole > situation. We are very nervous and emotionally distraught as to the events > that occurred yesterday afternoon but our complete trust remains in God. As > you can see everyday is serious when it comes to JD and his health. Our > faith remains in God and we have placed the health of both of our children > in His hands. We look to Him for guidance in making decisions and caring for > our child when serious life threatening situations like this arise as they > have. We will keep you informed. We ask for you to continue with your daily > lives and pray for us and our children. Again we will keep you informed. > > Until we have more news we remain as servants to a risen Lord who is > Christ Jesus. May the peace, power, love, grace and mercy of our Lord be > with all of you. We remain In His Grip. > > In His Loving Hands, > > , Mandy, Olivia (19 months) and Barton (cHArgEd 19 months) > __________________________________________________________ > AOL now offers free email to everyone. Find out more about what's free > from AOL at AOL.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 i guess time will tell but the surgeries > > yes its always very scary, and thank goodness you handled the situation > well. > its amazing how well we learn to provide nursing care for our little ones > without the nursing degree!! > > Amelie frightens us to death most nights when she falls asleep, she > constantly plummets to low 50's on sats and would > typically carry on dropping if we didnt shake the living daylight out of > her > to wake her, then she takes a gulp of breath, and > nods back of to sleep as if nothing happened, until the next episode, shes > in 2 litres oxygen 24/7 and its driving us insane! > > keep up the vigilant good work, its all in gods hands! > Lesley > > On 30/04/07, PATRICK HALLORAN kannew@... > > wrote: > > > > hope all is well and just gets better. > > > > > > JD is Okay...BUT > > > > We had an emergency life threatening situation with JD develop yesterday > > afternoon. It seems JD went through an accidental decannulation > yesterday > > about mid afternoon. His trach did come out and JD experienced rapid > > respiratory distress. We did not have a nurse with us yesterday until > > nighttime. Mandy was with JD and by his side through the entire > situation > > and handled the situation completely as she was trained to do. There was > no > > trouble getting JD's trach back in. JD did lose consciousness and > changed > > colors due to lack of oxygen for about a short time but as soon as his > > airway was reestablished with putting the trach in he responded > beautifully. > > JD was administed about 1 liter of oxygen for about 30 minutes to keep > his > > saturations up and help him with his breathing. We were able to wean him > > down to 1/8 of a liter by about nine o'clock last night. JD experienced > life > > threatening vital signs as for a period there was o2 saturations in the > 60's > > and higher heart rates which stabilized as soon as his airway was > > reestablished. We estimate total time of decannulation at about 2 -3 > minutes > > maximum however it seemed like forever. Let me assure you that JD is > fine > > and had a restful night. As of today he is breathing room air and not > having > > any oxygen administered. > > > > We called JD pulmonologist like we always do and have been doing daily > to > > keep him abreast of the situation. We were advised to watch JD and not > bring > > him in. JD will go to vent clinic tomorrow for a regularly scheduled > > appointment and undergo a complete physical to determine if he is ready > to > > face surgery for the choanal atresia repair. We still do not know if > this is > > a go. Hopefully tomorrow we will have some more answers. As I have said > > before we believe this will be a last minute decision to do this > surgery. We > > ask that everyone stay put and keep there fingers crossed. We are unsure > > about yesterdays situation and it might have thrown a wrench into > things. > > But we dont know. Again we ask for everyone to pray and stay put. We > will > > keep you informed when we know more. At this point we just dont know. We > > believe we are very close to this surgery becoming a reality but we just > > dont know. This decision rests in the hands of his doctors and > ultimately in > > the hands of God if it is time. Our faith continues to rest in God to > guide > > us. I can assure you that God's plan for JD will prevail whatever > happens. > > > > All I can say as of yesterday is that Mandy handled the situation > > beautifully and it is so apparent that God was by her side through the > whole > > situation. We are very nervous and emotionally distraught as to the > events > > that occurred yesterday afternoon but our complete trust remains in God. > As > > you can see everyday is serious when it comes to JD and his health. Our > > faith remains in God and we have placed the health of both of our > children > > in His hands. We look to Him for guidance in making decisions and caring > for > > our child when serious life threatening situations like this arise as > they > > have. We will keep you informed. We ask for you to continue with your > daily > > lives and pray for us and our children. Again we will keep you informed. > > > > Until we have more news we remain as servants to a risen Lord who is > > Christ Jesus. May the peace, power, love, grace and mercy of our Lord be > > with all of you. We remain In His Grip. > > > > In His Loving Hands, > > > > , Mandy, Olivia (19 months) and Barton (cHArgEd 19 > months) > > __________________________________________________________ > > AOL now offers free email to everyone. Find out more about what's free > > from AOL at AOL.com. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Now that is one great, cool, calm mommy there!! I am glad he is ok now and I will continue to think and pray for you all. Crystal and Eva > > > > hope all is well and just gets better. > > > > > > JD is Okay...BUT > > > > We had an emergency life threatening situation with JD develop yesterday > > afternoon. It seems JD went through an accidental decannulation yesterday > > about mid afternoon. His trach did come out and JD experienced rapid > > respiratory distress. We did not have a nurse with us yesterday until > > nighttime. Mandy was with JD and by his side through the entire situation > > and handled the situation completely as she was trained to do. There was no > > trouble getting JD's trach back in. JD did lose consciousness and changed > > colors due to lack of oxygen for about a short time but as soon as his > > airway was reestablished with putting the trach in he responded beautifully. > > JD was administed about 1 liter of oxygen for about 30 minutes to keep his > > saturations up and help him with his breathing. We were able to wean him > > down to 1/8 of a liter by about nine o'clock last night. JD experienced life > > threatening vital signs as for a period there was o2 saturations in the 60's > > and higher heart rates which stabilized as soon as his airway was > > reestablished. We estimate total time of decannulation at about 2 -3 minutes > > maximum however it seemed like forever. Let me assure you that JD is fine > > and had a restful night. As of today he is breathing room air and not having > > any oxygen administered. > > > > We called JD pulmonologist like we always do and have been doing daily to > > keep him abreast of the situation. We were advised to watch JD and not bring > > him in. JD will go to vent clinic tomorrow for a regularly scheduled > > appointment and undergo a complete physical to determine if he is ready to > > face surgery for the choanal atresia repair. We still do not know if this is > > a go. Hopefully tomorrow we will have some more answers. As I have said > > before we believe this will be a last minute decision to do this surgery. We > > ask that everyone stay put and keep there fingers crossed. We are unsure > > about yesterdays situation and it might have thrown a wrench into things. > > But we dont know. Again we ask for everyone to pray and stay put. We will > > keep you informed when we know more. At this point we just dont know. We > > believe we are very close to this surgery becoming a reality but we just > > dont know. This decision rests in the hands of his doctors and ultimately in > > the hands of God if it is time. Our faith continues to rest in God to guide > > us. I can assure you that God's plan for JD will prevail whatever happens. > > > > All I can say as of yesterday is that Mandy handled the situation > > beautifully and it is so apparent that God was by her side through the whole > > situation. We are very nervous and emotionally distraught as to the events > > that occurred yesterday afternoon but our complete trust remains in God. As > > you can see everyday is serious when it comes to JD and his health. Our > > faith remains in God and we have placed the health of both of our children > > in His hands. We look to Him for guidance in making decisions and caring for > > our child when serious life threatening situations like this arise as they > > have. We will keep you informed. We ask for you to continue with your daily > > lives and pray for us and our children. Again we will keep you informed. > > > > Until we have more news we remain as servants to a risen Lord who is > > Christ Jesus. May the peace, power, love, grace and mercy of our Lord be > > with all of you. We remain In His Grip. > > > > In His Loving Hands, > > > > , Mandy, Olivia (19 months) and Barton (cHArgEd 19 months) > > __________________________________________________________ > > AOL now offers free email to everyone. Find out more about what's free > > from AOL at AOL.com. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 and Mandy, We seem to be in the " respiratory " full moon. So very happy that Mandy resolved things without issue. I thought I'd ask if you all know why the trach became dislodged? If perhaps you are using the velcro fasteners-I really did not like them at all, as little hands can get them undone. Or just a loose tie? Is he turning so much that the trach mask is dislodging it? I know you don't want a recurrance, so I'm just thinking aloud, not knowing of course, if you already have all your answers. Hugs to the kids, in Ma. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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