Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Dear Jeff, Thank you for your kind response. My daughter also had a trach for many years. Too many, no doubt. But it worked so well for her, I was hesitant to change anything. There was no RSV vaccine then, but we wouldn't have needed it. (Luck?) We had the other vaccines, (and recently for bac. meningitis), just later and spread out, and the fact that she seemed to have been fine with them proves nothing ;-) I realize. Right off the bat, maybe we could say that on this list, A/ASD discussion in NO WAY endorses forgoing vaccination. If we all agree on that, and I think we do, then we could discuss the ongoing findings without needing to get sidetracked onto that avenue. I personally have never meant to suggest " don't vaccinate " . Then, we parents might put together some questions for the Pede. as to timing, as perhaps splitting up the vaccines so they are not multi-dose, just as we ask about other things. I also have read anecdotes about parents in science/engineeing. Very interesting. From your knowledge were they involved with hands on chemical/radiological engineering, or are some of them just in academia, suggesting just left-brain dominant individuals? I do have concerns just as a person, about the ADD/ADHD/OCD/PDD/NOS etc. that some Charge children have, and if following the unfolding A/ASD research will bring any light to these problems. It might also be a window to immune system functioning, with some specific relevance to Charge. In regard to autism/asd, my only agenda is that we continue to speak about it, stay informed about it, and as you say, present all sides, and also present those things we're finding in daily life that had an effect on our kids, both positive and negative. The only measure of " rightness " is whether or not something helps them to live a better life. So, as long as we're all talking, my toes are fine. lol. ;-) in Ma. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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