RE: Marilyn-Re: meds

[Guest guest]

Marilyn,

Isn't medication ultimately your decision?

I would research abilify in terms of 's individual expression of

Charge,

just to be sure there are no contraindications.

Then, present the manual portions that explain that Chargers typically have

atypical

medication reactions, and the listserv reports on the successes realized

with abilify,

(and maybe there are also adverse reports re; whatever she is on now, to be

had from the list.)

And make your case. Lots of times summer is a good

time to do it, as academic pressures are less or absent, and just generally

less pressure

in the daily activities.

One consideration on the other side, is how long and how difficult it might

be to wean

her off whatever she is taking now, as there are different classes of

psychotropic drugs,

each acting on a different set of brain/body chemistry.

I don't understand why, if you are not satisfied with the results of a

certain med, that

you should not reserve the right to change. I would want to hear very

compelling

facts from the doctor before abandoning the notion of change.

(Opinion only, of course, and a little Mom support in your corner) ;-)

in Ma.

************************************** See what's free at http://www.aol.com.

[Guest guest]

:

Yes, it is ultimately our decision. But the school psych was suggesting it

based on behaviors and reports from school staff (funny, never any reported

problems from dorm staff!). Rick and I felt we needed to at least try to

see if it helped in the academic setting. (It didn't.) At one

meeting, the staff indicated it needed to be increased due to behaviors

escalating again. We flatly refused - and in talking with the psych and

presenting that she has no problems anywhere except in class, the doc

actually reduced the dosage. We will not be sending any psych meds with

back to school this Fall. If they don't have it in the health

center, they can't give it!

Friends in CHARGE,

Marilyn Ogan

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

mdlinda@...

Sent: Wednesday, July 11, 2007 10:54 AM

To: CHARGE

Subject: Re: Marilyn-Re: meds

Marilyn,

Isn't medication ultimately your decision?

..

http://geo.yahoo.com/serv?s=97359714/grpId=24022/grpspId=1705061498/msgId=9

4485/stime=1184165690/nc1=4718984/nc2=3848432/nc3=4706133>

[Guest guest]

Ellen:

All good ideas:

I had given them all the articles (and then some!).

I had " warned " them for 3 years that behaviors might pop up.

I tried to get them to understand multi-sensory impairments and how

behaviors can manifest from that, as well as the other issues in CHARGE.

We had Tim H. and Meg H. actually do a presentation in Indiana about CHARGE

(sort of a 101) and behaviors back in November of 2006. They even consulted

with the school staff " privately " (I.E.: Not a public forum).

The school still doesn't get it. I am really frustrated at this point about

even getting the next case conference scheduled.

Friends in CHARGE,

Marilyn Ogan

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

ellen howe

Sent: Thursday, July 12, 2007 5:31 AM

To: CHARGE

Subject: Re: Marilyn-Re: meds

u should get the dr to write to the school and say she doestn need them and

maybe explain bout charge haveu got all tims articles and stuff give those

to them or even talk to tim rob and dr georg williums at the confrence c wat

they all say rob last and dr georg williums r the best aussie charge people

and tim well we all admire our tim just some ideas and also im thinking if u

kep any papers of the presentations copy and send to the schhool hugs ellen

in aus