Jump to content
RemedySpot.com

New Member

Rate this topic


Guest guest

Recommended Posts

Guest guest

Hello Everyone

I have just joined this group. I live down in Florida on the West

Coast side. My son, who just turned one was diagnosed with Charge at 5

months. He has fluid in ears and abnormalities of the cocolear. We

are still in the process of finding what kind of hear impairment he

has. I know he can hear but it is how he hears it. He has the coaneal

atrisia, g-tube, and a small kidney due to reflux. I apologize with my

spelling. We have recently started talikng with Dr Nurko and will be

visiting him soon. His gross motor skills are not to delayed. He just

started crawling and pulling him self up on furniture. He loves to

walk with my assistance. My biggest battle with dealing with Charge is

the doctors are not fully aware of it. They are educating themselves

as I am. Also, trying to have a doctor help with coordinating his

care. Everyone looks at him in sections, nobody looks at him as a

whole person. That is truly frustrating. If anyone has any

suggestions on how to make it easier, let me know

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...