Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 glad all went well and that she is home!! maria Amélie the Star!! Well obviously all the prayers helped!! My super trouper Amélie went to theatre late 5.30pm last on the list, expecting her to be double trouble!! No VENT Amélie came out of recovery screaming crying rocking and very very cross with her mummy & Daddy, We were so thrilled the recovery nurse could not understand why we were so happy, she said parents usually cry and get distressed!! We were so relieved she wasnt vented... its a first!! Amélie still went to ICU for 36 hours as everyone expected the decline to follow which she always manages to do! NOT this time...my girl was on a ward yesterday and home at 7.30pm this evening. The PCT local authority have had to put a night carer in for 7 nights perweek until respiratory review on 6th June, and then hopefully a new package will be done for respite support from there on. A few ups and downs...shes had some bradys and so they suspended her propranolol arranged echo and ecg, and then reinstated the propranolol today, they plan a 24 hour recording in two weeks time, but they did not seem too phased. BAD news the ENT said her tonsil and adenoids were actually small in comparison to most kids, and so now the respiratory team have said to see how she is on her stas once the swelling goes down, and if she still persists to obstruct then we will look at the other options, BIPAP or trach! I pray now that we need neither as I feel she has managed this far without this intervention. When she arrived home this evening she was so happy to see her sisters, its been a worrying week for nothing, she took it all in her stride, and shows me how much stronger she has become. thanks to you all for the support...lets see what happens with the nightimes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 glad all went well and that she is home!! maria Amélie the Star!! Well obviously all the prayers helped!! My super trouper Amélie went to theatre late 5.30pm last on the list, expecting her to be double trouble!! No VENT Amélie came out of recovery screaming crying rocking and very very cross with her mummy & Daddy, We were so thrilled the recovery nurse could not understand why we were so happy, she said parents usually cry and get distressed!! We were so relieved she wasnt vented... its a first!! Amélie still went to ICU for 36 hours as everyone expected the decline to follow which she always manages to do! NOT this time...my girl was on a ward yesterday and home at 7.30pm this evening. The PCT local authority have had to put a night carer in for 7 nights perweek until respiratory review on 6th June, and then hopefully a new package will be done for respite support from there on. A few ups and downs...shes had some bradys and so they suspended her propranolol arranged echo and ecg, and then reinstated the propranolol today, they plan a 24 hour recording in two weeks time, but they did not seem too phased. BAD news the ENT said her tonsil and adenoids were actually small in comparison to most kids, and so now the respiratory team have said to see how she is on her stas once the swelling goes down, and if she still persists to obstruct then we will look at the other options, BIPAP or trach! I pray now that we need neither as I feel she has managed this far without this intervention. When she arrived home this evening she was so happy to see her sisters, its been a worrying week for nothing, she took it all in her stride, and shows me how much stronger she has become. thanks to you all for the support...lets see what happens with the nightimes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 --- greattttt so pleased for you all bless from rita kellie and caitlyn 17 month old charge mirachel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 --- greattttt so pleased for you all bless from rita kellie and caitlyn 17 month old charge mirachel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Hi Les, Great news. I'm so happy. If she's having trouble breathing till the swelling goes down, I think someone said steroids brought the swelling right down. Might be worth asking about if she's alarming alot. ;-) in Ma. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 I relieved and so happy just along with you.... > > Well obviously all the prayers helped!! > > My super trouper Amélie went to theatre late 5.30pm last on the list, > expecting her to be double trouble!! > > No VENT Amélie came out of recovery screaming crying rocking and very very > cross with her mummy & Daddy, > We were so thrilled the recovery nurse could not understand why we were so > happy, she said parents usually cry and get distressed!! > We were so relieved she wasnt vented... its a first!! > > Amélie still went to ICU for 36 hours as everyone expected the decline to > follow which she always manages to do! NOT this time...my girl > was on a ward yesterday and home at 7.30pm this evening. The PCT local > authority have had to put a night carer in for 7 nights perweek > until respiratory review on 6th June, and then hopefully a new package will > be done for respite support from there on. > > A few ups and downs...shes had some bradys and so they suspended her > propranolol arranged echo and ecg, and then reinstated the > propranolol today, they plan a 24 hour recording in two weeks time, but they > did not seem too phased. > > BAD news the ENT said her tonsil and adenoids were actually small in > comparison to most kids, and so now the respiratory team have said > to see how she is on her stas once the swelling goes down, and if she still > persists to obstruct then we will look at the other options, BIPAP or trach! > I pray now that we need neither as I feel she has managed this far without > this intervention. > > When she arrived home this evening she was so happy to see her sisters, its > been a worrying week for nothing, she took it all in her stride, and > shows me how much stronger she has become. > > thanks to you all for the support...lets see what happens with the nightimes > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Boy, was I ASL in that or what????? I find myself doing that after being with . So sorry.... > > > > Well obviously all the prayers helped!! > > > > My super trouper Amélie went to theatre late 5.30pm last on the > list, > > expecting her to be double trouble!! > > > > No VENT Amélie came out of recovery screaming crying rocking and > very very > > cross with her mummy & Daddy, > > We were so thrilled the recovery nurse could not understand why we > were so > > happy, she said parents usually cry and get distressed!! > > We were so relieved she wasnt vented... its a first!! > > > > Amélie still went to ICU for 36 hours as everyone expected the > decline to > > follow which she always manages to do! NOT this time...my girl > > was on a ward yesterday and home at 7.30pm this evening. The PCT > local > > authority have had to put a night carer in for 7 nights perweek > > until respiratory review on 6th June, and then hopefully a new > package will > > be done for respite support from there on. > > > > A few ups and downs...shes had some bradys and so they suspended her > > propranolol arranged echo and ecg, and then reinstated the > > propranolol today, they plan a 24 hour recording in two weeks time, > but they > > did not seem too phased. > > > > BAD news the ENT said her tonsil and adenoids were actually small in > > comparison to most kids, and so now the respiratory team have said > > to see how she is on her stas once the swelling goes down, and if > she still > > persists to obstruct then we will look at the other options, BIPAP > or trach! > > I pray now that we need neither as I feel she has managed this far > without > > this intervention. > > > > When she arrived home this evening she was so happy to see her > sisters, its > > been a worrying week for nothing, she took it all in her stride, and > > shows me how much stronger she has become. > > > > thanks to you all for the support...lets see what happens with the > nightimes > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Les- What a glowing report!!!!!!!!!!!! I’m smiling ear to ear at the thought of such a successful surgery. Wow! I hope she continues to improve and doesn’t need any new interventions for anything :-) Michele W Aubrie’s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Les- What a glowing report!!!!!!!!!!!! I’m smiling ear to ear at the thought of such a successful surgery. Wow! I hope she continues to improve and doesn’t need any new interventions for anything :-) Michele W Aubrie’s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 That is wonderful news!! I will continue to pray all keeps going well!! Crystal and Eva > > Well obviously all the prayers helped!! > > My super trouper Amélie went to theatre late 5.30pm last on the list, > expecting her to be double trouble!! > > No VENT Amélie came out of recovery screaming crying rocking and very very > cross with her mummy & Daddy, > We were so thrilled the recovery nurse could not understand why we were so > happy, she said parents usually cry and get distressed!! > We were so relieved she wasnt vented... its a first!! > > Amélie still went to ICU for 36 hours as everyone expected the decline to > follow which she always manages to do! NOT this time...my girl > was on a ward yesterday and home at 7.30pm this evening. The PCT local > authority have had to put a night carer in for 7 nights perweek > until respiratory review on 6th June, and then hopefully a new package will > be done for respite support from there on. > > A few ups and downs...shes had some bradys and so they suspended her > propranolol arranged echo and ecg, and then reinstated the > propranolol today, they plan a 24 hour recording in two weeks time, but they > did not seem too phased. > > BAD news the ENT said her tonsil and adenoids were actually small in > comparison to most kids, and so now the respiratory team have said > to see how she is on her stas once the swelling goes down, and if she still > persists to obstruct then we will look at the other options, BIPAP or trach! > I pray now that we need neither as I feel she has managed this far without > this intervention. > > When she arrived home this evening she was so happy to see her sisters, its > been a worrying week for nothing, she took it all in her stride, and > shows me how much stronger she has become. > > thanks to you all for the support...lets see what happens with the nightimes > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 wonderful tath lung conditon thing must b better or not there LOL > > That is wonderful news!! I will continue to pray all keeps going > well!! > Crystal and Eva > > > > > > Well obviously all the prayers helped!! > > > > My super trouper Amélie went to theatre late 5.30pm last on the > list, > > expecting her to be double trouble!! > > > > No VENT Amélie came out of recovery screaming crying rocking and > very very > > cross with her mummy & Daddy, > > We were so thrilled the recovery nurse could not understand why we > were so > > happy, she said parents usually cry and get distressed!! > > We were so relieved she wasnt vented... its a first!! > > > > Amélie still went to ICU for 36 hours as everyone expected the > decline to > > follow which she always manages to do! NOT this time...my girl > > was on a ward yesterday and home at 7.30pm this evening. The PCT > local > > authority have had to put a night carer in for 7 nights perweek > > until respiratory review on 6th June, and then hopefully a new > package will > > be done for respite support from there on. > > > > A few ups and downs...shes had some bradys and so they suspended > her > > propranolol arranged echo and ecg, and then reinstated the > > propranolol today, they plan a 24 hour recording in two weeks > time, but they > > did not seem too phased. > > > > BAD news the ENT said her tonsil and adenoids were actually small > in > > comparison to most kids, and so now the respiratory team have said > > to see how she is on her stas once the swelling goes down, and if > she still > > persists to obstruct then we will look at the other options, BIPAP > or trach! > > I pray now that we need neither as I feel she has managed this far > without > > this intervention. > > > > When she arrived home this evening she was so happy to see her > sisters, its > > been a worrying week for nothing, she took it all in her stride, > and > > shows me how much stronger she has become. > > > > thanks to you all for the support...lets see what happens with the > nightimes > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 Les, So glad everything went so well for Amelie! Hope everything goes well now that she's home. , mom to (5) http://kauffmanlak.blogspot.com/ --------------------------------- Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 They said she had a little stridor is that the sounds in her throat of swelling? I know I have heard it before in ICU but she was on a vent back then, I think if it were a problem they would have said or given her something for it, so it must have been mild. She has coped really well postnatally I was expecting far worse love Les x > > Hi Les, > Great news. I'm so happy. > > If she's having trouble breathing till the swelling goes down, I think > someone said > steroids brought the swelling right down. Might be worth asking about if > she's alarming alot. > > ;-) > in Ma. > > ************************************** See what's free at > http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 opppps I mean postoperatively...postnatally is many years ahead!! > > > > They said she had a little stridor is that the sounds in her throat of > swelling? > I know I have heard it before in ICU but she was on a vent back then, I > think if > it were a problem they would have said or given her something for it, so > it must have been > mild. > > She has coped really well postnatally I was expecting far worse > love Les x > > > > > > > Hi Les, > > Great news. I'm so happy. > > > > If she's having trouble breathing till the swelling goes down, I think > > someone said > > steroids brought the swelling right down. Might be worth asking about if > > she's alarming alot. > > > > ;-) > > in Ma. > > > > ************************************** See what's free at > > http://www.aol.com. > > > > Quote Link to comment Share on other sites More sharing options...
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