Re: help !!! insurance/financing question

[Guest guest]

Dear -

Thank you for your reply. I think you are absolutely right, they probably do

mean CCS, I was literally transferring their text message to me into my email in

hopes of not messing anything up. I will mention both CCS and Regional Center

to them in case they haven't checked them for financial resource, but I do

recall both agencies have already been in contact with them. Both agencies

contacted us as well when was an infant (..18 years ago! gasp!). I never

knew anything about this world - suddenly I had all these well intended people

coming over asking me the same questions over and over filling in a myriad of

forms and giving me binders of resource telephone numbers and leaving. Seems

like yesterday....

thanks again-

yuka

Re: help !!! insurance/financing question

Yuka,

By California Children's Fund, do you mean California Children's

Services? That is whom we used for years. We were also tapped into an

agency in the SF Bay Area called Golden Gate Regional Center, but that

was 20 years ago, so no telling if they are still in 'business'.

--

--- Yuka Persico yuka@...> wrote:

> Dear List-

>

> A dear darling five week old boy with CHARGE is nearing the time he

> may be discharged from the hospital. The parents have been told by

> the case manager for their health insurance (PPO) that they are only

> covered for $ 2,000 for equipment, which would only last two months.

> They have already been rejected by California Children's Fund.

>

> I realize there are probably gaps in my information that would help

> in giving support - but any information of how to navigate and

> enlighten insurance, where to seek support, what other agencies to

> seek out would be deeply appreciated. Any questions which would help

> in giving advice I will forward as well as suggestions )

>

> THANK YOU !!!!

>

> Yuka

>

>