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Bowdoin Family is thinking about you guys. Be careful and have fun. We miss

you!!

&, parents to twins:

Olivia : potty training,walking, running the house, talking, saying no all

the time and JD(cHArgE: Choanal Atresia, Heart Repair, TE-F Repair, G-Tube,

Trach, on CPap w/ O2 at Night, severe to profound hearing loss, dumping

syndrome ) 22 months, Waxahachie, Texas

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

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Bowdoin Family is thinking about you guys. Be careful and have fun. We miss

you!!

&, parents to twins:

Olivia : potty training,walking, running the house, talking, saying no all

the time and JD(cHArgE: Choanal Atresia, Heart Repair, TE-F Repair, G-Tube,

Trach, on CPap w/ O2 at Night, severe to profound hearing loss, dumping

syndrome ) 22 months, Waxahachie, Texas

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

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Guest guest

Things are crazy but GREAT here at the conference - meeting lots of new

people (there are over a hundred new people here this time!). The sessions

are going well, there are several research projects going on and there are

kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

Tonight there is a poolside movie, " Night at the Museum " which everyone is

looking forward to very much. I will try and post pictures on Sunday -

until then, I'm going to be running around like a chicken with my head cut

off!!!

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Hello, , thank you so much for the update. I am so glad everyone is

enjoying the conference and their time in LA.

, (Mommy to 13 months (charger)

Weir kawfolks@...> wrote:

Things are crazy but GREAT here at the conference - meeting lots of

new

people (there are over a hundred new people here this time!). The sessions

are going well, there are several research projects going on and there are

kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

Tonight there is a poolside movie, " Night at the Museum " which everyone is

looking forward to very much. I will try and post pictures on Sunday -

until then, I'm going to be running around like a chicken with my head cut

off!!!

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Guest guest

Hello, , thank you so much for the update. I am so glad everyone is

enjoying the conference and their time in LA.

, (Mommy to 13 months (charger)

Weir kawfolks@...> wrote:

Things are crazy but GREAT here at the conference - meeting lots of

new

people (there are over a hundred new people here this time!). The sessions

are going well, there are several research projects going on and there are

kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

Tonight there is a poolside movie, " Night at the Museum " which everyone is

looking forward to very much. I will try and post pictures on Sunday -

until then, I'm going to be running around like a chicken with my head cut

off!!!

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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ditto to lisa, it is unbelivable how many people are here.? i have met new

people and seeing a lot we met in miami.

hopefully more can come to chicago in 2009!

CATHIE

Re: Conference News

Hello, , thank you so much for the update. I am so glad everyone is enjoying

the conference and their time in LA.

, (Mommy to 13 months (charger)

Weir kawfolks@...> wrote:

Things are crazy but GREAT here at the conference - meeting lots of new

people (there are over a hundred new people here this time!). The sessions

are going well, there are several research projects going on and there are

kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

Tonight there is a poolside movie, " Night at the Museum " which everyone is

looking forward to very much. I will try and post pictures on Sunday -

until then, I'm going to be running around like a chicken with my head cut

off!!!

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Guest guest

chicago ill try make it to there maybe love u

>

> ditto to lisa, it is unbelivable how many people are here.? i have met

> new people and seeing a lot we met in miami.

> hopefully more can come to chicago in 2009!

> CATHIE

>

> Re: Conference News

>

> Hello, , thank you so much for the update. I am so glad everyone is

> enjoying the conference and their time in LA.

>

> , (Mommy to 13 months (charger)

>

> Weir kawfolks@... > wrote:

> Things are crazy but GREAT here at the conference - meeting lots of new

> people (there are over a hundred new people here this time!). The sessions

> are going well, there are several research projects going on and there are

> kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

> Tonight there is a poolside movie, " Night at the Museum " which everyone is

> looking forward to very much. I will try and post pictures on Sunday -

> until then, I'm going to be running around like a chicken with my head cut

> off!!!

>

> --

> Weir

>

> Personal Web Site:

> http://chargesyndrome.info

>

> The Adventures of Kennedy Blog:

> http://chargesyndrome.blogspot.com

>

> Secretary, CHARGE Syndrome Foundation Inc:

> http://www.chargesyndrome.org

>

> Email:

> lisa@...

>

> " It is far better to grasp the universe as it really is than to persist in

> delusion, however satisfying and reassuring. " --Carl Sagan

>

>

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Guest guest

chicago ill try make it to there maybe love u

>

> ditto to lisa, it is unbelivable how many people are here.? i have met

> new people and seeing a lot we met in miami.

> hopefully more can come to chicago in 2009!

> CATHIE

>

> Re: Conference News

>

> Hello, , thank you so much for the update. I am so glad everyone is

> enjoying the conference and their time in LA.

>

> , (Mommy to 13 months (charger)

>

> Weir kawfolks@... > wrote:

> Things are crazy but GREAT here at the conference - meeting lots of new

> people (there are over a hundred new people here this time!). The sessions

> are going well, there are several research projects going on and there are

> kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

> Tonight there is a poolside movie, " Night at the Museum " which everyone is

> looking forward to very much. I will try and post pictures on Sunday -

> until then, I'm going to be running around like a chicken with my head cut

> off!!!

>

> --

> Weir

>

> Personal Web Site:

> http://chargesyndrome.info

>

> The Adventures of Kennedy Blog:

> http://chargesyndrome.blogspot.com

>

> Secretary, CHARGE Syndrome Foundation Inc:

> http://www.chargesyndrome.org

>

> Email:

> lisa@...

>

> " It is far better to grasp the universe as it really is than to persist in

> delusion, however satisfying and reassuring. " --Carl Sagan

>

>

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Guest guest

chicago ill try make it to there maybe love u

>

> ditto to lisa, it is unbelivable how many people are here.? i have met

> new people and seeing a lot we met in miami.

> hopefully more can come to chicago in 2009!

> CATHIE

>

> Re: Conference News

>

> Hello, , thank you so much for the update. I am so glad everyone is

> enjoying the conference and their time in LA.

>

> , (Mommy to 13 months (charger)

>

> Weir kawfolks@... > wrote:

> Things are crazy but GREAT here at the conference - meeting lots of new

> people (there are over a hundred new people here this time!). The sessions

> are going well, there are several research projects going on and there are

> kids EVERYWHERE! We are having lots of fun, the kids are loving the pool.

> Tonight there is a poolside movie, " Night at the Museum " which everyone is

> looking forward to very much. I will try and post pictures on Sunday -

> until then, I'm going to be running around like a chicken with my head cut

> off!!!

>

> --

> Weir

>

> Personal Web Site:

> http://chargesyndrome.info

>

> The Adventures of Kennedy Blog:

> http://chargesyndrome.blogspot.com

>

> Secretary, CHARGE Syndrome Foundation Inc:

> http://www.chargesyndrome.org

>

> Email:

> lisa@...

>

> " It is far better to grasp the universe as it really is than to persist in

> delusion, however satisfying and reassuring. " --Carl Sagan

>

>

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Guest guest

Yeah for Chicago! That's only 5 hours from me...I think I can make that work

and still get picked up from school (providing she is still at Perkins

that year).

Sheryl

Mom to

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