Re: please remember us this week

April 29, 2007

OH my gosh, Crystal. so much to happen to such a little body!!

Know I will be thinking of you and Sweet Pea and waiting for word.

pam

please remember us this week

I just wanted to ask if yall could remember Chrystine this Wednesday. She

had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

resting heart rates. CT revealed that the VSD is still there, she'll have the

patch

done soon- i think in a cath lab. if the MRI shows tethered cord, then

she'll have to have the semi-permanent catheter placement and eventual spinal

cord

surgery... we're still waiting for all the biopsies to come back from the

endoscopy... the airway is very small. something else-throat is very red and

swollen in places it shouldn't be... will know more tomorrow. wednesday are the

big ones. left nephrectomy, left ureterctomy, right ureter stint and

reimplantation to attempt to save right kidney and " fix " gade 5 vesicourteral

reflux

on the right side. im terrified truthfully. think of her. a little child

unaware. i could use some friends tonight.

chrystal

_www.caringbridge.org/chrystinehopecrites_

(http://www.caringbridge.org/chrystinehopecrites)

************************************** See what's free at http://www.aol.com.

April 29, 2007

Chrystal-

Of course you're terrified. I am always grateful for the extent that Aubrie

is " unaware " . I know you are relieved that Chrystine is unaware. I will

keep you both in my prayers - hoping for the best outcomes for her and peace

of mind for you :-)

Michele W

Aubrie's mom 9 yrs

April 29, 2007

You got it Chrystal...hugs to you & she for all she's been and going to be

going through...

& Kennedy

www.chargesyndrome.info

>

> I just wanted to ask if yall could remember Chrystine this Wednesday.

> She

> had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

> else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

>

> resting heart rates. CT revealed that the VSD is still there, she'll have

> the patch

> done soon- i think in a cath lab. if the MRI shows tethered cord, then

> she'll have to have the semi-permanent catheter placement and eventual

> spinal cord

> surgery... we're still waiting for all the biopsies to come back from the

> endoscopy... the airway is very small. something else-throat is very red

> and

> swollen in places it shouldn't be... will know more tomorrow. wednesday

> are the

> big ones. left nephrectomy, left ureterctomy, right ureter stint and

> reimplantation to attempt to save right kidney and " fix " gade 5

> vesicourteral reflux

> on the right side. im terrified truthfully. think of her. a little child

> unaware. i could use some friends tonight.

>

> chrystal

>

> _www.caringbridge.org/chrystinehopecrites_

> (http://www.caringbridge.org/chrystinehopecrites)

>

> ************************************** See what's free at

> http://www.aol.com.

>

April 29, 2007

We're all with you Chrystal. Lots of positive thoughts and lots of prayers

going your way. Lots of love coming Chrystine's way. Give her squeezes for

us and let her know we love her!

, mommy to Meagan (CHaRgE) and 2 1/2 year old twins, and big

brother 4 years, married to the best daddy in the world for 10 years!

The mention of my child's name might make me cry. Not mentioning my child's name

will break my heart. Unknown

April 29, 2007

Chrystal

You know I am always here for you both!! You are all in our thoughts

and prayers.

Hugs,

Crystal and Eva

>

> I just wanted to ask if yall could remember Chrystine this

Wednesday. She

> had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy,

andsomething

> else... i'm sorry..) a CT scan and an MRI of her spine last week.

some low

> resting heart rates. CT revealed that the VSD is still there,

she'll have the patch

> done soon- i think in a cath lab. if the MRI shows tethered cord,

then

> she'll have to have the semi-permanent catheter placement and

eventual spinal cord

> surgery... we're still waiting for all the biopsies to come back

from the

> endoscopy... the airway is very small. something else-throat is

very red and

> swollen in places it shouldn't be... will know more tomorrow.

wednesday are the

> big ones. left nephrectomy, left ureterctomy, right ureter stint

and

> reimplantation to attempt to save right kidney and " fix " gade 5

vesicourteral reflux

> on the right side. im terrified truthfully. think of her. a little

child

> unaware. i could use some friends tonight.

>

> chrystal

>

> _www.caringbridge.org/chrystinehopecrites_

> (http://www.caringbridge.org/chrystinehopecrites)

>

> ************************************** See what's free at

http://www.aol.com.

>

April 29, 2007

Will defiently be thinking of you this week

:hugs "

Belinda

>

> Chrystal

> You know I am always here for you both!! You are all in our thoughts

> and prayers.

> Hugs,

> Crystal and Eva

>

> >

> > I just wanted to ask if yall could remember Chrystine this

> Wednesday. She

> > had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy,

> andsomething

> > else... i'm sorry..) a CT scan and an MRI of her spine last week.

> some low

> > resting heart rates. CT revealed that the VSD is still there,

> she'll have the patch

> > done soon- i think in a cath lab. if the MRI shows tethered cord,

> then

> > she'll have to have the semi-permanent catheter placement and

> eventual spinal cord

> > surgery... we're still waiting for all the biopsies to come back

> from the

> > endoscopy... the airway is very small. something else-throat is

> very red and

> > swollen in places it shouldn't be... will know more tomorrow.

> wednesday are the

> > big ones. left nephrectomy, left ureterctomy, right ureter stint

> and

> > reimplantation to attempt to save right kidney and " fix " gade 5

> vesicourteral reflux

> > on the right side. im terrified truthfully. think of her. a little

> child

> > unaware. i could use some friends tonight.

> >

> > chrystal

> >

> > _www.caringbridge.org/chrystinehopecrites_

> > (http://www.caringbridge.org/chrystinehopecrites)

> >

> > ************************************** See what's free at

> http://www.aol.com.

> >

April 30, 2007

allwasy thinking of you nto just now:) love u heaps

>

> Will defiently be thinking of you this week

> :hugs "

>

> Belinda

>

> On 4/30/07, supermama95 supermama95@... >

> wrote:

> >

> > Chrystal

> > You know I am always here for you both!! You are all in our thoughts

> > and prayers.

> > Hugs,

> > Crystal and Eva

> >

> > >

> > > I just wanted to ask if yall could remember Chrystine this

> > Wednesday. She

> > > had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy,

> > andsomething

> > > else... i'm sorry..) a CT scan and an MRI of her spine last week.

> > some low

> > > resting heart rates. CT revealed that the VSD is still there,

> > she'll have the patch

> > > done soon- i think in a cath lab. if the MRI shows tethered cord,

> > then

> > > she'll have to have the semi-permanent catheter placement and

> > eventual spinal cord

> > > surgery... we're still waiting for all the biopsies to come back

> > from the

> > > endoscopy... the airway is very small. something else-throat is

> > very red and

> > > swollen in places it shouldn't be... will know more tomorrow.

> > wednesday are the

> > > big ones. left nephrectomy, left ureterctomy, right ureter stint

> > and

> > > reimplantation to attempt to save right kidney and " fix " gade 5

> > vesicourteral reflux

> > > on the right side. im terrified truthfully. think of her. a little

> > child

> > > unaware. i could use some friends tonight.

> > >

> > > chrystal

> > >

> > > _www.caringbridge.org/chrystinehopecrites_

> > > (http://www.caringbridge.org/chrystinehopecrites)

> > >

> > > ************************************** See what's free at

> > http://www.aol.com.

> > >

April 30, 2007

Gosh Chrystal,

That's a lot going on all at the same time. Not surprising you are feeling

terrified. Definitely will be thinking of you and Chrystine. Lots of warm

wishes and best of luck from across the pond. Keep us posted on her

progress.

Flo

>

> I just wanted to ask if yall could remember Chrystine this Wednesday.

> She

> had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

> else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

>

> resting heart rates. CT revealed that the VSD is still there, she'll have

> the patch

> done soon- i think in a cath lab. if the MRI shows tethered cord, then

> she'll have to have the semi-permanent catheter placement and eventual

> spinal cord

> surgery... we're still waiting for all the biopsies to come back from the

> endoscopy... the airway is very small. something else-throat is very red

> and

> swollen in places it shouldn't be... will know more tomorrow. wednesday

> are the

> big ones. left nephrectomy, left ureterctomy, right ureter stint and

> reimplantation to attempt to save right kidney and " fix " gade 5

> vesicourteral reflux

> on the right side. im terrified truthfully. think of her. a little child

> unaware. i could use some friends tonight.

>

> chrystal

>

> _www.caringbridge.org/chrystinehopecrites_

> (http://www.caringbridge.org/chrystinehopecrites)

>

> ************************************** See what's free at

> http://www.aol.com.

>

April 30, 2007

Dear Chrystal,

My, you and Chrystine have much on your plate right now.

---

I read recently that steroids can bring down the throat swelling,

if it wouldn't interfere with her kidneys. Or perhaps she's already

on steroids.

--

Our house will hold you both in thought and prayer.

in Ma.

************************************** See what's free at http://www.aol.com.

April 30, 2007

Chrystal,

My God keep his protective arms around Chrystine and stand beside you

through everything that is coming your way. I will pray that

Chrystine will reach the other side of all this safely.

mom to 31

>

> >

> > I just wanted to ask if yall could remember Chrystine this

Wednesday.

> > She

> > had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy,

andsomething

> > else... i'm sorry..) a CT scan and an MRI of her spine last week.

some low

> >

> > resting heart rates. CT revealed that the VSD is still there,

she'll have

> > the patch

> > done soon- i think in a cath lab. if the MRI shows tethered cord,

then

> > she'll have to have the semi-permanent catheter placement and

eventual

> > spinal cord

> > surgery... we're still waiting for all the biopsies to come back

from the

> > endoscopy... the airway is very small. something else-throat is

very red

> > and

> > swollen in places it shouldn't be... will know more tomorrow.

wednesday

> > are the

> > big ones. left nephrectomy, left ureterctomy, right ureter stint

and

> > reimplantation to attempt to save right kidney and " fix " gade 5

> > vesicourteral reflux

> > on the right side. im terrified truthfully. think of her. a

little child

> > unaware. i could use some friends tonight.

> >

> > chrystal

> >

> > _www.caringbridge.org/chrystinehopecrites_

> > (http://www.caringbridge.org/chrystinehopecrites)

> >

> > ************************************** See what's free at

> > http://www.aol.com.

> >

April 30, 2007

You've got a friend in Dallas!

Lori Myers

please remember us this week

I just wanted to ask if yall could remember Chrystine this Wednesday. She

had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

resting heart rates. CT revealed that the VSD is still there, she'll have the

patch

done soon- i think in a cath lab. if the MRI shows tethered cord, then

she'll have to have the semi-permanent catheter placement and eventual spinal

cord

surgery... we're still waiting for all the biopsies to come back from the

endoscopy... the airway is very small. something else-throat is very red and

swollen in places it shouldn't be... will know more tomorrow. wednesday are

the

big ones. left nephrectomy, left ureterctomy, right ureter stint and

reimplantation to attempt to save right kidney and " fix " gade 5 vesicourteral

reflux

on the right side. im terrified truthfully. think of her. a little child

unaware. i could use some friends tonight.

chrystal

_www.caringbridge.org/chrystinehopecrites_

(http://www.caringbridge.org/chrystinehopecrites)

************************************** See what's free at http://www.aol.com.

May 2, 2007

Chrystal,

Please know I will keep all of you in my prayers.

Bonnie

************************************** See what's free at http://www.aol.com.

May 2, 2007

the second has been and gone hwo was it xxxxxxxxxxxxxxxxxxx

>

> Chrystal,

>

> Please know I will keep all of you in my prayers.

>

> Bonnie

>

> ************************************** See what's free at

> http://www.aol.com.

>

May 3, 2007

Chrystal,

I'm so elated for your good news. And a good apetite is a very good

indication.

Witnessing God's loving, healing cover is the greatest Charge gift

of all.

;-)

in Ma.

************************************** See what's free at http://www.aol.com.

May 3, 2007

I am using one of the hospital's lap tops and unfortunately, it will not allow

me to update chrystine's caringbridge website. But I am soooo HAPPY to report

that she is doing well. Her surgeries lasted just shy of 6 hours yesterday so

because of somuch anesthesia, she has had some difficulty and needed some oxygen

several times. She is resting well now. A doctor from the urology team agreed to

letting her eat this morning and when her Daddy handed her a bottle, she eagerly

grabbed it from him and it tickled us sooo much. She quickly downed 3 ounces

(her normal intake) and we decided to give her more, which she ate and has kept

down. There are many drains attached to her bladder and incision sites, they're

there to help the belly from filling with blood. Her nurse from her urology

department called this morning and set her stint removal for MAy 30th (she has a

stint throughout her ureter and into her right kidney to prevent swelling).

There is one drain that might be permanent for a while because the furo dynamics

test proved that her bladder is only emptying at about 70 % and it must be

protected. However, when I was seeing my Mom, Grandmother and sister off I

couldn't help myself. I started jumping and shouting to the Lord for bringing

her through the operations safely. I see a new light for my daughter. A

healthier life in which we do not live in fear of urinary tract infections....

it might be too early for me to have my hopes up so high... but I can't help it.

I have seen Chrystine and God together. There is NOTHING they can't seem to

accomplish.

thanks again to all of you for being my friends who understand and care, I have

a feeling that very soon, I will be able to help you all more and ill need a

little less. i think these operations may have saved my daughter.

chrystal

Re: please remember us this week

You've got a friend in Dallas!

Lori Myers

please remember us this week

I just wanted to ask if yall could remember Chrystine this Wednesday. She

had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

resting heart rates. CT revealed that the VSD is still there, she'll have the

patch

done soon- i think in a cath lab. if the MRI shows tethered cord, then

she'll have to have the semi-permanent catheter placement and eventual spinal

cord

surgery... we're still waiting for all the biopsies to come back from the

endoscopy... the airway is very small. something else-throat is very red and

swollen in places it shouldn't be... will know more tomorrow. wednesday are the

big ones. left nephrectomy, left ureterctomy, right ureter stint and

reimplantation to attempt to save right kidney and " fix " gade 5 vesicourteral

reflux

on the right side. im terrified truthfully. think of her. a little child

unaware. i could use some friends tonight.

chrystal

_www.caringbridge.org/chrystinehopecrites_

(http://www.caringbridge.org/chrystinehopecrites)

************************************** See what's free at http://www.aol.com.

May 3, 2007

wohoo!

Lori Myers

please remember us this week

I just wanted to ask if yall could remember Chrystine this Wednesday. She

had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

resting heart rates. CT revealed that the VSD is still there, she'll have the

patch

done soon- i think in a cath lab. if the MRI shows tethered cord, then

she'll have to have the semi-permanent catheter placement and eventual spinal

cord

surgery... we're still waiting for all the biopsies to come back from the

endoscopy... the airway is very small. something else-throat is very red and

swollen in places it shouldn't be... will know more tomorrow. wednesday are

the

big ones. left nephrectomy, left ureterctomy, right ureter stint and

reimplantation to attempt to save right kidney and " fix " gade 5 vesicourteral

reflux

on the right side. im terrified truthfully. think of her. a little child

unaware. i could use some friends tonight.

chrystal

_www.caringbridge.org/chrystinehopecrites_

(http://www.caringbridge.org/chrystinehopecrites)

************************************** See what's free at http://www.aol.com.

May 3, 2007

WONDERFUL news.

pam

>

> wohoo!

>

> Lori Myers

> please remember us this week

>

> I just wanted to ask if yall could remember Chrystine this Wednesday. She

> had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

> else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

> resting heart rates. CT revealed that the VSD is still there, she'll have the

> patch

> done soon- i think in a cath lab. if the MRI shows tethered cord, then

> she'll have to have the semi-permanent catheter placement and eventual spinal

> cord

> surgery... we're still waiting for all the biopsies to come back from the

> endoscopy... the airway is very small. something else-throat is very red and

> swollen in places it shouldn't be... will know more tomorrow. wednesday are

> the

> big ones. left nephrectomy, left ureterctomy, right ureter stint and

> reimplantation to attempt to save right kidney and " fix " gade 5 vesicourteral

> reflux

> on the right side. im terrified truthfully. think of her. a little child

> unaware. i could use some friends tonight.

>

> chrystal

>

> _www.caringbridge.org/chrystinehopecrites_

> (http://www.caringbridge.org/chrystinehopecrites)

>

> ************************************** See what's free at http://www.aol.com.

>

May 3, 2007

Chrystal-

What a wonderful feeling for you! I am glad Chrystine is recovering so

well. Gosh, the way kids bounce back is just amazing. We best never tell

them that you're supposed to act sick and pitiful when in the hospital :-)

Michele W

May 3, 2007

That is GREAT news! Way to go Chrystine!

>

> I am using one of the hospital's lap tops and unfortunately, it will not

> allow me to update chrystine's caringbridge website. But I am soooo HAPPY to

> report that she is doing well. Her surgeries lasted just shy of 6 hours

> yesterday so because of somuch anesthesia, she has had some difficulty and

> needed some oxygen several times. She is resting well now. A doctor from the

> urology team agreed to letting her eat this morning and when her Daddy

> handed her a bottle, she eagerly grabbed it from him and it tickled us sooo

> much. She quickly downed 3 ounces (her normal intake) and we decided to give

> her more, which she ate and has kept down. There are many drains attached to

> her bladder and incision sites, they're there to help the belly from filling

> with blood. Her nurse from her urology department called this morning and

> set her stint removal for MAy 30th (she has a stint throughout her ureter

> and into her right kidney to prevent swelling). There is one drain that

> might be permanent for a while because the furo dynamics test proved that

> her bladder is only emptying at about 70 % and it must be protected.

> However, when I was seeing my Mom, Grandmother and sister off I couldn't

> help myself. I started jumping and shouting to the Lord for bringing her

> through the operations safely. I see a new light for my daughter. A

> healthier life in which we do not live in fear of urinary tract

> infections.... it might be too early for me to have my hopes up so high...

> but I can't help it. I have seen Chrystine and God together. There is

> NOTHING they can't seem to accomplish.

>

> thanks again to all of you for being my friends who understand and care, I

> have a feeling that very soon, I will be able to help you all more and ill

> need a little less. i think these operations may have saved my daughter.

>

> chrystal

>

> Re: please remember us this week

>

> You've got a friend in Dallas!

>

> Lori Myers

>

> please remember us this week

>

> I just wanted to ask if yall could remember Chrystine this Wednesday. She

> had 4 surgeries (bronchoscopy, microlaryngoscopy, endoscopy, andsomething

> else... i'm sorry..) a CT scan and an MRI of her spine last week. some low

>

> resting heart rates. CT revealed that the VSD is still there, she'll have

> the patch

> done soon- i think in a cath lab. if the MRI shows tethered cord, then

> she'll have to have the semi-permanent catheter placement and eventual

> spinal cord

> surgery... we're still waiting for all the biopsies to come back from the

> endoscopy... the airway is very small. something else-throat is very red

> and

> swollen in places it shouldn't be... will know more tomorrow. wednesday

> are the

> big ones. left nephrectomy, left ureterctomy, right ureter stint and

> reimplantation to attempt to save right kidney and " fix " gade 5

> vesicourteral reflux

> on the right side. im terrified truthfully. think of her. a little child

> unaware. i could use some friends tonight.

>

> chrystal

>

> _www.caringbridge.org/chrystinehopecrites_

> (http://www.caringbridge.org/chrystinehopecrites)

>

> ************************************** See what's free at

> http://www.aol.com.

>

May 3, 2007