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I've always said that had a rough start and we are lucky that she is still

with us (and that is a major understatement!). She is almost 7 now and the same

size as her almost 5 year old sister!

Lori Myers

Advice

Hi Everyone!! Any advice out there for me on how to respond to people when

they make comments about how tiny Trinity is? Quite frankly I have gotten to the

point to where I don't explain or feel like I have to explain anything. Although

I have found myself a couple of times saying that she was born a little bit

early and has had some issues she's been dealing with. No one has ever been rude

to me it's just my thought is I don't want people thinking that I'm starving my

child. I guess it goes back to the factor of what other people think. I want to

know how to get over that hump and just not care what other people think at ALL

times. Trinity looks like a normal child for the most part. If you didn't know

anything was wrong with her or see the scar on her back from her heart surgery

you'd think she's just a normal kid. She has the classic ears that are bendy

(don't really know the word for it) but that's not very noticable unless you're

critiquing her and most people

don't do that. Advice is welcome for sure.

Thank you,

Mommy to Gracie 23 months and Trinity 6 months CHARGE

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Hi ,

My Andy is 25, so it's been a long time since anyone commented on his small

stature, but it seems like yesterday that I was wondering how to respond to

people's questions, like you are.

Even though it is not nice to lie, I just went with the flow and either

didn't divulge his correct age or I said he was younger than he was. It

just wasn't worth the stares, comments and long litanies of advice that

wouldn't help because Andy had CHARGE. Even though we want to educate

others, save your energy for explanations that will benefit Gracie - like

educating medical professionals so she gets the proper care, or how fully

describe her to get necessary services written on her IFSP (special

education plan) and IEP documents, etc. etc.

Hang in there! Sally (Mom to Andy)

Coming to the conference and looking forward to seeing/meeting so many of

you!

P.S. People no longer question Andy¹s size, thanks to growth hormone and

testosterone.

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