DON'T USE GLUATMATE! was what makes a difference for my sleep...

[Guest guest]

Being told to try glutamate was the ONLY bad advice I ever got on this group

that I had the tragedy to follow. And it was a tragedy!

I was having autistic melt downs! I still haven't recovered socially from that

or the damage I did before when I made the mistake of going off Prozac. On

glutamate I went four days laying there all night long not sleeping at all. I

was having 24/7 migraines from sleep deprivation. It had been years since I was

that bad! I wasn't suffering that much since before I knew to use

antidepressants to help myself. After the glutamate I had to increase how much

surmontil I take to sleep enough. It damaged my brain permanently or at least

for a long time.

I googled glutamate and the first 4 pages were full of glowing praise for it.

The fifth page had one article that told the truth.

Too much glutamate is implicated in autism, which I have. It is also implicated

in migraines, insomnia, strokes, mental retardation, and violent tendencies.

Pharmaceutical companies are working hard to find a drug that will lower

glutamate levels. When they do, they expect to make billions helping people, and

a new golden age of treating mental illness will be upon us.

Hensley <>< 8-)

,

>

> I'm pretty determined to try to figure out oxalate's role in

endocrine

> disruption as I think it is possible that it might seriously tangle

with

> regulation if it gets to the pituitary and hypothalamus.

>

> We went to an endocrinologist today who thinks Grace's vitamin D

deficiency

> is behind all the disruptions she's had, and she thinks the raised

cortisol

> might be caused by the provigil Grace has been taking as she thinks

it

> might disrupt the diurnal rhythm. She has prescribed 10,000 iu's of

vitamin

> D for Grace that starts tomorrow morning. I certainly hope she is

correct!

>

> She has ordered a new thyroid panel, parathyroid hormone, Quest's

> comprehensive metabolic panel wih eGFR and we are awaiting results

on

> cholesterol and ACTH.

>

> Have you seen a change in endocrine issues while on LOD?

>

> I'm sorry I just recently subscribed, so I don't have a feeling for

what

> you've discussed here.

>

> What happens when someone takes glutamine in your family?

>

>

>

> At 08:57 AM 2/20/2008, you wrote:

>

> > >

> > > Here you are in a different universe!

> > >

> > >Hi, ,

> >

> >Yep, here I am...I recognized you from your first post, but haven't

> >had a chance to contact you.

> >

> >I have seen your comments on the glutamate/glutamine issue. I do

> >agree with you that glutamine is necessary for life and it is

> >ubiquitous. However, I don't think everyone's tolerance is the

same.

> >

> >I know for a certainty what happens when my family consumes MSG or

> >high amounts of free glutamine. These reactions are not subjective

> >or inconsistent. For us, migraines and sleepless nights are the

> >rule. It happens to my girls whether they are with me or spending a

> >week with their grandparents and, unbeknownst to everyone, cosnume

a

> >small amount of say, soy sauce hard cheese (other dairy is fine).

> >Granny will call the next day and say K didn't sleep a wink. What

> >could have caused it....we go over the menu, and there it is.

> >

> >I feel very strongly that gut health influences one's tolerances to

> >the glutamate/glutamine/amines. Dr. Natasha Mc-Bride has

> >talked about this. Also, there is a tie-in between oxalates and

> >glutamate. My family also has a MAO genetic abnormality that makes

> >us more sensitive to amines in general. (Yes, I realize there is a

> >difference between glutamine and other amines). I have also seen

> >studies that show people with low iron have a lower tolerance for

> >amines.

> >

> >Some people, including some on the spectrum, do better on a lower

> >protein diet. The amines may be part of that, as well as the

> >hydroxyproline and oxalates issue.

> >

> >Our diet is limited in so many different ways, and I have hope that

> >it will expand. We are still low-oxalate on top of everything else.

> >Within the last six months, we have found the endocrine problems to

> >be a big contributor to the health issues. We are really focusing

on

> >correcting those and the gut problems.

> >

> >I hope your daughter is doing well. The folks on this list are

> >fabulous, and are a great source of information!

> >

> >

> >

> >