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Inspirational Race (not exactly on topic, but an uplifting story)

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Oooops! Should know better than to be replying so late. Means I don't pay

attention to detail. Very moving account nevertheless so thanks for

sharing. Sure it was an emotional day for father and cardiologist and a fun

time for Evan. Sometimes we do forget that the professionals involved in

our children's lives can be greatly touched by their challenges. Nice to

have the reminder. There are plenty of great professionals out there who

genuinely appreciate and/or understand.

>

> Hi Flo,

>

> I should have clarified--there are two different Evan's involved here. My

> son and 's son (the dad in this story) just happen to have the same

> first name. 's Evan is 3 years old and has Noonan's Syndrome. I think

> it's great that Evan's cardiologist ran the race too.

>

> (mom to Evan, 23 months, CHARGE Syndrome)

>

> Flo Njeru flo.njeru@... > wrote:

> Hi ,

> Do you know what? Your partner's story had me in tears, and that does not

> happen often! I ran a 10K race last year with our as the

> inspiration to finish a hellish run on a hellish hot hot hot summer day in

> the UK. You will not believe this but today, I was remembering that I had

> said that when J is 8 (next year), she and I may try the 5K women's

> challenge (I have done it twice as a run and thought J and I might do it

> once as a walk to raise some money for the UK CHARGE group). 's

> account just brought back so many thoughts and memories and I commend him

> and Evan's cardiologist for the effort. Hope you feel the applause all the

> way across the waters!

>

> Flo

>

> On 10/06/07, Key Storrs

evansmomndad@...>

> wrote:

> >

> > I wanted to share this story. With Father's Day approaching, it is

> > especially inspiring:

> >

> > http://64.226.192.38/resources_blogs/_Newport.asp

> >

> >

> > (mom to Evan, 23 months, CHARGE Syndrome)

> >

> >

> --

> Flo (UK)

> Mum to - CHARGE - (7) and Elly (4)

>

>

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