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Crainal facial

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Does anyone else see a crainal facial doctor? We have one because when

Eva was born her lower jaw was small and he thought she might need

distractors. Well she never needed them because her jaw grew but we

still see him once a year. We saw him yesterday and he was talking

about her ear again and how he can fix it to stand straight and look

like a normal ear when she is 6 or 7. He brings this up everytime we

see him, has anyone else had a doctor say anything like this? Of

course our insureance most likely will not pay for any of this and I

dont know if I want to get it fixed, it part of who she is as a child

with CHARGE. He was also telling me there is a new doctor coming in

who works with facial nerves and paralysis and she might be able to

fix her paralysis depending on what she sees. I have seen other kids

with facial paralysis have surgery and I am again unsure. I know I

have years to think about it but I was just wondering all your oppions.

Thanks,

Crystal and Eva

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