Family Development from Last night

[Guest guest]

Last night around 6:30 pm and extending into the night, JD developed what we

believe and his pediatrician Dr. Shirley Joslin believes is his first known

allergic reaction to a drug which was prescribed for him by a GI doctor in

Dallas at Childrens Medical Center on Wednesday during his visit there. We are

almost positive that he is allergic to this medication and have discontinued

it after just 1 dose which occurred last night.

We were unable to see Dr. Andersen who is his GI doctor and we saw

another on Wednesday however, and due to this development last night we have

talked to Dr. Andersen many times and have requested that since Dr. Andersen is

the most familiar with JD's complexities that we see him solely and he has

agreed to that. Dr. Andersen will be the only doctor in the GI specialty that

will be dealing with JD's medical case from here on out. We spoke with Dr.

Andersen on the phone for advice multiple times last night and on into the

morning today. He is continuing to call this afternoon to check up on JD.

What we experienced was very scary and serious with JD and we were very

close to taking him into the hospital. JD experienced tachycardia with heart

rate into the 180's bpm range and up for nearly 45 minutes. JD was fine with

his respirations however his spit ups and throwing up increased to three to

four instances after the dose was given. JD is normally a peach color in skin

and for about two hours his color would change to a more dark pink which is

abnormal for him. He also experienced dry mouth or cotton mouth. This drug

has also had an adverse effect on his secretions that we are getting from his

trach and nose. His secretions are thicker in both and there are more of

them. Let me emphasize that JD's lungs are clear but his secretions are

increased and we have been advised that those need to watched by Dr. Andersen,

Dr.

Gelfand (his pulmonologist) and Dr. Joslin. At this time, we have not had

to increase JD's breathing treatments but we will if we need too. The drug

in question was prescribed to help him with his spitting up which I believe we

relayed to you that at this time JD is not holding his foods real well. All

doctors have agreed that JD is probably allergic to this medication.

JD is holding his own right now. We have not been very successful today

with JD's trach trials off the vent and we have kept him on the vent most of

today and will probably continue that into tomorrow. His heartrate is normal

but his secretions coming from the trach and lungs are thicker and there are

more of them than normal. JD is alert and sitting and he has been playing some

today with his toys. We are just happy that he is doing better and we

understand now that we have probably found his first medicinal allergy.

Mandy and I have been concerned since yesterday at about 6 pm. I have even

thought about discontinuing my mental preparation for my upcoming nasal and

sinus surgery. We have put this matter in Gods hands and we understand that

His will we be done. JD is doing okay he just isnt quite himself. If he

continues to improve as he has slowly, I will continue to prepare for this

upcoming nose procedure. I understand that it must be done for my sake and

ultimately for the sake and health of my son JD.

We wanted to let you know and we apologize for not calling but when we are

asked to react quickly in a serious situation as was last night, there isnt

time to call when you have to take care of your critically ill son. After the

situation is resolved, Mandy and I need time to calm our emotions down. Most

of the situations that we go through that are serious with JD's care are

very stressful and very emotional and both of us need time before we can talk

about it. We still thought it was appropriate to let you know. JD will pull

through this and he should be back to his old self by Monday.

Keep praying and Keep believing.

, Mandy, Olivia (22 months today) and Barton (cHArgEd

22months today)

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