W Re: Coarctation of Aorta (CoA), Ventricular Septal Defect (VSD) and pulmonary stenosis

[Guest guest]

Dear -

Thank you for chiming in. I am sure to know so many of our little ones have

endured and thrived under similar circumstances is of great comfort to the

family this morning as they bravely face the ever unfolding conditions of their

son's birth head on, on a schedule not of their choosing....***sigh*** we;ve all

been there......

with love,

yuka

Re: Coarctation of Aorta (CoA), Ventricular Septal Defect

(VSD) and pulmonary stenosis

Kennedy also had a coarct, ASD/VSD/PDA repair @ 9 days old with the gore tex

patch and a human homograft. It was successful - she did have to have a

valve job done in 2004 but the coarct repair has remained intact and

everything is good for her cardiology wise at the moment.

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan