Re: obstructive sleep- Les

[Guest guest]

Les,

I was very pessimistic that the tonsillectomy would do the trick, as Meagan

lower jaw is shorter than normal. It isn't drastic that someone would stare

at, but at a closer look it is apparent. Her ENT told me that because her

jaw was set back farther, it could also be contributing to her blocked

airway. I guess everyone's tongues fall back in their sleep, but when your

jaw is set back farther than the average person, that doesn't give the

tongue much space to fall back in. He warned us that a trache would be worn

until she turned 5 or 6, and then we would talk reconstructive surgery for

her lower jaw. But, now that the tonsillectomy worked, no other procedures

are being discussed. I only tell you this because I felt Meagan was the

worst case scenario. If it was successful for her, I really think it could

be successful for most! Good luck!!

, mommy to Meagan (CHaRgE) and 2 1/2 year old twins, and big

brother 4 years, married to the best daddy in the world for 10 years!

The mention of my child's name might make me cry. Not mentioning my child's

name will break my heart. Unknown

[Guest guest]

this is very useful to know, Amelie was suspected of pierre robin

syndrome at the beginning, I am not sure I have spelt the syndrome properly,

but when I asked what was it, they said she has a small lower jaw set back

slightly, as she didnt have the syndrome

in the end and her lung heart situation was far more important I never

pursued the small set back jaw issues.

I am really positive that armed with these responses from those children who

have suffered with obstructive airway, that my ENT

will listen!!!! and crack on with a treatment plan which may end the bedtime

nightmare...I feel depressed when its time for bed!!

thanks Les x

>

>

> Les,

> I was very pessimistic that the tonsillectomy would do the trick, as

> Meagan

> lower jaw is shorter than normal. It isn't drastic that someone would

> stare

> at, but at a closer look it is apparent. Her ENT told me that because her

> jaw was set back farther, it could also be contributing to her blocked

> airway. I guess everyone's tongues fall back in their sleep, but when your

> jaw is set back farther than the average person, that doesn't give the

> tongue much space to fall back in. He warned us that a trache would be

> worn

> until she turned 5 or 6, and then we would talk reconstructive surgery for

> her lower jaw. But, now that the tonsillectomy worked, no other procedures

> are being discussed. I only tell you this because I felt Meagan was the

> worst case scenario. If it was successful for her, I really think it could

> be successful for most! Good luck!!

>

>

> , mommy to Meagan (CHaRgE) and 2 1/2 year old twins, and big

> brother 4 years, married to the best daddy in the world for 10

> years!

>

> The mention of my child's name might make me cry. Not mentioning my

> child's

> name will break my heart. Unknown

>

>

>

>

>

>