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explaining CHARGE to others

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HELP!I am sure that you all have the common question " What is CHARGE

syndrome, I have never heard of it? " If I start to explain C for

coloboma etc then they question Coloboma atresia etc. I would like to

know how you all answer the question? I would like to give enough

detail rather than a genetic syndrome. Something that I can use with

everyone would be great.

Thanks,

, mom to (11), Dylan(4), (20 months CHARGE)and Drew (2

months).

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