Ginn Re: Scoliosis and growth hormone

[Guest guest]

-

is at " work " right now. He is in the Leader in Training program through

the local Boys and Girls Club. It is a crash course exposure for him to all the

misuses and abuses one can receive at the hands of younger children when they

are pent up in day care. He is weathering it well and developing a very deep

humoured assertiveness. I will move your post into his in-box, because I think

he might have a word or two to say about this subject. )

I feel the growth hormone replacement therapy did increase 's general

strength, stamina and " fullness " of body. has been very diligent in both

his exercises and the use of his brace, and we'd like to think that it is only

this bad because of all his efforts ) Of course, so many other possibilities

sink the heart and come to mind....

I had not heard of the brace made by SpinCor, but I just looked them up on the

internet. ( http://www.losangelesscoliosistreatmentcenter.com/about_brace.html

) What an interesting dynamic brace! I recall there being a similar dynamic

wrapping for therapeutic use talked about a while back on the list - but I

apologize, it's mired in the mush that is my brain today. was just shy

of four feet tall when he was in the fifth grade (46 inches, 46 pounds. We used

to tease him and say he was " square " ) ) He was a little under four foot

three inches when he entered High School in ninth grade. He started the growth

hormone injections in February of 2003 - the Spring before High School. He

graduated High School at five foot two and a half inches - and he is VERY HAPPY

about that. I don't sense a moment of regret that there might be connection

between the curvature and the growth hormone therapy - though he is quick to say

he is quite happy with the growth he has and is happy to stop the injections if

it will help stop the curvature (the Endocrinologist is reviewing his chart

today).

This process has been very dynamic, and the best advice I can give you is to

take it one small step at a time. Everything has been on a " try and see " basis

with regard to the hormone replacement therapies and the spine. There was no

way to predict the responses and reactions 's body would have to the

various therapies beforehand.\

I hope this helps,

Please feel free to ask anything you think of, our lives are open books-

Best to you-

yuka

Re: Scoliosis and growth hormone

Yuka,

Thanks for your reply. These are all issues that we have mulled

over. I am wondering if the growth hormone would help 's

strength? I know it will affect her scoliosis, but will her added

strength help her more than the risk of worsening the curve???????

Also, have you ever seen the brace made by SpineCor? Right now,

wears a " turtle shell " that is supposed to keep her from

getting worse. However, I feel that the curve is worsening

anyway...she has only gained an inch in the last year, but her pants

are about 3 inches shorter. That tells me that her body has

lengthened but her curve makes the height less. We see our ortho in

a month.

I also talked with about the possibility of taking shots every

day to make her grow better and she asked me if she could have a shot

tomorrow? So, I think she has noticed how little she is compared to

her friends. Of course, her 7 year old sister is about 4 inches

taller than she is

.