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obstructive sleep

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Hi all

What if anything can be done for obstructive sleep apnoea?

Amelie frequently stops breathing in her sleep, her sats monitor alarms most

of the night,

when we check her shes blue lipped and a good shake does the trick!!

When I try and prize open her mouth her tongue is firmly at the back

occluding her airway.

Its not helping with our sleep, selfish i know...I mentioned this in passing

in the hospital restuarant

to her respiratory consultant...who said the ENT may suggest a trach...this

was just a quick chat in a queue!!

This scared me half to death...I know some of the kids have trachs but I

thought if we

have managed 2 years 4 months without one...should we be considering one or

should we

put up with the no sleep.

Suggestions and comments greatly appreciated Les x

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