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Re: I AM SO EXCITED!!!!!! LISA

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,

I have to tell you how excited I am to be able to meet you and

Kennedy. When I 1st heard about CHARGE Syndrome I googled it and one

of the 1st sites I saw was Kennedy's and I was so amazed and thought

she was so cute and so smart and she gave me such hope for Eva. I

had to show her off to everyone I knew. We all were so surprised how

much her and Eva looked alike (except Kennedy has cute curls and

Eva's hair is straight...its all about the genes right..LOL) I cant

wait and I know I am going to need to bring lots of kleenex knowing

I am going to meet so many of my favorite CHARGErs!!

Crystal and Eva

> >

> > WE WILL BE AT THE CONFERNCE!!! I just booked our flight and

hotels,

> > and our Disneyland trip. I was so worried it wouldnt happen but

with

> > the sale of our house and everything we are going to make it,

there is

> > no turning back now, I CANT WAIT TO SEE EVERYONE WHO IS COMING!!

I

> > will also miss all who are not.

> > Hugs,

> > Crystal mom to (11), (3), and Eva (2 year old

CHARGEr)

> > wife to Dan in Illinois

> >

> >

> >

>

>

>

> --

> " It is far better to grasp the universe as it really is than to

persist in

> delusion, however satisfying and reassuring. " --Carl Sagan

>

>

>

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