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Re: We are back

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So good to hear from you guys again - that's awesome about the steps - keep

it up !

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Oh I am so happy for you that is doing so well and so glad to

hear from you, I was getting alittle worried for awhile there.

Keep up the great work!!!

Hugs,

Crystal and Eva

>

> Hi everybody,

>

> after awhile away we are back and ready to pick up where we left

off

> i see so much has happened since ive been away i just got done

going

> through my mail sorry im not able to respond to it all but here is

> where things are for us right now.nathan has hit so many milestone

he

> amazes me everyday.he has not been in the hospital since early

> march.not even an er visit he has however been to his regular

doctor

> quite alot.hes getting to be such a big boy now he currently

weighs 2

> pounds and is 31 1/2 inches tall he is doing really well with his

> signing he has started imitating more sounds he attempts to say

the

> word more he has " daddy " down pat still doesnt like to use " mommy "

he

> has his ifsp recently that went well hes going to be going to a

> center based classroom an hour a day 2 days a week plus recieve

his

> services at home hes got alot of services{pt,ot,tvi,teacher for

the

> deaf,special ed,speech and a nutritionist} plus his doctors so you

> can imagine how busy we are.i wish we could attend the confrence

this

> year and meet our extended family but our budget just wont allow

it

> this time i want to wish all of you attending a safe and happy

trip

> and to all the ones who have had birthday since weve been

gone " HAPPY

> BIRTHDAY " well i gotta get going ill keep you all updated oh

> yea " NATHAN HAS STARTED TAKING STEPS ON HIS OWN "

>

> NICOLE MOMMY TO NATHAN {22 MONTH OLD CHARGEr}

>

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