Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 I thought I'd share again, now that I have a few minutes, and update all of you what we've been doing with our lives. Things have been quite busy here. I am finally finishing my degrees with a bachelors in Psychology with my independent studies in Special Ed. I will complete my Masters in Special Ed for children who have Severe Disabilities by next year. It's tough as I am working in Special Ed full time, being a mom and wife, and taking four classes with two being on the weekend. I'm doing well but it sure is taking tons of organizing strategies to keep things in order. I'm doing it but it feels like the skin of my teeth. My capstone, or final research paper, will be on technology in relation to communication and access to education. You can bet CHARGE will be in there. It will be on the top of the list. I am so excited. Also, next Wednesday I have to present on academic essays concerning a topic of my choice. I will be presenting CHARGE from Brown and Tim Hartshorne's research and papers. My professor, who I admire, is excited about the whole thing. I am now trying to get her to be my Capstone advisor. Patty's doing well. Her vision has changed a bit and she needed stronger glasses. Now that she's an adult she's on a subsidized insurance in addition to mine. Hers is what pays for the glasses. I never knew how many hoops you have to jump through just to get glasses that darken with the light. I mean my gosh you would have thought we were asking for the moon. She's getting them though. Patty's life remains a struggle but I am delighted she often tells me that she's happy. It's one step forward two steps back in this adult world. What am I am saying, in the CHARGE world. She does have a new wonderful Rehab provider. They're meeting again tomorrow. I am praying things begin to move faster soon. I think they will. a is doing fantastic. I am comforted to see how content and happy she is with life. She's worked harder this year than ever. Thankfully she is finally at the end of her educational career ending with a masters in Speech and Language. I find it remarkable how many siblings go into careers that in some way help others. Of course their siblings had an impact on their lives but I also think it is because they were just born that way. We were given miracles, our children who have CHARGE, and our children who don't. Anyway, she's done well and now deserves to let her light shine. I hope you all know I miss you but I can't be on this list as much as I want. I think of all of you often and bop in now and then to read about your lives. What a wonderful family it is here. I wish you joy. I have to stop my procrastinating and get back to another paper I have to write. Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 I can so identify with you right now! I have one year left of courses to finish my psychology degree and education degree, then onto MEd in Special Education (where I can finally do what I want - write a thesis about education & CHARGE). Best of luck Bonnie - I'm there with ya! It's not easy, but it'll be worth it when we're done! Hugs, www.chargesyndrome.info > > I thought I'd share again, now that I have a few minutes, and update all > of > you what we've been doing with our lives. > > Things have been quite busy here. I am finally finishing my degrees with a > > bachelors in Psychology with my independent studies in Special Ed. I will > complete my Masters in Special Ed for children who have Severe > Disabilities by > next year. It's tough as I am working in Special Ed full time, being a mom > > and wife, and taking four classes with two being on the weekend. I'm doing > > well but it sure is taking tons of organizing strategies to keep things in > > order. I'm doing it but it feels like the skin of my teeth. > > My capstone, or final research paper, will be on technology in relation to > > communication and access to education. You can bet CHARGE will be in > there. > It will be on the top of the list. I am so excited. Also, next Wednesday I > > have to present on academic essays concerning a topic of my choice. I will > > be presenting CHARGE from Brown and Tim Hartshorne's research and > papers. My professor, who I admire, is excited about the whole thing. I am > now > trying to get her to be my Capstone advisor. > > Patty's doing well. Her vision has changed a bit and she needed stronger > glasses. Now that she's an adult she's on a subsidized insurance in > addition > to mine. Hers is what pays for the glasses. I never knew how many hoops > you > have to jump through just to get glasses that darken with the light. I > mean > my gosh you would have thought we were asking for the moon. She's getting > them though. > > Patty's life remains a struggle but I am delighted she often tells me that > > she's happy. It's one step forward two steps back in this adult world. > What > am I am saying, in the CHARGE world. She does have a new wonderful Rehab > provider. They're meeting again tomorrow. I am praying things begin to > move > faster soon. I think they will. > > a is doing fantastic. I am comforted to see how content and happy > she is with life. She's worked harder this year than ever. Thankfully she > is > finally at the end of her educational career ending with a masters in > Speech > and Language. I find it remarkable how many siblings go into careers that > in > some way help others. Of course their siblings had an impact on their > lives > but I also think it is because they were just born that way. We were given > > miracles, our children who have CHARGE, and our children who don't. > Anyway, > she's done well and now deserves to let her light shine. > > I hope you all know I miss you but I can't be on this list as much as I > want. I think of all of you often and bop in now and then to read about > your > lives. What a wonderful family it is here. I wish you joy. > > I have to stop my procrastinating and get back to another paper I have to > write. > > > > Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to > > ************************************** See what's free at > http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 bonnie love u heaps im going to c my endo today so will update u all when im done there > > I can so identify with you right now! I have one year left of courses to > finish my psychology degree and education degree, then onto MEd in Special > Education (where I can finally do what I want - write a thesis about > education & CHARGE). Best of luck Bonnie - I'm there with ya! It's not > easy, but it'll be worth it when we're done! > Hugs, > > www.chargesyndrome.info > > On 4/30/07, Turk22082@... Turk22082@...> > wrote: > > > > I thought I'd share again, now that I have a few minutes, and update all > > of > > you what we've been doing with our lives. > > > > Things have been quite busy here. I am finally finishing my degrees with > a > > > > bachelors in Psychology with my independent studies in Special Ed. I > will > > complete my Masters in Special Ed for children who have Severe > > Disabilities by > > next year. It's tough as I am working in Special Ed full time, being a > mom > > > > and wife, and taking four classes with two being on the weekend. I'm > doing > > > > well but it sure is taking tons of organizing strategies to keep things > in > > > > order. I'm doing it but it feels like the skin of my teeth. > > > > My capstone, or final research paper, will be on technology in relation > to > > > > communication and access to education. You can bet CHARGE will be in > > there. > > It will be on the top of the list. I am so excited. Also, next Wednesday > I > > > > have to present on academic essays concerning a topic of my choice. I > will > > > > be presenting CHARGE from Brown and Tim Hartshorne's research and > > papers. My professor, who I admire, is excited about the whole thing. I > am > > now > > trying to get her to be my Capstone advisor. > > > > Patty's doing well. Her vision has changed a bit and she needed stronger > > glasses. Now that she's an adult she's on a subsidized insurance in > > addition > > to mine. Hers is what pays for the glasses. I never knew how many hoops > > you > > have to jump through just to get glasses that darken with the light. I > > mean > > my gosh you would have thought we were asking for the moon. She's > getting > > them though. > > > > Patty's life remains a struggle but I am delighted she often tells me > that > > > > she's happy. It's one step forward two steps back in this adult world. > > What > > am I am saying, in the CHARGE world. She does have a new wonderful Rehab > > provider. They're meeting again tomorrow. I am praying things begin to > > move > > faster soon. I think they will. > > > > a is doing fantastic. I am comforted to see how content and happy > > she is with life. She's worked harder this year than ever. Thankfully > she > > is > > finally at the end of her educational career ending with a masters in > > Speech > > and Language. I find it remarkable how many siblings go into careers > that > > in > > some way help others. Of course their siblings had an impact on their > > lives > > but I also think it is because they were just born that way. We were > given > > > > miracles, our children who have CHARGE, and our children who don't. > > Anyway, > > she's done well and now deserves to let her light shine. > > > > I hope you all know I miss you but I can't be on this list as much as I > > want. I think of all of you often and bop in now and then to read about > > your > > lives. What a wonderful family it is here. I wish you joy. > > > > I have to stop my procrastinating and get back to another paper I have > to > > write. > > > > > > > > Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to > > > > ************************************** See what's free at > > http://www.aol.com. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Bonnie- Always good to hear the updates. Your courses sound very exciting! Hard work - but exciting! See you in July! Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Bonnie I echo , its demanding but worth it...I loved the miracles with and without charge, you put it so beautifully!! good luck Les x > > Bonnie- > > Always good to hear the updates. Your courses sound very exciting! Hard > work - but exciting! > > See you in July! > > Michele W > > Quote Link to comment Share on other sites More sharing options...
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