Michele W Re: Coarctation of Aorta (CoA), Ventricular Septal Defect (VSD) and pulmonary stenosis

[Guest guest]

Michele-

I think it will be of great help to know how well your Aubrie sustained the

surgery, and I have passed on your reply to them directly, and the listserv

email is overwhelming, and I think her hotmail automatically files it as " spam "

) (I have requested on their behalf to be placed on Daily Digest off list

with ).

Today the Cardiology team will be discussing the options for this precious boy,

and they will hear if the Cardiologist thinks it better to operate

prior to discharge or to wait and discharge Friday. My guess is it would be

better to have the heart surgery behind them - and it very well may resolve

the oxygen saturation issues, the rapid rattley breathing and the fatigue.....

had a heart surgery at six weeks and was far less robust

than their boy- but there are no guarantees on anything..... I am praying for

the best outcome for them in every moment.....

Thank you so much-

Yuka

Coarctation of Aorta (CoA), Ventricular Septal Defect

(VSD) and pulmonary stenosis

Discharge is being put off. Results of the sleep study reveled a third heart

defect. Now the darling baby has Coarctation of Aorta (CoA), Ventricular

Septal Defect (VSD) and pulmonary stenosis. Initially heart surgery was set

into the future - at five or six months. Now it is being scheduled as soon

as possible. This precious baby doesn't seem to have any noticeable

difficulties managing his secretions post gtube insertion and fundoplication

- his oral and nasal cavities are delightfully " just right " , dry and clear.

I am so hopeful that in addition to correcting the heart defects themselves

that this surgery will resolve the baby's O2 desaturation challenges....and

simplify after discharge care......

As always - words of wisdom and of the heart are invited......

y