Anyone in LA - Santa area?

[Guest guest]

Hi everyone

I've been talking to a woman in the UK whose English friend and husband live

in the Santa area. They have just had a boy who is in Children's

Hospitaland diagnosed with CHARGE. His main problems ie life threatening

type are heart - a hole and pulmonary artery stenosis and aspiration (I

think a fundo has been proposed). The little boy was desperately wanted and

I think some of the medical input could be more caring. Her friend has

described the mother as being in a very dark place.

Is there anyone in the area who could maybe say hello or visit to help the

parents see beyond where they are at the moment.

Contact me off list on my other email address - si_howard@....

Thanks

Simon