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Re: Scoliosis Update

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luck and hugs going your way!

Re: HURRAH!!!!

Dear Yuka, I am so sorry to hear that all the misery, sweating and potential

stares has not improved 's back 100%. What a bummer that the kyphosis is

resolving at the detriment of his scoliosis. Hopefully, the orthopedist will

find a solution to this. DAMN CHARGE Syndrome!

Sally

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Yuka, I hope the brace is able to help him with the scoliosis curve. Is it

severe enough to warrant surgery such as (Brownie's son) just had?

>

> Re: HURRAH!!!! was diagnosed with a 68 degree kyphosis (hunchback)

> and 34 degree scoliosis (curvature of the spine) in December 2005 and has

> been wearing a Milwaukee Brace 24/7 since February 2006 to help correct the

> kyphosis and arrest the scoliosis.

>

> Well - here's the good news: the kyphosis is down to 34.

>

> Here's the other news (notice it's much longer) the scoliosis - now

> particularly in the lumbar area has - gone from 30 degrees in January 2007

> to 46 degrees, apex at L2 . The apex vertebrae is at a 60 degree rotation,

> making the apparently classic among x-ray viewers " y Dog " - as the

> vertebrae looks like the silhouette of a y dog (I saw it, and it

> does!). There is tremendous concern at the rapid rate of change, especially

> juxtaposed to the reduced rate of growth has been experiencing this

> calendar year and his continuing growth hormone protocol. The rotation is

> highly unusual. Yet for highly unusual - it's so common for . has

> been experiencing increased limited range of motion and sharp pangs of pain

> over the last two months. Today he had a longer pain episode while waiting

> at the doctor's office. It was nice to see the respectful concern, the

> coincidence that the pain is exactly in the place of the apex of the

> curvature and rotation, and the high regard won with his attitude and

> management of pain. If the pain increases we will have an MIR. If the

> curvature increases (and/or rotation) surgery will be seriously considered.

> Meanwhile, we are going to have a whole new kind of brace made, as a bending

> x-ray demonstrated the possibility of reducing the 46 degree curve to at

> least 19 degrees - however there was no effect on the rotation with the

> bending x-ray.

>

> So, like everything else, it's one step at a time. First is the new brace.

>

>

> Wish us luck-

>

> yuka

> Re: HURRAH!!!!

>

> Dear Yuka, I am so sorry to hear that all the misery, sweating and

> potential stares has not improved 's back 100%. What a bummer that the

> kyphosis is resolving at the detriment of his scoliosis. Hopefully, the

> orthopedist will find a solution to this. DAMN CHARGE Syndrome!

>

> Sally

>

>

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