Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Les, In the beginning, the Drs always commented on Evan's " underdeveloped " jaw too. My husband and his family all have small chins/jaws, so it's hard to know what might have been part of a syndrome vs. just an expression of genes. Ironically enough, Evan has developed and underbite...evidently the mandible has grown more than the maxilla in his case. Hugs, (mom to Evan, 21 months) Amelie Chan amelie.m.chan@...> wrote: this is very useful to know, Amelie was suspected of pierre robin syndrome at the beginning, I am not sure I have spelt the syndrome properly, but when I asked what was it, they said she has a small lower jaw set back slightly, as she didnt have the syndrome in the end and her lung heart situation was far more important I never pursued the small set back jaw issues. I am really positive that armed with these responses from those children who have suffered with obstructive airway, that my ENT will listen!!!! and crack on with a treatment plan which may end the bedtime nightmare...I feel depressed when its time for bed!! thanks Les x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Its interesting how the things mentioned at the early stages do not necessariliy become important until later, the trouble with charge is we are focused on the big issues early on...I find it hard at times to remember the little comments about things which are now issues... thanks Les x > > Les, > > In the beginning, the Drs always commented on Evan's " underdeveloped " jaw > too. My husband and his family all have small chins/jaws, so it's hard to > know what might have been part of a syndrome vs. just an expression of > genes. Ironically enough, Evan has developed and underbite...evidently the > mandible has grown more than the maxilla in his case. > > Hugs, > (mom to Evan, 21 months) > > Amelie Chan amelie.m.chan@... > > wrote: > this is very useful to know, Amelie was suspected of pierre robin > syndrome at the beginning, I am not sure I have spelt the syndrome > properly, > but when I asked what was it, they said she has a small lower jaw set back > slightly, as she didnt have the syndrome > in the end and her lung heart situation was far more important I never > pursued the small set back jaw issues. > > I am really positive that armed with these responses from those children > who > have suffered with obstructive airway, that my ENT > will listen!!!! and crack on with a treatment plan which may end the > bedtime > nightmare...I feel depressed when its time for bed!! > > thanks Les x > > Quote Link to comment Share on other sites More sharing options...
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