Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 this is very useful to know, Amelie was suspected of pierre robin syndrome at the beginning, I am not sure I have spelt the syndrome properly, but when I asked what was it, they said she has a small lower jaw set back slightly, as she didnt have the syndrome in the end and her lung heart situation was far more important I never pursued the small set back jaw issues. I am really positive that armed with these responses from those children who have suffered with obstructive airway, that my ENT will listen!!!! and crack on with a treatment plan which may end the bedtime nightmare...I feel depressed when its time for bed!! thanks Les x Quote Link to comment Share on other sites More sharing options...
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