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JD is Okay...BUT

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We had an emergency life threatening situation with JD develop yesterday

afternoon. It seems JD went through an accidental decannulation yesterday about

mid afternoon. His trach did come out and JD experienced rapid respiratory

distress. We did not have a nurse with us yesterday until nighttime. Mandy was

with JD and by his side through the entire situation and handled the situation

completely as she was trained to do. There was no trouble getting JD's trach

back in. JD did lose consciousness and changed colors due to lack of oxygen for

about a short time but as soon as his airway was reestablished with putting the

trach in he responded beautifully. JD was administed about 1 liter of oxygen

for about 30 minutes to keep his saturations up and help him with his breathing.

We were able to wean him down to 1/8 of a liter by about nine o'clock last

night. JD experienced life threatening vital signs as for a period there was o2

saturations in the 60's and higher heart rates which stabilized as soon as his

airway was reestablished. We estimate total time of decannulation at about 2 -3

minutes maximum however it seemed like forever. Let me assure you that JD is

fine and had a restful night. As of today he is breathing room air and not

having any oxygen administered.

We called JD pulmonologist like we always do and have been doing daily to keep

him abreast of the situation. We were advised to watch JD and not bring him in.

JD will go to vent clinic tomorrow for a regularly scheduled appointment and

undergo a complete physical to determine if he is ready to face surgery for the

choanal atresia repair. We still do not know if this is a go. Hopefully

tomorrow we will have some more answers. As I have said before we believe this

will be a last minute decision to do this surgery. We ask that everyone stay

put and keep there fingers crossed. We are unsure about yesterdays situation

and it might have thrown a wrench into things. But we dont know. Again we ask

for everyone to pray and stay put. We will keep you informed when we know more.

At this point we just dont know. We believe we are very close to this surgery

becoming a reality but we just dont know. This decision rests in the hands of

his doctors and ultimately in the hands of God if it is time. Our faith

continues to rest in God to guide us. I can assure you that God's plan for JD

will prevail whatever happens.

All I can say as of yesterday is that Mandy handled the situation beautifully

and it is so apparent that God was by her side through the whole situation. We

are very nervous and emotionally distraught as to the events that occurred

yesterday afternoon but our complete trust remains in God. As you can see

everyday is serious when it comes to JD and his health. Our faith remains in

God and we have placed the health of both of our children in His hands. We look

to Him for guidance in making decisions and caring for our child when serious

life threatening situations like this arise as they have. We will keep you

informed. We ask for you to continue with your daily lives and pray for us and

our children. Again we will keep you informed.

Until we have more news we remain as servants to a risen Lord who is Christ

Jesus. May the peace, power, love, grace and mercy of our Lord be with all of

you. We remain In His Grip.

In His Loving Hands,

, Mandy, Olivia (19 months) and Barton (cHArgEd 19 months)

________________________________________________________________________

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