Feeding clinic and patience at the conference

[Guest guest]

Hi everyone!

I have been a lurker all summer and love hearing about all the kids

updates. I wanted to update you about Makenna.

She has been at a feeding clinic all week and is set to come home

tonight after dinner. She is officially off all tube feedings!!!!!

(which was our goal) and was also cleared to drink thin liquids. It

has been a huge week for her and us. We are still getting some

unwanted behaviors during meals so when dad and I feed her she cries

and yells a bit. We are taking the training to the hospital cafeteria

today to see how she does, should be interesting. That is where the

request for patience comes at the conference - hope everyone

understands if she is vocal about her unhappiness during meals at the

conference. I told Jay we will probably be banished to the farthest

corner during meals LOL!

Can't wait to see everyone at the conference! We will be getting to

California on Thursday early afternoon. I am getting really excited.

Makenna can't hardly wait to be reunited with Mickey Mouse!!!!

See you soon,

, mom to Makenna age 6!

[Guest guest]

What feeding clinic did you go to? How close was Makenna to being off tube feeds

before starting the clinic. It is nice to hear that it is possible to be off

tube feeds! I feel like that day will never happen for us.

Thanks!

Tamara Beth Wendoll

tammywendoll@...

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