Hospital Sites - WELCOME & Trinity

July 1, 2007

,

Welcome and congratulations on the birth of Trinity (what a cool name!).

Repeat nose surgeries are QUITE common with these guys. From what I've read

and seen over the years, some kids only need one surgery for c. atresia

(lucky ones!) and some need multiple. My daughter had 6 of her 18 surgeries

for her nose. It's been the most pain in the butt part of CHARGE for sure

in our case. If you're interested in seeing more about her, you can check

her web site, it has all her surgeries, history,etc there:

I don't know about hospital rankings for CHARGE - I've never heard of that

to be honest. I'm in Canada so not much help there. Good luck with

everything and keep asking questions...

--

Weir

Personal Web Site:

The Adventures of Kennedy Blog:

Secretary, CHARGE Syndrome Foundation Inc:

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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