New mom would like contact

[Guest guest]

Hi everybody,

I have been in touch with a mom in upstate NY. she has a 3

month old baby, Sophia, with CHARGE. In 200, she had a baby

boy with CHARGE who died at 3 days of age. So even though

this is her second baby with CHARGE, she doesn't know much

about it. Sophia will be coming home from the hospital

soon. I have spoken with the mom (Gia) on the phone and she

has ordered the Manual from n.

Gia would like to hear from other parents. I think the list

might be a bit overwhelming at this point. If you would

like to be in touch, please email her off list:

alexany2003@...

Thanks!

Meg

Meg Hefner, M.S.

Genetic Counselor

St. Louis, MO

hefnerma@... meg@...