Re: Frantic after dr. appt

[Guest guest]

I would follow Val's recs on the thyroid meds over a doc any day.

But to answer some of your questions, that blood cortisol was a TOTAL cortisol.

You need a free AM cortisol to really see how much is available for your body to

use. Saliva is closer to a free cortisol test. Now I know that the bound

cortisol is supposedly reserves, but I suspect in some people with high cortisol

binding globulin (and I found studies saying being hypo causes high cortisol

binding globulin!) that the cortisol isn't available like it shuld be. Maybe

that's why there is a discreprancey in your blood and saliva test.

Have you posted that specific part of the adrenal group? I suspect they will go

with the saliva over the blood but you could still ask for an opinion. Plus your

temps show your adrenals are not stable.

Yes, for people who CAN CONVERT t4 to t3, it does make sense to take both t4 and

t3. That's what dessicated thyroid meds is. But I assume you have a rt3 problem

or you wouldn't be on this group. But you have a rt3 of 4 and you've never been

on t3 only? Or you were on t3 only and cleared the rt3?

Yes, DHEA is not recommened if you have low cortisol.

And last but not least, don't worry about the scripts! Are you aware that,

except for controlled substances, you can get as many refills at one time as you

want? Of course, insurance won't pay for more than 1 month at a time, but

potassium can be bought OTC online from the Canadian source list and you can buy

b12 in a health food store. Or did she give you injectable? Again, you can get

more than 1 bottle at a time if need be and don't mind paying out of pocket, but

I think studies show sublinqual works just as well as injections.

Kathleen

>

> Hi-I am the one with RT3 of 4. I just went to a Dr. for second time today and

am frantic over what happened. I've been on synthroid 14 years – recently

stopped b/c of ratio but group said bad idea not to have ANY thryroid. So I

started splitting my .112mcg in 4's. Dr. wants me to increase to .50mcg AND ADD

T3. Now, I'm new to this but that didn't make sense? She did all my labs no

problem and has read STTM so I thought I was on the right track-but a few things

seem off the mark. Please advise.

>

> First I have a ferritin of 40 and only began iron pills 2 days ago.

> Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> *She disagrees with me even being on HC cream – not against it for all

patients but is for me, since I've taken 2 weeks and no " light bulbs " have gone

off. Also b/c she says my body produces cortisol as evidenced by blood of 31.1

(5-23). She feels I should take Adreset and Adrenogen supplements- said they

will not convert to adrenaline. Told me I'm not like everyone on group – my

adrenals are within range – fatigued but need nutritional supplementation vs.

cream. Said giving myself more when I'm already high is not good.

>

> DHEA (blood) 100 (44-270)

> Cortisol AM (blood) H 31.1 (5.0-23.0)

>

> 24 Hour Adrenal Coritsol

> DHEA L 65.5 (106-300)

> Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> Cortsol evening 3.0 (1.8-12) optimal (4-8)

> Cortisol night 1.2 (.9-9.2) optimal (2-6)

>

> *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5 with NO relief.

>

> She feels she CAN help me and I'd see results short term. I want help –

someone to do my labs – I'm in NY state which makes it trickier.

>

> After the appt – I considered going her way. Keeping t4, stopping hc, adding

t3…

>

> When I'm ready to clear isn't the whole point to go off T4 entirely?

> In this dr's experience of 30 years – and there are tons of great

testimonials in her office – going off T4 is not a good and would stress

adrenals more.

>

> She gave me a B12 script and the potassium Val said I needed, so that's great!

What will I do when they run out or if I don't go back she could call pharm and

put a hold on my scripts. I'm so scared!

>

> Just need some confirmation please? How do I make sense of all this?

>

> Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's not

good with adrenals in my state?

>

> Thanks- Holly

>

[Guest guest]

I agree with Kathleen, but you could always try her way and come back. Kathleen

can tell you about having gone to see many of the big name doctors in the

country that didn't help.

Do you mean your doctor wanted you to keep you on T4 permanently? If so, she is

demonstrating that she has NO understanding of RT3 and you will get more hypo as

the T4 continues to convert to more RT3. Val feels strongly that DHEA lowers

cortisol.

I'd ask your question about your blood cortisol vs your saliva cortisol on the

adrenal forum.

Kerry

>

> Hi-I am the one with RT3 of 4. I just went to a Dr. for second time today and

am frantic over what happened. I've been on synthroid 14 years � recently

stopped b/c of ratio but group said bad idea not to have ANY thryroid. So I

started splitting my .112mcg in 4's. Dr. wants me to increase to .50mcg AND ADD

T3. Now, I'm new to this but that didn't make sense? She did all my labs no

problem and has read STTM so I thought I was on the right track-but a few things

seem off the mark. Please advise.

>

> First I have a ferritin of 40 and only began iron pills 2 days ago.

> Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> *She disagrees with me even being on HC cream � not against it for all

patients but is for me, since I've taken 2 weeks and no " light bulbs " have gone

off. Also b/c she says my body produces cortisol as evidenced by blood of 31.1

(5-23). She feels I should take Adreset and Adrenogen supplements- said they

will not convert to adrenaline. Told me I'm not like everyone on group � my

adrenals are within range � fatigued but need nutritional supplementation vs.

cream. Said giving myself more when I'm already high is not good.

>

> DHEA (blood) 100 (44-270)

> Cortisol AM (blood) H 31.1 (5.0-23.0)

>

> 24 Hour Adrenal Coritsol

> DHEA L 65.5 (106-300)

> Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> Cortsol evening 3.0 (1.8-12) optimal (4-8)

> Cortisol night 1.2 (.9-9.2) optimal (2-6)

>

> *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5 with NO relief.

>

> She feels she CAN help me and I'd see results short term. I want help �

someone to do my labs � I'm in NY state which makes it trickier.

>

> After the appt � I considered going her way. Keeping t4, stopping hc,

adding t3�

>

> When I'm ready to clear isn't the whole point to go off T4 entirely?

> In this dr's experience of 30 years � and there are tons of great

testimonials in her office � going off T4 is not a good and would stress

adrenals more.

>

> She gave me a B12 script and the potassium Val said I needed, so that's great!

What will I do when they run out or if I don't go back she could call pharm and

put a hold on my scripts. I'm so scared!

>

> Just need some confirmation please? How do I make sense of all this?

>

> Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's not

good with adrenals in my state?

>

> Thanks- Holly

>

[Guest guest]

I will post it to adrenal also.

No I have never done T3 only. I just found out my RT3 ratio is 4 last week. I

have issues w/ ferritin, potassium (need script per val), magnesium that I

thought I needed to get up first. Then this doc. offers t3 (10mg) to begin NOW

while keeping me on synthroid.

B12 is in an injectable form.

Thanks - Holly

> >

> > Hi-I am the one with RT3 of 4. I just went to a Dr. for second time today

and am frantic over what happened. I've been on synthroid 14 years – recently

stopped b/c of ratio but group said bad idea not to have ANY thryroid. So I

started splitting my .112mcg in 4's. Dr. wants me to increase to .50mcg AND ADD

T3. Now, I'm new to this but that didn't make sense? She did all my labs no

problem and has read STTM so I thought I was on the right track-but a few things

seem off the mark. Please advise.

> >

> > First I have a ferritin of 40 and only began iron pills 2 days ago.

> > Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> > *She disagrees with me even being on HC cream – not against it for all

patients but is for me, since I've taken 2 weeks and no " light bulbs " have gone

off. Also b/c she says my body produces cortisol as evidenced by blood of 31.1

(5-23). She feels I should take Adreset and Adrenogen supplements- said they

will not convert to adrenaline. Told me I'm not like everyone on group – my

adrenals are within range – fatigued but need nutritional supplementation vs.

cream. Said giving myself more when I'm already high is not good.

> >

> > DHEA (blood) 100 (44-270)

> > Cortisol AM (blood) H 31.1 (5.0-23.0)

> >

> > 24 Hour Adrenal Coritsol

> > DHEA L 65.5 (106-300)

> > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> > Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> > Cortsol evening 3.0 (1.8-12) optimal (4-8)

> > Cortisol night 1.2 (.9-9.2) optimal (2-6)

> >

> > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5 with NO relief.

> >

> > She feels she CAN help me and I'd see results short term. I want help –

someone to do my labs – I'm in NY state which makes it trickier.

> >

> > After the appt – I considered going her way. Keeping t4, stopping hc,

adding t3…

> >

> > When I'm ready to clear isn't the whole point to go off T4 entirely?

> > In this dr's experience of 30 years – and there are tons of great

testimonials in her office – going off T4 is not a good and would stress

adrenals more.

> >

> > She gave me a B12 script and the potassium Val said I needed, so that's

great! What will I do when they run out or if I don't go back she could call

pharm and put a hold on my scripts. I'm so scared!

> >

> > Just need some confirmation please? How do I make sense of all this?

> >

> > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's

not good with adrenals in my state?

> >

> > Thanks- Holly

> >

>

[Guest guest]

There's no law that says you can't take the 10 mcg of T3 (which is what I started on) and divide it half in am and half in evening, without taking the T4 at all. In the meantime look for another doctor. If there are any refills on the T3 make sure you get it before it runs out.

If you can't and haven't found another doctor, I'd tell this doctor that you just couldn't keep taking the T4 because of how bad it was making you feel. No one can force you to take something that your body is reacting to badly. Without the T4 you should start to notice a difference, even on that low dose.

I come from NY State, where are you?

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

Subject: Re: Frantic after dr. apptTo: RT3_T3 Date: Thursday, July 15, 2010, 3:24 PM

I will post it to adrenal also.No I have never done T3 only. I just found out my RT3 ratio is 4 last week. I have issues w/ ferritin, potassium (need script per val), magnesium that I thought I needed to get up first. Then this doc. offers t3 (10mg) to begin NOW while keeping me on synthroid. B12 is in an injectable form.Thanks - Holly> >> > Hi-I am the one with RT3 of 4. I just went to a Dr. for second time today and am frantic over what happened. I've been on synthroid 14 years – recently stopped b/c of ratio but group said bad

idea not to have ANY thryroid. So I started splitting my .112mcg in 4's. Dr. wants me to increase to .50mcg AND ADD T3. Now, I'm new to this but that didn't make sense? She did all my labs no problem and has read STTM so I thought I was on the right track-but a few things seem off the mark. Please advise.> > > > First I have a ferritin of 40 and only began iron pills 2 days ago.> > Second I have adrenal fatigue and my temps haven't regulated yet. 98.4/98.8/99.2/99/99.4/99.1.> > *She disagrees with me even being on HC cream – not against it for all patients but is for me, since I've taken 2 weeks and no "light bulbs" have gone off. Also b/c she says my body produces cortisol as evidenced by blood of 31.1 (5-23). She feels I should take Adreset and Adrenogen supplements- said they will not convert to adrenaline. Told me I'm not like everyone on group – my

adrenals are within range – fatigued but need nutritional supplementation vs. cream. Said giving myself more when I'm already high is not good.> > > > DHEA (blood) 100 (44-270) > > Cortisol AM (blood) H 31.1 (5.0-23.0)> > > > 24 Hour Adrenal Coritsol> > DHEA L 65.5 (106-300)> > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)> > Corisol noon 4.7 (2.1-15.7) optimal(6-12)> > Cortsol evening 3.0 (1.8-12) optimal (4-8)> > Cortisol night 1.2 (.9-9.2) optimal (2-6)> > > > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5 with NO relief. > > > > She feels she CAN help me and I'd see results short term. I want help – someone to do my labs – I'm in NY state which makes it trickier. > > > > After the appt – I considered going her way. Keeping t4,

stopping hc, adding t3…> > > > When I'm ready to clear isn't the whole point to go off T4 entirely?> > In this dr's experience of 30 years – and there are tons of great testimonials in her office – going off T4 is not a good and would stress adrenals more. > > > > She gave me a B12 script and the potassium Val said I needed, so that's great! What will I do when they run out or if I don't go back she could call pharm and put a hold on my scripts. I'm so scared!> > > > Just need some confirmation please? How do I make sense of all this?> > > > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's not good with adrenals in my state?> > > > Thanks- Holly> >>------------------------------------We are not medical professionals here, just patients sharing our

experiences. Please use this information with the help of a competent doctor.

[Guest guest]

Holly

I'm no expert....but...seems like your cortisol

levels in the test were remarkably LOW.

perhaps someone might advise you to take more....and

more often?

and tour rt3 look horrible too, so I think you need

t3 only.

hope some expert can re-affirm these suggestions

------- Original Message -------

From : hollyamp

Sent : 7/15/2010 3:24:28 PM

To : RT3_T3

Cc :

Subject : RE: Re: Frantic after dr. appt

I will post it to adrenal also.

No I have never done T3 only. I just found out my

RT3 ratio is 4 last week. I have issues w/ ferritin,

potassium (need script per val), magnesium that I

thought I needed to get up first. Then this doc.

offers t3 (10mg) to begin NOW while keeping me on

synthroid.

B12 is in an injectable form.

Thanks - Holly

> >

> > Hi-I am the one with RT3 of 4. I just went to a

Dr. for second time today and am frantic over what

happened. I've been on synthroid 14 years – recently

stopped b/c of ratio but group said bad idea not to

have ANY thryroid. So I started splitting my .112mcg

in 4's. Dr. wants me to increase to .50mcg AND ADD

T3. Now, I'm new to this but that didn't make sense?

She did all my labs no problem and has read STTM so

I thought I was on the right track-but a few things

seem off the mark. Please advise.

> >

> > First I have a ferritin of 40 and only began

iron pills 2 days ago.

> > Second I have adrenal fatigue and my temps

haven't regulated yet. 98.4/98.8/99.2/99/99.4/99.1.

> > *She disagrees with me even being on HC cream –

not against it for all patients but is for me, since

I've taken 2 weeks and no " light bulbs " have gone

off. Also b/c she says my body produces cortisol as

evidenced by blood of 31.1 (5-23). She feels I

should take Adreset and Adrenogen supplements- said

they will not convert to adrenaline. Told me I'm not

like everyone on group – my adrenals are within

range – fatigued but need nutritional supplementation

vs. cream. Said giving myself more when I'm already

high is not good.

> >

> > DHEA (blood) 100 (44-270)

> > Cortisol AM (blood) H 31.1 (5.0-23.0)

> >

> > 24 Hour Adrenal Coritsol

> > DHEA L 65.5 (106-300)

> > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> > Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> > Cortsol evening 3.0 (1.8-12) optimal (4-8)

> > Cortisol night 1.2 (.9-9.2) optimal (2-6)

> >

> > *I've been on cream since 7/1 as follows

10mg/7.5/5/2.5 with NO relief.

> >

> > She feels she CAN help me and I'd see results

short term. I want help – someone to do my labs –

I'm in NY state which makes it trickier.

> >

> > After the appt – I considered going her way.

Keeping t4, stopping hc, adding t3Â…

> >

> > When I'm ready to clear isn't the whole point to

go off T4 entirely?

> > In this dr's experience of 30 years – and there

are tons of great testimonials in her office – going

off T4 is not a good and would stress adrenals more.

> >

> > She gave me a B12 script and the potassium Val

said I needed, so that's great! What will I do when

they run out or if I don't go back she could call

pharm and put a hold on my scripts. I'm so scared!

> >

> > Just need some confirmation please? How do I

make sense of all this?

> >

> > Also- DHEA was low and dr. gave me Bio-Som liquid

but I just heard that's not good with adrenals in my

state?

> >

> > Thanks- Holly

> >

>

[Guest guest]

Hi Holly and Roni!

Holly this is exactly what happened to me. Roni's advice to you is exactly what

I did!

I had RAI in October, 2008, so no thyroid. I weaned off Syncrap while taking

10-15mcg of T3, then dropped synthroid completely, after feeling much better, I

knew what I was telling my Dr.

I didn't take the T3 the night before my (very important) LOL, TSh test, so it

would make them happy, told them I will NEVER take synthroid again, and if I

need T4 I want Naturethroid with the T3.

They didn't have my TSH tests back yet, so she said " lets wait for your blood

test result and take it from there. " They called that night and told me my TSH

is perfect. So they didn't add the naturethroid, but I have an appt. in

November to check again.

So maybe, just maybe, they are researching this, and will help other patients

with thyroid issues.

Just make sure your iron, B12, and adrenals are good, because this will hinder

your progress on T3.

I started all this May 1. I am really feeling much better, no more water pill,

wellbutrin. Blood pressure is better than normal, and I have lost 8 lbs. I am

not that foggy anymore, and feel like I have more energy. I told the Dr. that I

thought many of my symptoms were reactions to the synthroid!

Best wishes and email me whenever you want. I am not a moderator, they are

Godsends, but I have some personal experience now!

Roni, where abouts in NY, I am in the Adirondacks.

Have a great night,

Donna

http://honey-please-do-list.blogspot.com/

> > >

> > > Hi-I am the one with RT3 of 4.  I just went to a Dr. for second time

today and am frantic over what happened.  I've been on synthroid 14 years †"

recently stopped b/c of ratio but group said bad idea not to have ANY

thryroid.  So I started splitting my .112mcg in 4's.  Dr. wants me to increase

to .50mcg AND ADD T3.  Now, I'm new to this but that didn't make sense?  She

did all my labs no problem and has read STTM so I thought I was on the right

track-but a few things seem off the mark.  Please advise.

> > >

> > > First I  have a ferritin of 40 and only began iron pills 2 days ago.

> > > Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> > > *She disagrees with me even being on HC cream †" not against it for all

patients but is for me, since I've taken 2 weeks and no " light bulbs " have gone

off.  Also b/c she says my body produces cortisol as evidenced by blood of 31.1

(5-23).  She feels I should take Adreset and Adrenogen supplements- said they

will not convert to adrenaline.  Told me I'm not like everyone on group †" my

adrenals are within range †" fatigued but need nutritional supplementation vs.

cream.  Said giving myself more when I'm already high is not good.

> > >

> > > DHEA (blood) 100 (44-270)

> > > Cortisol AM (blood) H 31.1 (5.0-23.0)

> > >

> > > 24 Hour Adrenal Coritsol

> > > DHEA L 65.5 (106-300)

> > > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> > > Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> > > Cortsol evening 3.0 (1.8-12) optimal (4-8)

> > > Cortisol night 1.2 (.9-9.2) optimal (2-6)

> > >

> > > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5  with NO relief.

> > >

> > > She feels she CAN help me and I'd see results short term.  I want help

†" someone to do my labs †" I'm in NY state which makes it trickier. 

> > >

> > > After the appt †" I considered going her way.   Keeping t4, stopping

hc, adding t3…

> > >

> > > When I'm ready to clear isn't the whole point to go off T4 entirely?

> > > In this dr's experience of  30 years †" and there are tons of great

testimonials in her office †" going off T4 is not a good and would stress

adrenals more.

> > >

> > > She gave me a B12 script and the potassium Val said I needed, so that's

great!  What will I do when they run out or if I don't go back she could call

pharm and put a hold on my scripts.  I'm so scared!

> > >

> > > Just need some confirmation please?  How do I make sense of all this?

> > >

> > > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's

not good with adrenals in my state?

> > >

> > > Thanks- Holly

> > >

> >

>

>

>

>

> ------------------------------------

>

> We are not medical professionals here, just patients sharing our experiences.

Please use this information with the help of a competent doctor. Yahoo! Groups

Links

>

[Guest guest]

Roni-

I'm in Rochester NY where are you? Any dr. you recommend - I'll travel if I

have to.

The dr. and I had some back and forth with this whole thing. I wanted off t4

she said to keep or could stress adrenals. Also was fine with me treating

immed. before adrenal and ferritin ok. Just not on same page. She can have her

opinion and I can have mine but if we can't see eye to eye I don't see how we

can work together. Also costs a fortune $670.00 for 2 visits! I can't pay like

that and fight but I need help. I told her I'm part of the group and now I'm

worried she'll join and see my inner thoughts...

My ins only covers 1 refill a mo. if I fill t3 with no ins it's 326.00/mo.

Can't I get thru mexico if I have to?

I could tell dr Im not takingt4 b/c of how it makes me feel but how would i

explain I'm doing hc cream still, based on my results she doesn't want me on and

thinks I just need the supplement support.

This is so hard!! Living my life always trusting doctors - it is very hard to

break away. Not an easy path and I'm scared!

Thanks - Holly

> > >

> > > Hi-I am the one with RT3 of 4.  I just went to a Dr. for second time

today and am frantic over what happened.  I've been on synthroid 14 years †"

recently stopped b/c of ratio but group said bad idea not to have ANY

thryroid.  So I started splitting my .112mcg in 4's.  Dr. wants me to increase

to .50mcg AND ADD T3.  Now, I'm new to this but that didn't make sense?  She

did all my labs no problem and has read STTM so I thought I was on the right

track-but a few things seem off the mark.  Please advise.

> > >

> > > First I  have a ferritin of 40 and only began iron pills 2 days ago.

> > > Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> > > *She disagrees with me even being on HC cream †" not against it for all

patients but is for me, since I've taken 2 weeks and no " light bulbs " have gone

off.  Also b/c she says my body produces cortisol as evidenced by blood of 31.1

(5-23).  She feels I should take Adreset and Adrenogen supplements- said they

will not convert to adrenaline.  Told me I'm not like everyone on group †" my

adrenals are within range †" fatigued but need nutritional supplementation vs.

cream.  Said giving myself more when I'm already high is not good.

> > >

> > > DHEA (blood) 100 (44-270)

> > > Cortisol AM (blood) H 31.1 (5.0-23.0)

> > >

> > > 24 Hour Adrenal Coritsol

> > > DHEA L 65.5 (106-300)

> > > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> > > Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> > > Cortsol evening 3.0 (1.8-12) optimal (4-8)

> > > Cortisol night 1.2 (.9-9.2) optimal (2-6)

> > >

> > > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5  with NO relief.

> > >

> > > She feels she CAN help me and I'd see results short term.  I want help

†" someone to do my labs †" I'm in NY state which makes it trickier. 

> > >

> > > After the appt †" I considered going her way.   Keeping t4, stopping

hc, adding t3…

> > >

> > > When I'm ready to clear isn't the whole point to go off T4 entirely?

> > > In this dr's experience of  30 years †" and there are tons of great

testimonials in her office †" going off T4 is not a good and would stress

adrenals more.

> > >

> > > She gave me a B12 script and the potassium Val said I needed, so that's

great!  What will I do when they run out or if I don't go back she could call

pharm and put a hold on my scripts.  I'm so scared!

> > >

> > > Just need some confirmation please?  How do I make sense of all this?

> > >

> > > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's

not good with adrenals in my state?

> > >

> > > Thanks- Holly

> > >

> >

>

>

>

>

> ------------------------------------

>

> We are not medical professionals here, just patients sharing our experiences.

Please use this information with the help of a competent doctor. Yahoo! Groups

Links

>

[Guest guest]

Hi Holly.

$360??? Ouch. The Mexican T3 is way cheaper than that. My co-pay is $35 and

it makes more sense financially for me to buy it from Mexico (i.e. a month is

less than $35). Just send a separate post asking for the source list from the

mods for T3, HC and K-Dur, the potassium prescription from Canada.

I have to say my doc ALSO did not treat adrenals properly and didn't believe

there was a ferritin/iron connection at all and started me on T3 right away.

Luckily (?) he put me on a really low dose but even so I suffered through some

serious anxiety because my ferritin was 18 and my cortils were low.

You don't have to tell your doctor ANYTHING. Not how you are treating with T3

OR with HC or anything else for that matter. Now I just get my doctor to write

requests for tests and just nod my head and do whatever I want offline! ;-)

Don't let them scare you--most do NOT know what they are doing. The mods on

here are better than any doctor I have found. I know it's hard to handle all

this yourself but I wish I had started treating myself with their advice instead

of shelling out big bucks to a high profile doctor who didnt really know what he

was doing. Just my 2 cents...

Be well.

in LA

> > > >

> > > > Hi-I am the one with RT3 of 4.  I just went to a Dr. for second time

today and am frantic over what happened.  I've been on synthroid 14 years †"

recently stopped b/c of ratio but group said bad idea not to have ANY

thryroid.  So I started splitting my .112mcg in 4's.  Dr. wants me to increase

to .50mcg AND ADD T3.  Now, I'm new to this but that didn't make sense?  She

did all my labs no problem and has read STTM so I thought I was on the right

track-but a few things seem off the mark.  Please advise.

> > > >

> > > > First I  have a ferritin of 40 and only began iron pills 2 days ago.

> > > > Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> > > > *She disagrees with me even being on HC cream †" not against it for all

patients but is for me, since I've taken 2 weeks and no " light bulbs " have gone

off.  Also b/c she says my body produces cortisol as evidenced by blood of 31.1

(5-23).  She feels I should take Adreset and Adrenogen supplements- said they

will not convert to adrenaline.  Told me I'm not like everyone on group †" my

adrenals are within range †" fatigued but need nutritional supplementation vs.

cream.  Said giving myself more when I'm already high is not good.

> > > >

> > > > DHEA (blood) 100 (44-270)

> > > > Cortisol AM (blood) H 31.1 (5.0-23.0)

> > > >

> > > > 24 Hour Adrenal Coritsol

> > > > DHEA L 65.5 (106-300)

> > > > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> > > > Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> > > > Cortsol evening 3.0 (1.8-12) optimal (4-8)

> > > > Cortisol night 1.2 (.9-9.2) optimal (2-6)

> > > >

> > > > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5  with NO

relief.

> > > >

> > > > She feels she CAN help me and I'd see results short term.  I want help

†" someone to do my labs †" I'm in NY state which makes it trickier. 

> > > >

> > > > After the appt †" I considered going her way.   Keeping t4, stopping

hc, adding t3…

> > > >

> > > > When I'm ready to clear isn't the whole point to go off T4 entirely?

> > > > In this dr's experience of  30 years †" and there are tons of great

testimonials in her office †" going off T4 is not a good and would stress

adrenals more.

> > > >

> > > > She gave me a B12 script and the potassium Val said I needed, so that's

great!  What will I do when they run out or if I don't go back she could call

pharm and put a hold on my scripts.  I'm so scared!

> > > >

> > > > Just need some confirmation please?  How do I make sense of all this?

> > > >

> > > > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard

that's not good with adrenals in my state?

> > > >

> > > > Thanks- Holly

> > > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> > We are not medical professionals here, just patients sharing our

experiences. Please use this information with the help of a competent doctor.

[Guest guest]

-

Thanks for your input. I know this dr. won't just run the labs I want especially when the results will show I'm not following her directions. I trust this group - had a phone consult w/Val and know it's the truth. I just have to find a way to follow through. Living in NYS- can't do own bloodwork so I have to find a dr. to work with.

Take care- Holly

To: RT3_T3 Sent: Fri, July 16, 2010 12:11:50 PMSubject: Re: Frantic after dr. appt

Hi Holly.$360??? Ouch. The Mexican T3 is way cheaper than that. My co-pay is $35 and it makes more sense financially for me to buy it from Mexico (i.e. a month is less than $35). Just send a separate post asking for the source list from the mods for T3, HC and K-Dur, the potassium prescription from Canada.I have to say my doc ALSO did not treat adrenals properly and didn't believe there was a ferritin/iron connection at all and started me on T3 right away. Luckily (?) he put me on a really low dose but even so I suffered through some serious anxiety because my ferritin was 18 and my cortils were low. You don't have to tell your doctor ANYTHING. Not how you are treating with T3 OR with HC or anything else for that matter. Now I just get my doctor to write requests for tests and just nod my head and do whatever I want offline! ;-) Don't let them scare you--most do NOT know what they are doing. The mods on here are better than any

doctor I have found. I know it's hard to handle all this yourself but I wish I had started treating myself with their advice instead of shelling out big bucks to a high profile doctor who didnt really know what he was doing. Just my 2 cents...Be well. in LA> > > >> > > > Hi-I am the one with RT3 of 4. I just went to a Dr. for second time today and am frantic over what happened. I've been on synthroid 14 years â€" recently stopped b/c of ratio but group said bad idea not to have ANY thryroid. So I started splitting my .112mcg in 4's. Dr. wants me to increase to .50mcg AND ADD T3. Now, I'm new to this but that didn't make sense? She did all my labs no problem and has read STTM so I thought I was on the right track-but a few things seem off the

mark. Please advise.> > > > > > > > First I have a ferritin of 40 and only began iron pills 2 days ago.> > > > Second I have adrenal fatigue and my temps haven't regulated yet. 98.4/98.8/99.2/99/99.4/99.1.> > > > *She disagrees with me even being on HC cream â€" not against it for all patients but is for me, since I've taken 2 weeks and no "light bulbs" have gone off. Also b/c she says my body produces cortisol as evidenced by blood of 31.1 (5-23). She feels I should take Adreset and Adrenogen supplements- said they will not convert to adrenaline. Told me I'm not like everyone on group â€" my adrenals are within range â€" fatigued but need nutritional supplementation vs. cream. Said giving myself more when I'm already high is not good.> > > > > > > > DHEA (blood) 100 (44-270) > > > >

Cortisol AM (blood) H 31.1 (5.0-23.0)> > > > > > > > 24 Hour Adrenal Coritsol> > > > DHEA L 65.5 (106-300)> > > > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)> > > > Corisol noon 4.7 (2.1-15.7) optimal(6-12)> > > > Cortsol evening 3.0 (1.8-12) optimal (4-8)> > > > Cortisol night 1.2 (.9-9.2) optimal (2-6)> > > > > > > > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5 with NO relief. > > > > > > > > She feels she CAN help me and I'd see results short term. I want help â€" someone to do my labs â€" I'm in NY state which makes it trickier. > > > > > > > > After the appt â€" I considered going her way.   Keeping t4, stopping hc, adding t3…> > > > > > >

> When I'm ready to clear isn't the whole point to go off T4 entirely?> > > > In this dr's experience of 30 years â€" and there are tons of great testimonials in her office â€" going off T4 is not a good and would stress adrenals more. > > > > > > > > She gave me a B12 script and the potassium Val said I needed, so that's great! What will I do when they run out or if I don't go back she could call pharm and put a hold on my scripts. I'm so scared!> > > > > > > > Just need some confirmation please? How do I make sense of all this?> > > > > > > > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard that's not good with adrenals in my state?> > > > > > > > Thanks- Holly> > > >> > >> > > > > > >

> > > ------------------------------------> > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor.

[Guest guest]

I totally agree with . And where is that t3 coming from that it is so

expensive? My compounded was only $80 a month I think, but anyway, yeah, the

Mexican stuff is cheaper and BETTER.

I know it's scary to try to self-treat, but in reality, you're not totally

self-treating because you have people here to help and Val is better than any

doc I ever went to.

Kathleen

> > > > >

> > > > > Hi-I am the one with RT3 of 4.  I just went to a Dr. for second time

today and am frantic over what happened.  I've been on synthroid 14 years †"

recently stopped b/c of ratio but group said bad idea not to have ANY

thryroid.  So I started splitting my .112mcg in 4's.  Dr. wants me to increase

to .50mcg AND ADD T3.  Now, I'm new to this but that didn't make sense?  She

did all my labs no problem and has read STTM so I thought I was on the right

track-but a few things seem off the mark.  Please advise.

> > > > >

> > > > > First I  have a ferritin of 40 and only began iron pills 2 days ago.

> > > > > Second I have adrenal fatigue and my temps haven't regulated yet.

98.4/98.8/99.2/99/99.4/99.1.

> > > > > *She disagrees with me even being on HC cream †" not against it for

all patients but is for me, since I've taken 2 weeks and no " light bulbs " have

gone off.  Also b/c she says my body produces cortisol as evidenced by blood of

31.1 (5-23).  She feels I should take Adreset and Adrenogen supplements- said

they will not convert to adrenaline.  Told me I'm not like everyone on group

†" my adrenals are within range †" fatigued but need nutritional

supplementation vs. cream.  Said giving myself more when I'm already high is

not good.

> > > > >

> > > > > DHEA (blood) 100 (44-270)

> > > > > Cortisol AM (blood) H 31.1 (5.0-23.0)

> > > > >

> > > > > 24 Hour Adrenal Coritsol

> > > > > DHEA L 65.5 (106-300)

> > > > > Cortisol morning 21.3 (5.1-40.2) optimal(18-35)

> > > > > Corisol noon 4.7 (2.1-15.7) optimal(6-12)

> > > > > Cortsol evening 3.0 (1.8-12) optimal (4-8)

> > > > > Cortisol night 1.2 (.9-9.2) optimal (2-6)

> > > > >

> > > > > *I've been on cream since 7/1 as follows 10mg/7.5/5/2.5  with NO

relief.

> > > > >

> > > > > She feels she CAN help me and I'd see results short term.  I want

help †" someone to do my labs †" I'm in NY state which makes it trickier. 

> > > > >

> > > > > After the appt †" I considered going her way.   Keeping t4,

stopping hc, adding t3…

> > > > >

> > > > > When I'm ready to clear isn't the whole point to go off T4 entirely?

> > > > > In this dr's experience of  30 years †" and there are tons of great

testimonials in her office †" going off T4 is not a good and would stress

adrenals more.

> > > > >

> > > > > She gave me a B12 script and the potassium Val said I needed, so

that's great!  What will I do when they run out or if I don't go back she could

call pharm and put a hold on my scripts.  I'm so scared!

> > > > >

> > > > > Just need some confirmation please?  How do I make sense of all this?

> > > > >

> > > > > Also- DHEA was low and dr. gave me Bio-Som liquid but I just heard

that's not good with adrenals in my state?

> > > > >

> > > > > Thanks- Holly

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > We are not medical professionals here, just patients sharing our

experiences. Please use this information with the help of a competent doctor.