Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 Hi Ariela, Are you taking your temps. I noticed clearance not so much because how I felt as for the very noticeable increase in basal/daily temps. Then I also felt better after a while but I am having still all sort of troubles, so I guess rT3 was not my only problem (I think my adrenals are my big problem, but who knows...). I relate very much with your feelings, I am extremely stressed about whether I will ever feel well. Today particularly I am very depressed, really, really tired to fight, when my body doesn't seem to respond. wish you good luck though!!! > > Hi everyone. > > Just thought I would share that 12 weeks passed today and nothing happened - no > relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all > this tention from just waiting to something to happen is very stressful to me, > so I actually feel worse (guess because of adrenal issues). > > So, I don't know what to think. I guess that I feel what I wrote in a thread a > few weeks ago - maybe " clearence " doesn't exists. Or maybe it worked for others > but not for me. > > I think I will give it another week or two before I will totally give up on the > chance of ever feeling normal again... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 Hang in there Ariela! I'm sure Nick will have some advice for you! To: RT3_T3 Sent: Sun, July 25, 2010 1:34:13 AMSubject: 12 weeks passed today and no clearence )-: Hi everyone. Just thought I would share that 12 weeks passed today and nothing happened - no relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all this tention from just waiting to something to happen is very stressful to me, so I actually feel worse (guess because of adrenal issues). So, I don't know what to think. I guess that I feel what I wrote in a thread a few weeks ago - maybe "clearence" doesn't exists. Or maybe it worked for others but not for me. I think I will give it another week or two before I will totally give up on the chance of ever feeling normal again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 OK time ot look at reasonw you may not have cleared. Can you post recent IRON labs and are you on adrenal support? Whta is your BO adn pulse? How much T3 are you tkaing>? http://www.nthadrenalsweb.org/ http://www.health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://www.faqhelp.webs.com/ http://www.health.groups.yahoo.com/group/RT3_T3/ http://www.thyroid-rt3.com/ Hang in there Ariela! I'm sure Nick will have some advice for you!  From: Ariela Levi To: RT3_T3 Sent: Sun, July 25, 2010 1:34:13 AM Subject: 12 weeks passed today and no clearence )-:  Hi everyone. Just thought I would share that 12 weeks passed today and nothing happened - no relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all this tention from just waiting to something to happen is very stressful to me, so I actually feel worse (guess because of adrenal issues). So, I don't know what to think. I guess that I feel what I wrote in a thread a few weeks ago - maybe "clearence" doesn't exists. Or maybe it worked for others but not for me. I think I will give it another week or two before I will totally give up on the chance of ever feeling normal again... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 Ariela and ,I did not clear until 13 weeks and is correct, I did not "feel" better at 13wks but I did notice my temps going up. I also had to address the adrenals however, I did not go the HC route. Could not handle that. I am still taking dessicated adrenal. I tried Isocort for several weeks but have an allergy to echineacia which is in Isocort. I do think Isocort helped so I stayed on it as long as I could but now that the ragweed season is getting closer, I was getting sinus issues, facial swelling etc. I have to say, I do feel SO much better than I did a year ago. It does take time and attention to so many other things. So make sure you are doing all the testing that Val suggests and get them optimal. Even at that, there are days where I do not feel my best.....I think it is the curse of this disease. Hang in there, it will happen.VeniziaSubject: Re: 12 weeks passed today and no clearence )-:To: RT3_T3 Date: Sunday, July 25, 2010, 7:00 AM Hi Ariela, Are you taking your temps. I noticed clearance not so much because how I felt as for the very noticeable increase in basal/daily temps. Then I also felt better after a while but I am having still all sort of troubles, so I guess rT3 was not my only problem (I think my adrenals are my big problem, but who knows...). I relate very much with your feelings, I am extremely stressed about whether I will ever feel well. Today particularly I am very depressed, really, really tired to fight, when my body doesn't seem to respond. wish you good luck though!!! > > Hi everyone. > > Just thought I would share that 12 weeks passed today and nothing happened - no > relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all > this tention from just waiting to something to happen is very stressful to me, > so I actually feel worse (guess because of adrenal issues). > > So, I don't know what to think. I guess that I feel what I wrote in a thread a > few weeks ago - maybe "clearence" doesn't exists. Or maybe it worked for others > but not for me. > > I think I will give it another week or two before I will totally give up on the > chance of ever feeling normal again... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 I started in January 09. I didn't clear until November 09. I was on 75mcg and that simply wasn't enough t3. When I got to 125mcg then things started happening. Of course, ferritin/B-12, adrenal hormones need to be in order. > > > > > > Hi everyone. > > > > > > Just thought I would share that 12 weeks passed today and nothing happened - no > > > relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all > > > this tention from just waiting to something to happen is very stressful to me, > > > so I actually feel worse (guess because of adrenal issues). > > > > > > So, I don't know what to think. I guess that I feel what I wrote in a thread a > > > few weeks ago - maybe " clearence " doesn't exists. Or maybe it worked for others > > > but not for me. > > > > > > I think I will give it another week or two before I will totally give up on the > > > chance of ever feeling normal again... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 Ariela, It took me a long time to clear, much longer than 12 weeks. I had gone up to 150 mcg of T3 I expected a significant difference when I cleared, but its more subtle. My temps went from being in the low 96s to the low 98s. I feel alot warmer now - I'm not used to that & its taking some time to get used to it. I also noticed that I could remember things & had more stamina to run errands. Previously I could only manage 2 stops when I went out. Now I can make 4 different stops before I needed a rest. The most visible relief of symptoms were my legs. I've always had white crack marks on my lower legs (I've been hypo all my life). For the first time in my life they're gone. I still haven't lost any of the weight, I was really hoping that I would have some success with that : ( Upping my B12 also helped with higher energy for me. I'm also supporting my adrenals with HC. Hang in there. C. > > Hi everyone. > > Just thought I would share that 12 weeks passed today and nothing happened - no > relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all > this tention from just waiting to something to happen is very stressful to me, > so I actually feel worse (guess because of adrenal issues). > > So, I don't know what to think. I guess that I feel what I wrote in a thread a > few weeks ago - maybe " clearence " doesn't exists. Or maybe it worked for others > but not for me. > > I think I will give it another week or two before I will totally give up on the > chance of ever feeling normal again... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 Hi Ariela I am at week 15 and i also haven't had a noticeable clearance, although around week 11 to 12 my heart rate went up to about 112 and my temp rose to 98.6, i had to drop from 120mcg SRt3 to 90mcg SRt3. I became very depressed around that time because i thought I had just wasted a lot of time and money and nothing had happened. I am still tired and depressed but I feel that slowly I am getting better. All my female hormones are very low and I feel now that it will take several months for these to improve even if i am getting the right amount of T3 into my cells. It took a long time to get our bodies into this mess, so it will take a while for it to get better. Be patient and don't lose hope. Kat > > > > Hi everyone. > > > > Just thought I would share that 12 weeks passed today and nothing happened - no > > relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all > > this tention from just waiting to something to happen is very stressful to me, > > so I actually feel worse (guess because of adrenal issues). > > > > So, I don't know what to think. I guess that I feel what I wrote in a thread a > > few weeks ago - maybe " clearence " doesn't exists. Or maybe it worked for others > > but not for me. > > > > I think I will give it another week or two before I will totally give up on the > > chance of ever feeling normal again... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 I also did not clear until 13 weeks. Then because ferritin was okay but iron levels NOT okay, it took several more weeks before I felt significantly different but I DID notice a difference at clearing. Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 > > Hi everyone. > > Just thought I would share that 12 weeks passed today and nothing happened - no > relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all > this tention from just waiting to something to happen is very stressful to me, > ________________________ IN MY EXPERIENCE: I had my RrT3 checked twice about a year apart (May '09 and May 10). In that time, I discovered I had mold growing in my air conditioning. I had been feeling strangly bad since October 2007, when I was pregnant, and I had terrible stomach pains which showed all clear when then did gall bladder tests. Turns out, I was breathing air that measured OVER 20,000 spores per cubic meter (per five minutes of testing time, extrapolated from one minute, maybe?) for 1-2 years. What is the thyroid connection here? I am NOT totally sure, but exposure to Water Damaged Buildings (WDB) can cause an increase in cytokines. Cytokines can mess up thyroid function and/or absorption. Here is just one little tidbit: http://emedicine.medscape.com/article/118651-overview " Cytokines: Cytokines are thought to play a role in NTI—particularly interleukin (IL)-1, IL-6, tumor necrosis factor (TNF)-alpha, and interferon-beta. Cytokines are thought to affect the hypothalamus, the pituitary, or other tissues, inhibiting production of TSH, thyroid-releasing hormone (TRH), thyroglobulin, T3, and thyroid-binding globulins. Cytokines are also thought to decrease the activity of type I deiodinase and to decrease the binding capacity of T3 nuclear receptors. " So, when I had mold exposure, my reverse T3 was high. I got rid of the offending HVAC, started taking T3, and a year after the first test, the Rt3 was down, and I was really seeing a difference in feeling better. You could be in a water damaged building at home, work, or school. Did any of these places change around the time you began to feel poorly? Have you felt a little better here and there at any time? This has been a huge struggle for me in trying to get family members to believe that my water damaged messed me up. Now, I just try to tell it as a thyroid story with a little mold thrown in! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 I believe you! Up until last September, I was living in a water damaged house that was very definitly moldy. that landlord woudl nto do ANYTHING to correct the situaiton. I go t by as best I could with HEPA filters runnign constantly where I sat and slept, btu it only reduces exposure nto stops it. I amnow battling Mycoplasma Pneumonia btu the thyrid is workign well and RT3 gone. But the T3 cleares the RT3 by itself but my overall health did nto improve much until I got ou tof that house. http://www.nthadrenalsweb.com http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/RT3_T3/ http://www.thyroid-rt3.com/ http://groups.yahoo.com/group/HypoPets/ http://artisticgrooming.net/ > > >> Hi everyone. >> >> Just thought I would share that 12 weeks passed today and nothing happened - no >> relief from symptoms at all - I'm fatigued and depressed as usuall. In fact, all >> this tention from just waiting to something to happen is very stressful to me, >> > ________________________ > > IN MY EXPERIENCE: > > I had my RrT3 checked twice about a year apart (May '09 and May 10). In that time, I discovered I had mold growing in my air conditioning. I had been feeling strangly bad since October 2007, when I was pregnant, and I had terrible stomach pains which showed all clear when then did gall bladder tests. > > Turns out, I was breathing air that measured OVER 20,000 spores per cubic meter (per five minutes of testing time, extrapolated from one minute, maybe?) for 1-2 years. > > What is the thyroid connection here? I am NOT totally sure, but exposure to Water Damaged Buildings (WDB) can cause an increase in cytokines. Cytokines can mess up thyroid function and/or absorption. > > Here is just one little tidbit: > > http://emedicine.medscape.com/article/118651-overview > > " Cytokines: Cytokines are thought to play a role in NTI—particularly interleukin (IL)-1, IL-6, tumor necrosis factor (TNF)-alpha, and interferon-beta. Cytokines are thought to affect the hypothalamus, the pituitary, or other tissues, inhibiting production of TSH, thyroid-releasing hormone (TRH), thyroglobulin, T3, and thyroid-binding globulins. Cytokines are also thought to decrease the activity of type I deiodinase and to decrease the binding capacity of T3 nuclear receptors. " > > So, when I had mold exposure, my reverse T3 was high. I got rid of the offending HVAC, started taking T3, and a year after the first test, the Rt3 was down, and I was really seeing a difference in feeling better. > > You could be in a water damaged building at home, work, or school. Did any of these places change around the time you began to feel poorly? Have you felt a little better here and there at any time? > > This has been a huge struggle for me in trying to get family members to believe that my water damaged messed me up. Now, I just try to tell it as a thyroid story with a little mold thrown in! > > > > ------------------------------------ > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Yahoo! Groups Links > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 > >So, I don't know what to think. I guess that I feel what I wrote in a thread a >few weeks ago - maybe " clearence " doesn't exists. Or maybe it worked for others Give it a while, the time taken depends on how quickly you were able to get T4 out of your system. Val's already asked you for current labs but can you remind me of your original FT3 and RT3. The amount of clearance you get will depend on how bad the problem was and how long it had been like it. How much T3 are you on now? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com For lots of good information of adrenal issues http://www.nthadrenalsweb.com/ and the adrenal group on http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2010 Report Share Posted July 26, 2010 Hi Nick. My ft3/rt3 ratio was 5, so I guess it is pretty bad. I am taking 75 mcg t3 a day. I believe that the rt3 started when the Hashimoto did, which was two years ago. Val suggested to lower the t3 inorder in reduce my pulse (100-110 bpm). She said that the high pulse (temps 36.8c stable) means that the t3 is getting in my cells. Ah, I am so comfused: if my ratio is so bad how could it be that t3 is getting in my cells? couldn't I be hypo and still have high pulse?And, even on 50 my pulse was high (but then I guess I had some t4 left). These are my latest results:tatol t3 370 (70-170)free t4 0.2 (0.8-1.9)tsh 0 (0.4-4.5)I remember you writing to me about how clearence feels amazing. Well, no clearence for me so far )-:To: RT3_T3 Sent: Mon, July 26, 2010 11:05:41 PMSubject: Re: 12 weeks passed today and no clearence )-: > >So, I don't know what to think. I guess that I feel what I wrote in a thread a >few weeks ago - maybe "clearence" doesn't exists. Or maybe it worked for others Give it a while, the time taken depends on how quickly you were able to get T4 out of your system. Val's already asked you for current labs but can you remind me of your original FT3 and RT3. The amount of clearance you get will depend on how bad the problem was and how long it had been like it. How much T3 are you on now? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com For lots of good information of adrenal issues http://www.nthadrenalsweb.com/ and the adrenal group on http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 >Val suggested to lower the t3 inorder in reduce my pulse (100-110 bpm). She said >that the high pulse (temps 36.8c stable) means that the t3 is getting in my >cells. Ah, I am so comfused: if my ratio is so bad how could it be that t3 is >getting in my cells? couldn't I be hypo and still have high pulse? >And, even on 50 my pulse was high (but then I guess I had some t4 left). One of the things with receptor blockage is that different receptors can be affected in different ways so when there is still resistance different parts of your body can be hypo or hyper > >These are my latest results: > >tatol t3 370 (70-170) >free t4 0.2 (0.8-1.9) >tsh 0 (0.4-4.5) That TT3 is very high for 75mcg, this tends to indicate that there is resistance going on and the body can't " use up " the T3 that's there. Are you on adrenal support? What are your iron results?? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com For lots of good information of adrenal issues http://www.nthadrenalsweb.com/ and the adrenal group on http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Hi NickThese are my iron labs. Had 5 iron IV's:iron 159 (70-170)ferritin 357 (9-120)transferrin 209 (200-360)I am taking 35 mg HC a day. Temps are stable at 36.8c .This is all so comfusing: Val said that my high pulse indicates that t3 is getting in my cells (so I guess she means no resustence), and you said that my high TT3 result indicates resistence, because my body can't use all that t3 I am taking and that is why it is pooling. Ah, I am going crazy here. But, only 4 days pasted since the end of the 12 week, so I am still hanging in there.I am so sure that my symptoms come from hormonal issues and not an obscure CFS. I know that because they began with the hormonal disease (hashimoto) and improved with hormonal treatment (HC). So, why isn't this protocol working for me?HELP! To: RT3_T3 Sent: Wed, July 28, 2010 9:14:21 AMSubject: Re: 12 weeks passed today and no clearence )-: >Val suggested to lower the t3 inorder in reduce my pulse (100-110 bpm). She said >that the high pulse (temps 36.8c stable) means that the t3 is getting in my >cells. Ah, I am so comfused: if my ratio is so bad how could it be that t3 is >getting in my cells? couldn't I be hypo and still have high pulse? >And, even on 50 my pulse was high (but then I guess I had some t4 left). One of the things with receptor blockage is that different receptors can be affected in different ways so when there is still resistance different parts of your body can be hypo or hyper > >These are my latest results: > >tatol t3 370 (70-170) >free t4 0.2 (0.8-1.9) >tsh 0 (0.4-4.5) That TT3 is very high for 75mcg, this tends to indicate that there is resistance going on and the body can't "use up" the T3 that's there. Are you on adrenal support? What are your iron results?? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com For lots of good information of adrenal issues http://www.nthadrenalsweb.com/ and the adrenal group on http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 Hi NickThese are my iron labs. Had 5 iron IV's:iron 159 (70-170)ferritin 357 (9-120)transferrin 209 (200-360)I am taking 35 mg HC a day. Temps are stable at 36.8c .This is all so comfusing: Val said that my high pulse indicates that t3 is getting in my cells (so I guess she means no resustence), and you said that my high TT3 result indicates resistence, because my body can't use all that t3 I am taking and that is why it is pooling. Ah, I am going crazy here. But, only 4 days pasted since the end of the 12 week, so I am still hanging in there.I am so sure that my symptoms come from hormonal issues and not an obscure CFS. I know that because they began with the hormonal disease (hashimoto) and improved with hormonal treatment (HC). So, why isn't this protocol working for me?HELP! To: RT3_T3 Sent: Wed, July 28, 2010 9:14:21 AMSubject: Re: 12 weeks passed today and no clearence )-: >Val suggested to lower the t3 inorder in reduce my pulse (100-110 bpm). She said >that the high pulse (temps 36.8c stable) means that the t3 is getting in my >cells. Ah, I am so comfused: if my ratio is so bad how could it be that t3 is >getting in my cells? couldn't I be hypo and still have high pulse? >And, even on 50 my pulse was high (but then I guess I had some t4 left). One of the things with receptor blockage is that different receptors can be affected in different ways so when there is still resistance different parts of your body can be hypo or hyper > >These are my latest results: > >tatol t3 370 (70-170) >free t4 0.2 (0.8-1.9) >tsh 0 (0.4-4.5) That TT3 is very high for 75mcg, this tends to indicate that there is resistance going on and the body can't "use up" the T3 that's there. Are you on adrenal support? What are your iron results?? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com For lots of good information of adrenal issues http://www.nthadrenalsweb.com/ and the adrenal group on http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 > >Ah, I am going crazy here. But, only 4 days pasted since the end of the 12 week, >so I am still hanging in there. >I am so sure that my symptoms come from hormonal issues and not an obscure CFS. >I know that because they began with the hormonal disease (hashimoto) and >improved with hormonal treatment (HC). So, why isn't this protocol working for >me? Hang in there, you will get there. It takes a while to get all the pieces in place. Nick Quote Link to comment Share on other sites More sharing options...
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