Need some advice please?

[Guest guest]

Hi

Sorry but this will be a long post as it is complicated....

I purchased some T3 in the spring but didn't start it as I was then quite unwell

and admitted to hospital. Many tests later including MRI (found white spots on

the brain) Lumber puncture - clear and Evoked Potentials - normal. I am still

not really better although I am currently waiting for a nerve block injection

for the sciatic pain due to herniated disc between L4 and L5. Good old NHS

thinks this will not be done until October!!

Anyway have been taking vast quantities of painkillers, Amytiptaline,

Gabapentine, paracetamol, co-codamol and Tramadol. and was getting really

hacked off with feeling exhausted and sleepy. I decided at the weekend to start

the T3 meds - all I can say is WOW - I feel so much more alive and even managed

to do more than 10 minutes of housework in a day. I took a low dose and will be

doing the first increase today - currently on 1/4 of a 25mcg tablet 4 times a

day. I have been off work for months and as a single parent really need to go

back as my money will drop this month. So decided to contact GP for appointment

to discuss the possibility of getting T3 on prescription - he has a protocol to

follow..... must have blood test first - can't do this until next week - hmmm

So my question is do I stop the T3 now and go back to feeling crap as GP

suggests that it takes at least a week to get out of my system. I thought it

had a short life and therefore could take it for longer, stopping say 24 to 48

hours before the test?

GP questioned the use of this as he stated that results are not generally good -

at this point I thought crap and told him I had tried some and found it to be

very helpful in reducing symptoms - he was not happy!

By the way I have managed my pain levels with a limited number of paracetamol

despite doing loads more since being on the T3 - good since my liver results wer

off last month.

For the record in March 2010 my bloods were on 250mcg Levo

FT3 3.99 (3.6-6.5)

FT4 14.1 (9-19.1)

TSH 1.3 (0.35-4.94)

in July 2010 - Increased doseage to 400mcg but stopped a few days before check -

this was self medicated increase as felt so ill but no support from GP

TSH 5.1 (0.35-4.94)

T4 15.1 (9-19.1)

Apologies for the long post

Thanks

Sally

[Guest guest]

>For the record in March 2010 my bloods were on 250mcg Levo

>FT3 3.99 (3.6-6.5)

>FT4 14.1 (9-19.1)

>TSH 1.3 (0.35-4.94)

>

>in July 2010 - Increased doseage to 400mcg but stopped a few days before check

- this was self medicated increase as felt so ill but no support from GP

>TSH 5.1 (0.35-4.94)

>T4 15.1 (9-19.1)

>

>Apologies for the long post

Nothing to apologise for, you are extremely hypo, the second TSH is

pretty meaningless as it responded to the change in dose levels. The

most useful result is the FT3 which at the bottom of the range is

showing you are not converting the T4 into T3.

People feel best with FT3 at top of range and the chances are you

would never get there on T4 only.

Having taken that much T4 the chances are that your RT3 is going to be

through the roof leading to receptor blockage and resistance to

thyroid hormone.

You need to get ferritin checked, or preferably a full iron panel.

Graph daily temperature averages as per the link on the RT3 site to

check adrenal performance and take a " 4 times a day " saliva test if

that is unstable. If need be you will need to go onto HC to support

adrenals.

Post the iron and adrenal results here and someone will help interpret

them (in range is not good enough)

Once they are proven to be OK or supported as need be you can then

drop T4 completely and ramp T3 up to replace it as your T4 levels

decay away. After 3 months on T3 only you will feel totally different.

I am in the UK, the NHS is useless for " out of the ordinary " thyroid

issues diagnosing everyone as having ME/CFS instead of sorting out the

adrenal and thyroid issues.

Have a read through this web site

www.thyroid-rt3.com

It summa rises the protocol that has worked for many of us.

Feel free to ask questions.,

If you can get your Dr to work with you then great but the chances are

he won't, if need be you can buy whatever you need mail order and self

treat.

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

Hi

Thankyou for the quick response. I have had a ferritin result in March and it

was quite low

34.9 ug/L (10-204)

I have recently been taking a course of ferrous sulphate that I purchased as GP

didn't think my ferritin was low enough to warrant treatment.

I also take cod liver oil and a 3/6/9 oil + Vit E, Multi B Vits and Adrenal

Support and calcium. I have run out of the ferrous sulphate but will try to get

some more as I have read that it takes ages to get this up to more healthy

levels. I have got magnesium (transdermal) which I should start using again.

Please can I ask how long the T3 remains in your system - I though it decays

quite quickly? I would really like to keep taking it until nearly time for my

blood test next week. GP wanted me to leave over a week before the test.

Please can you also email a list of were is the best place to get the T3 as I

only have 1 bottle and will need more before GP gets himself sorted out if ever.

I think I got the last one from South America but due to severe brain fog I

can't remember the details.

Thanks again

Sally

[Guest guest]

Usually i recommend taking last T3 dose at bedtime the night before labs

nothing the AM of testign. If you go off it a week you WILL go very

hypothyroid. Sent source proivately.

http://www.nthadrenalsweb.org/

http://www.health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.faqhelp.webs.com/

http://www.health.groups.yahoo.com/group/RT3_T3/

http://www.thyroid-rt3.com/

> Hi

>

> Thankyou for the quick response. I have had a ferritin result in March and it

was quite low

> 34.9 ug/L (10-204)

>

> I have recently been taking a course of ferrous sulphate that I purchased as

GP didn't think my ferritin was low enough to warrant treatment.

>

> I also take cod liver oil and a 3/6/9 oil + Vit E, Multi B Vits and Adrenal

Support and calcium. I have run out of the ferrous sulphate but will try to get

some more as I have read that it takes ages to get this up to more healthy

levels. I have got magnesium (transdermal) which I should start using again.

>

> Please can I ask how long the T3 remains in your system - I though it decays

quite quickly? I would really like to keep taking it until nearly time for my

blood test next week. GP wanted me to leave over a week before the test.

>

> Please can you also email a list of were is the best place to get the T3 as I

only have 1 bottle and will need more before GP gets himself sorted out if ever.

I think I got the last one from South America but due to severe brain fog I

can't remember the details.

>

> Thanks again

> Sally

>

>

>

>

>

> ------------------------------------

>

> We are not medical professionals here, just patients sharing our experiences.

Please use this information with the help of a competent doctor. Yahoo! Groups

Links

>

>

>

>

>

[Guest guest]

>

>Please can I ask how long the T3 remains in your system - I though it decays

quite quickly? I would really like to keep taking it until nearly time for my

blood test next week. GP wanted me to leave over a week before the test.

T3 decays much quicker than T4.

To get stable labs if you were on T3 only 3 days is enough for a small

dose change to stabilize, a week for a large change. Being on T3 and

then stopping it will cause TSH to change though which will change

your own thyroid output (if there is any left) and hence a week after

stopping will give very strange labs

If you wanted labs that showed reliable T3 levels then a 10 to 12 hour

withdrawal period will give sensible answers.

The more you talk about this the more it becomes clear that your Dr is

out of his depth!

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

Thankyou so much - I was really pleased that you both confirmed my thoughts and

I shall continue to take the T3 until Sunday night. I have done more today than

in the last 3 months (well it feels like that!!)

I have spent ages just needing to sit after a pathetic 15 mins of light work

like doing 1 load of washing up or just hanging out the washing. Today I have

painted 3 coats on the walls and ceiling in my bathroom. It is a very small

room but I am very pleased it - still needs two more coats on the walls but hey

oh - it has only been waiting 2 1/2 years....

I think you are right about the GP being out of his depth - I just wanted to try

and get the tablets through the NHS to save a little money. I will continue to

buy them if necessary. I have only changed practice this year as last GP was

even worse - took 9 days to get an appointment for an asthmatic!! Just found

out that GP I was seeing in the practice has now left and I will need to start

again to explain how I feel.

Regards

Sally