Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 HI Kris, I am certainly not a moderator but I can relate to what you are talking about. I am starting week 14 and am still waiting to feel better completely. Mine was a complex senario as alot of us are. I was hoping arfter reading the T3 resistance website that I would just sail through the increases and then increase! Well I was on 3 different T3's and 2 different HC's because I could only get so much from my nurse practitioner and obviously it was not enough. Long journey!!! But I do know I feel much better in some ways especially with my neurotransmitters than every before. I was hoping to clear at week 12 but I had other things going on. For one thing I'm on HC which brings a whole different dynamic and I'm having to moniter decreasing HC while making sure I'm not on too much T3 AND having low estrogen which symptoms can be the same ; ) So its really having faith in the whole process and knowing we are getting there one step at a time. I too have actualy felt worse this last 3 months trying to clear RT3. But as I have discussed with Val its just that T3 is asking the metabolisim to step up and do its job. In the long run its truly getting the body back into balance. I definitely have felt worse in clearing this T3 - I also believe it's because we supress our our own thyroid and now are dependent on exogenous T3 (from the outside) which sometimes isn't enough yet. . . . I really feel like I'm almost there even though I still have sypmtoms like HIGH cortisol, low estrongen, ect . . . Its just getting the timing right for the whole endocrine system. KEEP THE FAITH. Blessings Sage > > Hi Val, Nick and Margery, > > This is week 15 for me on T3 only. Wow what a journey this is and I can tell > it isn't over yet. I am now at 100 mcg with 25 mcg four times a day and the > last dose at bedtime. Today was day three on 100 mcg and my basal was down > to 97.6 where it had been 97.8. My daytime temps aren't bad at 98.4 at 8:30 > and 98.6 later in the day. I am wondering if the low basal is bothersome > since the daytime temps are good although never high. My BP is 114/74 and my > pulse is around 75-80. One thing I have noticed is my toes still feel cold a > lot of the time but my hands are warm. How many people take more than 100 > mcg? If I increase now what time of day would be best to increase? I am > wondering about taking more than 25 mcg at bedtime because this week I have > had some return of my irregular heartbeat during the night, last night > around midnight and wonder if 25 mcg isn't enough to get me through the > night. > > > > People often ask why those who are feeling better never post so to those who > have just started this journey rest assured you will see changes and > improvements. In looking back at the weeks prior to this I think week 11 was > the worst as I had what was probably some pooling but some clearance. My > temps soared, my pulse was 112 bpm and my blood pressure was high but I > still had a lot of hypo symptoms and inner trembling. I had anxiety with all > that and sent Val a note which she kindly answered right away telling me to > cut back some but not much. I did what she suggested and felt better right > away but my basal temp dropped and never did recover until I got back up > around 100 mcg. My daytime temps stayed low (98) until I added some Isocort > (blood pressure plummeted at one point) and got my dose up to 100mcg. I have > found that taking that bedtime dose has made a huge difference to my sleep > and that has been the hardest thing for me to do. I always take it with > trepidation but for no good reason as it seems to just make my sleep much > deeper and restorative. I am self medicating and that too is a scary > proposition but with the help of this site I think I am in a much better > place than I was 15 weeks ago. > > > > Thanks to you all, > > Kris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2010 Report Share Posted August 3, 2010 Hi Sage, Thanks for the affirmation. After reading about your experience of the last 14 weeks I have a question or two for you. How are your neurotransmitters different? What signs do you have that they are working better? I agree that I still don't feel that much better, my energy lags some and truthfully I still lack the ambition that I normally have but maybe you are right our bodies are still getting used to the new system of support. I find it encouraging that others have gone through much the same process because it is a long journey and it does take patience (I see that word a lot in everyone's posts)and those who don't understand, who aren't going through it do look at you as if you are crazy when you try to explain. The general public has no idea the importance of a thyroid that functions optimally only those of us who suffer with malfunctioning thyroids get it. I am currently pondering my night time dose of 25 mcg. I thought it was helping me sleep more soundly than I have for decades. However, last night I was awakened again at 11:30 with a real jolt. My heart beat was loud and pounding, thank God not irregular which it used to be. It calmed down right away and I went back to sleep until around 3 when I just felt like getting up. Luckily I didn't and got up at my normal 5:30. I really don't know if I should cut back the dose of Cynomel at bedtime or increase it. If I cut back that dose I need to add it somewhere and I am not sure of the best time to take more than 25 mcg. Any ideas, anyone? All other functions seem okay and nearing normal(still have cold toes), it is just this nighttime problem that started when I increased my bedtime dose to 25 mcg from 18.75 last Friday, 100 mcg seems like the right amount but I may need to time it better. Thanks so much, Kris > > > > Hi Val, Nick and Margery, > > > > This is week 15 for me on T3 only. Wow what a journey this is and I can tell > > it isn't over yet. I am now at 100 mcg with 25 mcg four times a day and the > > last dose at bedtime. Today was day three on 100 mcg and my basal was down > > to 97.6 where it had been 97.8. My daytime temps aren't bad at 98.4 at 8:30 > > and 98.6 later in the day. I am wondering if the low basal is bothersome > > since the daytime temps are good although never high. My BP is 114/74 and my > > pulse is around 75-80. One thing I have noticed is my toes still feel cold a > > lot of the time but my hands are warm. How many people take more than 100 > > mcg? If I increase now what time of day would be best to increase? I am > > wondering about taking more than 25 mcg at bedtime because this week I have > > had some return of my irregular heartbeat during the night, last night > > around midnight and wonder if 25 mcg isn't enough to get me through the > > night. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2010 Report Share Posted August 3, 2010 Hi Kris, What I notice is that my reactions emotionally are not as strong and immediate. Even though I'm still not feeling the best I can my emotions are much more in balance. Some people have many more emotional symptoms as well physical - I have been one of those people who had a tremendous amount of emotional symptoms. So this is the area I notice the most change in. T3 definitely works closly with serotonin and I believe is necessary for its production. And your right the general public even those close by have NO idea what it is like to have hypothyroidisim/adrenal issues. I am writing to hopefully help people understand those who have it and those who don't to understand more about what it is and what it is like. Hypthyroidisim is epidemic. People need to be educated about it that is for sure!!!! Very Best to you Sage > > > > > > Hi Val, Nick and Margery, > > > > > > This is week 15 for me on T3 only. Wow what a journey this is and I can tell > > > it isn't over yet. I am now at 100 mcg with 25 mcg four times a day and the > > > last dose at bedtime. Today was day three on 100 mcg and my basal was down > > > to 97.6 where it had been 97.8. My daytime temps aren't bad at 98.4 at 8:30 > > > and 98.6 later in the day. I am wondering if the low basal is bothersome > > > since the daytime temps are good although never high. My BP is 114/74 and my > > > pulse is around 75-80. One thing I have noticed is my toes still feel cold a > > > lot of the time but my hands are warm. How many people take more than 100 > > > mcg? If I increase now what time of day would be best to increase? I am > > > wondering about taking more than 25 mcg at bedtime because this week I have > > > had some return of my irregular heartbeat during the night, last night > > > around midnight and wonder if 25 mcg isn't enough to get me through the > > > night. > > > Quote Link to comment Share on other sites More sharing options...
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