Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 If you had RT3 and cleared it with your Ferritin just now at 45, I wonder how you survived the anxiety! That could be a big part of your problem--it's why the recommendation is to get your Ferritin to 50 before beginning the T3 protocol. Also, I think the T3 can still pool and not get into the cells unless your Ferritin is up in the 70-90 range. Are you taking the Bluebonnet 27 mg Chelated iron 150-200 mg/day with Vitamin C? It definitely works. I got mine up from 19 to 70 in three months. You're so close to getting it figured out at this point that to add an SSRI now at this late date would be a shame to me. I'm thinking you've gone through the worst you possibly could. You might want to test sex hormones and maybe post a bunch on the adrenal site about what's happening since you're on HC/Florinef. I definitely have had the horrible panic! By myself and UNBEARABLY so when a doctor put me on 50 mcg of T3 when my Ferritin was 19. I lasted 8 days. Kerry > > >>> > > >>>> This one is for the forum members especially. > > >>>> > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > >>>> about your experience on the subject. > > >>>> > > >>>> > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > >>>> never actually helped with the depression but getting off them in my emotionaly > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > >>>> guys are: > > >>>> > > >>>> a) Did you stop taking AD before starting treatment? > > >>>> Do you have any clue from your experience how stopping taking them actually > > >>>> helped your healing? > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > >>>> psychiatric, to stop taking AD? > > >>>> > > >>>> > > >>>> And for the mods: can you please explain to me specifically as possible how can > > >>>> taking AD damage the protocol recommanded here? > > >>>> > > >>>> This is the first time since joining this forum that I actually question a > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > >>>> serotonin system are related, but not that they can't be handeled > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > >>>> he clearly suffers from depression, I just don't get it. > > >>>> > > >>>> > > >>>> Please your opinions on the subject! > > >>>> > > >>>> > > >>> > > >> > > > > > > > > > > > > ------------------------------------ > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 If you had RT3 and cleared it with your Ferritin just now at 45, I wonder how you survived the anxiety! That could be a big part of your problem--it's why the recommendation is to get your Ferritin to 50 before beginning the T3 protocol. Also, I think the T3 can still pool and not get into the cells unless your Ferritin is up in the 70-90 range. Are you taking the Bluebonnet 27 mg Chelated iron 150-200 mg/day with Vitamin C? It definitely works. I got mine up from 19 to 70 in three months. You're so close to getting it figured out at this point that to add an SSRI now at this late date would be a shame to me. I'm thinking you've gone through the worst you possibly could. You might want to test sex hormones and maybe post a bunch on the adrenal site about what's happening since you're on HC/Florinef. I definitely have had the horrible panic! By myself and UNBEARABLY so when a doctor put me on 50 mcg of T3 when my Ferritin was 19. I lasted 8 days. Kerry > > >>> > > >>>> This one is for the forum members especially. > > >>>> > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > >>>> about your experience on the subject. > > >>>> > > >>>> > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > >>>> never actually helped with the depression but getting off them in my emotionaly > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > >>>> guys are: > > >>>> > > >>>> a) Did you stop taking AD before starting treatment? > > >>>> Do you have any clue from your experience how stopping taking them actually > > >>>> helped your healing? > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > >>>> psychiatric, to stop taking AD? > > >>>> > > >>>> > > >>>> And for the mods: can you please explain to me specifically as possible how can > > >>>> taking AD damage the protocol recommanded here? > > >>>> > > >>>> This is the first time since joining this forum that I actually question a > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > >>>> serotonin system are related, but not that they can't be handeled > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > >>>> he clearly suffers from depression, I just don't get it. > > >>>> > > >>>> > > >>>> Please your opinions on the subject! > > >>>> > > >>>> > > >>> > > >> > > > > > > > > > > > > ------------------------------------ > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 , How much and what type/form of magnesium do you take? There is a huge body of research on magnesium deficiency and anxiety/panic. It was the only thing that really worked for me---but I don't have a low ferritin level like you do which as others have stated can be behind the anxiety. If you aren't taking at least 400 mg a day orally or transdermally, I'd really consider it. Anxiety states really deplete magnesium which over-excites the nerve cells. If you are not already taking mg, a good one for anxiety is Natural Calm right before bed. You have to start slow/small dose and build up to tolerance. It is best to take it small doses spread over the day, with largest right before bedtime. Good luck > > >>> > > >>>> This one is for the forum members especially. > > >>>> > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > >>>> about your experience on the subject. > > >>>> > > >>>> > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > >>>> never actually helped with the depression but getting off them in my emotionaly > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > >>>> guys are: > > >>>> > > >>>> a) Did you stop taking AD before starting treatment? > > >>>> Do you have any clue from your experience how stopping taking them actually > > >>>> helped your healing? > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > >>>> psychiatric, to stop taking AD? > > >>>> > > >>>> > > >>>> And for the mods: can you please explain to me specifically as possible how can > > >>>> taking AD damage the protocol recommanded here? > > >>>> > > >>>> This is the first time since joining this forum that I actually question a > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > >>>> serotonin system are related, but not that they can't be handeled > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > >>>> he clearly suffers from depression, I just don't get it. > > >>>> > > >>>> > > >>>> Please your opinions on the subject! > > >>>> > > >>>> > > >>> > > >> > > > > > > > > > > > > ------------------------------------ > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Kerry, That's how I feel too - to go on an SSRI now after all of this doesn't seem like the answer. I am going to try the Bluebonnet iron. I have been taking poly iron 300mg daily, but every blood draw and period is a setback. Strangely things were so bad that I actually needed the t3 to tolerate the iron originally. I would get severe edema with every little bit of iron I tried to take. I think with the rt3 the iron would ramp everything up and stress my adrenals out more? Just a theory. But as I inched my way up - a little t3, then a little more iron i was able to get to the levels I am at without the severe edema. Clearing out the rt3 was a big leap in progress. Is the anxiety better now that your iron is up to 70? Thanks for your help! > > > >>> > > > >>>> This one is for the forum members especially. > > > >>>> > > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > > >>>> about your experience on the subject. > > > >>>> > > > >>>> > > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > > >>>> never actually helped with the depression but getting off them in my emotionaly > > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > > >>>> guys are: > > > >>>> > > > >>>> a) Did you stop taking AD before starting treatment? > > > >>>> Do you have any clue from your experience how stopping taking them actually > > > >>>> helped your healing? > > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > > >>>> psychiatric, to stop taking AD? > > > >>>> > > > >>>> > > > >>>> And for the mods: can you please explain to me specifically as possible how can > > > >>>> taking AD damage the protocol recommanded here? > > > >>>> > > > >>>> This is the first time since joining this forum that I actually question a > > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > > >>>> serotonin system are related, but not that they can't be handeled > > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > > >>>> he clearly suffers from depression, I just don't get it. > > > >>>> > > > >>>> > > > >>>> Please your opinions on the subject! > > > >>>> > > > >>>> > > > >>> > > > >> > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Kate, I had totally forgotten about magnesium (I feel like I take a million supplements)other than having the bit that came in the multivitamin. I did test low in range rbc magnesium a while back and was taking it and then somehow with all this pill popping forgot about it. (DUH!!) I am going to keep upping the iron AND add in magnesium right away. Thank you! > > > >>> > > > >>>> This one is for the forum members especially. > > > >>>> > > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > > >>>> about your experience on the subject. > > > >>>> > > > >>>> > > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > > >>>> never actually helped with the depression but getting off them in my emotionaly > > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > > >>>> guys are: > > > >>>> > > > >>>> a) Did you stop taking AD before starting treatment? > > > >>>> Do you have any clue from your experience how stopping taking them actually > > > >>>> helped your healing? > > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > > >>>> psychiatric, to stop taking AD? > > > >>>> > > > >>>> > > > >>>> And for the mods: can you please explain to me specifically as possible how can > > > >>>> taking AD damage the protocol recommanded here? > > > >>>> > > > >>>> This is the first time since joining this forum that I actually question a > > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > > >>>> serotonin system are related, but not that they can't be handeled > > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > > >>>> he clearly suffers from depression, I just don't get it. > > > >>>> > > > >>>> > > > >>>> Please your opinions on the subject! > > > >>>> > > > >>>> > > > >>> > > > >> > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Your story sounds like my own in a way. When I went on Wellbutrin, most of the effects on me were physical. I finally had energy, did not have a constant sinus headache,much less asthma, and I felt happier. I then added cytomel and strattera later, but I am still on Wellbutrin. I am trying to wean off the strattera now, and maybe I will try with the wellbutrin later. I often wonder why I felt so much better physically when starting wellbutrin. The feeling is not quite the same as HC, so I don't think it is just the extra cortisol it stimulated. This stuff is so complicated! Liz > > I don't know if may input will be of any use but my case seems quite different from others I have read in the thyroid groups. I have had lots of " psychiatric " problems, mostly panic attacks, agoraphobia, panic disorder and OCD. I was given Anafranil and it actually helped a lot (although it had unpleasant side effects, like always being sleepy). But strangely enough helped also with things which don't seem " psychological " really, like it made my hair loss stop and made my hair look beautiful (before I took it my hair was dry and used to fall). > My particular theory is that it helped my adrenals, among other things because I slept most of the time (I used to spent every weekend in bed sleeping, only waking up to eat a bit and go to the bathroom). I have the feeling it allowed my body to rest... > > When all this happened neither me nor anyone had a clue I could have thyroid or adrenal problems. > > With time I was able to reduce the dose of Anafranil (much before even suspecting thyroid/adrenal problems) and keep some of the benefits. > > > For quite a while I have been on the ridiculous dose of 10 mg Anafranil and I find very difficult to wean of it. I have tried several times and I always have the same dizzy feelings and I get panicky I won't make it without it. So I have done all the T3-only treatment on these 10 mg Anafranil and I am still on it. I am actually hoping to find myself a bit more stable to try to wean again. > > I just wanted to add that I have very strong and fast " mental " reactions to T3, to me it feels like it goes directly to me head and removes all the anxiety making me happy... I mostly felt it at the beginning (I felt it also with Armour, but I think it was the T3 on it), now my system seems to have gone used to it (still feel it sometimes though). > Despite these positive feelings I am finding difficult to reach stability (my mood and my general well-being are going up and down), so I am hanging on to my old friend Anafranil. Hope I can wean soon! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 I'm at 88 now, and I have NO anxiety! Kerry > > > > >>> > > > > >>>> This one is for the forum members especially. > > > > >>>> > > > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > > > >>>> about your experience on the subject. > > > > >>>> > > > > >>>> > > > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > > > >>>> never actually helped with the depression but getting off them in my emotionaly > > > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > > > >>>> guys are: > > > > >>>> > > > > >>>> a) Did you stop taking AD before starting treatment? > > > > >>>> Do you have any clue from your experience how stopping taking them actually > > > > >>>> helped your healing? > > > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > > > >>>> psychiatric, to stop taking AD? > > > > >>>> > > > > >>>> > > > > >>>> And for the mods: can you please explain to me specifically as possible how can > > > > >>>> taking AD damage the protocol recommanded here? > > > > >>>> > > > > >>>> This is the first time since joining this forum that I actually question a > > > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > > > >>>> serotonin system are related, but not that they can't be handeled > > > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > > > >>>> he clearly suffers from depression, I just don't get it. > > > > >>>> > > > > >>>> > > > > >>>> Please your opinions on the subject! > > > > >>>> > > > > >>>> > > > > >>> > > > > >> > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Yay!!! That's awesome! All of the hypoadrenal and hypothyroid symptoms have been bad, but the anxiety has been one of THE worst to me. > > > > > >>> > > > > > >>>> This one is for the forum members especially. > > > > > >>>> > > > > > >>>> Val an diane wrote in a thread before that you should stop anti-depressant pills > > > > > >>>> before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > > > > >>>> about your experience on the subject. > > > > > >>>> > > > > > >>>> > > > > > >>>> When I was first diagnosed with CFS they offcourse told me that taking AD would > > > > > >>>> help to cure the exhastion. Obviously it didn't help. But because the situation > > > > > >>>> of being bedridden for months without forseeable cure was SO terrible for a > > > > > >>>> person like me who used to be completly healthy until then, I took the AD. They > > > > > >>>> never actually helped with the depression but getting off them in my emotionaly > > > > > >>>> unstable situation seemed too risky. So, I am still taking them. But now I > > > > > >>>> learned they can damage the hormonal healing process. So, my questions to you > > > > > >>>> guys are: > > > > > >>>> > > > > > >>>> a) Did you stop taking AD before starting treatment? > > > > > >>>> Do you have any clue from your experience how stopping taking them actually > > > > > >>>> helped your healing? > > > > > >>>> c) Don't you think it is too risky and even maybe a little bit irresponsible to > > > > > >>>> tell a person suffering fron depression, even if the reason is hormonal and not > > > > > >>>> psychiatric, to stop taking AD? > > > > > >>>> > > > > > >>>> > > > > > >>>> And for the mods: can you please explain to me specifically as possible how can > > > > > >>>> taking AD damage the protocol recommanded here? > > > > > >>>> > > > > > >>>> This is the first time since joining this forum that I actually question a > > > > > >>>> medical advice giving here by the mods. I know that the hormonal system and the > > > > > >>>> serotonin system are related, but not that they can't be handeled > > > > > >>>> simultaniously! How much courage you need to tell a person to get off AD while > > > > > >>>> he clearly suffers from depression, I just don't get it. > > > > > >>>> > > > > > >>>> > > > > > >>>> Please your opinions on the subject! > > > > > >>>> > > > > > >>>> > > > > > >>> > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Liz I haven't been on AD's, though every doctor that I saw for six months said that I needed to! I have been using 5HTP for the past few months and that has helped my anxiety, but the depression/lack of motivation is my main probleem, so I decided to try the Sam-e. I'll see how I go. Kat > > > > > > > > This one is for the forum members especially. > > > > > > > > Val an diane wrote in a thread before that you should stop anti-depressant pills > > > > before starting HC and t3 treatment. This one is new to me. I wanted to ask you > > > > about your experience on the subject. > > > > > > > > > > > > When I was first diagnosed with CFS they offcourse told me that taking AD would > > > > help to cure the exhastion. Obviously it didn't help. But because the situation > > > > of being bedridden for months without forseeable cure was SO terrible for a > > > > person like me who used to be completly healthy until then, I took the AD. They > > > > never actually helped with the depression but getting off them in my emotionaly > > > > unstable situation seemed too risky. So, I am still taking them. But now I > > > > learned they can damage the hormonal healing process. So, my questions to you > > > > guys are: > > > > > > > > a) Did you stop taking AD before starting treatment? > > > > Do you have any clue from your experience how stopping taking them actually > > > > helped your healing? > > > > c) Don't you think it is too risky and even maybe a little bit irresponsible to > > > > tell a person suffering fron depression, even if the reason is hormonal and not > > > > psychiatric, to stop taking AD? > > > > > > > > > > > > And for the mods: can you please explain to me specifically as possible how can > > > > taking AD damage the protocol recommanded here? > > > > > > > > This is the first time since joining this forum that I actually question a > > > > medical advice giving here by the mods. I know that the hormonal system and the > > > > serotonin system are related, but not that they can't be handeled > > > > simultaniously! How much courage you need to tell a person to get off AD while > > > > he clearly suffers from depression, I just don't get it. > > > > > > > > > > > > Please your opinions on the subject! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Kat, have you had your testosterone checked? Depression/lack of motivation was low testosterone for me. FWTW Also, this remedy got my husband off an AD (prescribed by an 80 yr. old O.D): take 2x daily: 500 mg Inositol 500 mg Niacinamide If after 2 wks the results are less than good, you can up to 3 times. I think taking a B-100 complex with this also helps, along with a low carb diet, so blood sugar isn't taking big swings. I used to get weepy around periods so I tried them, too. Stopped cold those crying jags over black and white movies. LOL HTH someone.... Irene wrote: > > I haven't been on AD's, though every doctor that I saw for six months said that I needed to! I have been using 5HTP for the past few months and that has helped my anxiety, but the depression/lack of motivation is my main probleem, so I decided to try the Sam-e. I'll see how I go. > > Kat Quote Link to comment Share on other sites More sharing options...
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