Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 Rainbow, I don't know enough about fertility issues, but did the doc say exactly t4 is supposed to help stop the mid cycle spotting? Also, your temps not rising after ovulation suggests to me that your progesterone isn't going high enough after ovulation. The fact that Prometrium tops the bleeding is proof of this. I believe it is the corpus luteum that produces the progesterone. So I don't know how t4 is going to make you produce a corpus luteum. It's true that the thyroid can normalize your ovarian function because when your thyroid isn't right, nothing works right. But I don't see how taking t4 is the answer. t4 only works when and if it converts into t3. T4 itself does absolutely nothing except turn into rt3 if that's your problem and you don't need THAT! When I worked with Dr. Rind, he had me taking pg all month long, but increasing the amount each week of the cycle. He told me he had women take a tiny amount of pg (5 mg topically) during their period to help produce a healthy corpus luteum. I am not sure how you are dosing your progesterone now, but you might want to do those 30 day saliva tests where you test your estrogen and progesterone every single day. Then you can see what's REALLY going on and what you need and when. I know it's expensive, but if I were trying to have a baby in your shoes, tha's what I would do. If you feel well, and I know how hard and long you worked to get there, I personally would not mess with it by taking Synthroid. And if you have a rt3 issue, I wouldn't go onto NTH, either. You need healthy thryoid levels to get pregnant and stay pregnant and have a healthy baby, too. I think this is sex hormone issue and maybe Val can help you on the adrenal forum when it opens next week. Good luck to you! Please hang in there. Kathleen > > I believe I've been optimized on 68.75mg Cynomel for several months now. I'm in the process of weaning off HC/Florinef and feel the best I've felt in YEARS. I've also been supplementing progesterone for about 8 months due to low levels causing a luteal phase defect. But all of a sudden starting two cycles ago, I start spotting 2-3 days after ovulation and the only thing that stops it is Prometrium (prescription progesterone) that I use vaginally. The progesterone cream that I use all cycle long does nothing to stop the spotting. > > Before I was diagnosed with hypothyroidism and started on meds, I bled every two weeks when not on birth control. This started at age 15 and never went away. I also discovered at that time I was not ovulating. As soon as thyroid meds were started (Levoxyl at the time), I began ovulating and the mid-cycle bleeding went away. > > I believe I am still ovulating, as I still get positive ovulation predictor strips and my daily average temps still rise after that time. But my basal temps don't go nearly as high after ovulation as they used to (this began 4 cycles ago) and no longer show a clear shift. > > SO. My doctor has suggested that we add some T4 medication back into my regimen to see if that fixes the issue. If I weren't trying to get pregnant, I'd probably just ignore the issue and go along my merry way since I'm feeling so well. But I am trying...so I need to fix this. > > He's offered to let me choose between adding Levoxyl to my Cynomel or switching to Nature-throid. If Levoxyl, he wants me to start with 25mg and work up to 50mg (not sure how much T3 he wants me to stay on). If Nature-throid, he's written me a script for 65mg and has made no mention of raising that dose. My question is...what would you do in my shoes? For some reason, I'm leaning towards the Levoxyl just so that I can stay on some Cynomel, since that's what I'm used to. Or is that a dumb idea? > > I'm just SO worried that this is going to set me back > > ~Rainbow~ > 30 year old Female 5'6 " 140lbs > Dx: Hashi's, AF, Wheat Sensitivity > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > Potassium 90mEq, Sea Salt 3/4tsp > My Log and Labs: http://tinyurl.com/pvgjmb > My Blog: http://hyporainbow.wordpress.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 I would go with the NT. Levo or any other T4 only meds if just toxic and evil. Boy and if you are trying to get pregnant I would ot touch Levo with a ten foot pole. Diane Advice is not meant to replace your doctor. No one here is a medical professional, just other patients sharing our experiences. http://www.nthadrenalsweb.org/ www.stopthethyroidmadness.com http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/NaturalThyroidHormones/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/NTHA-Chat/ > > I believe I've been optimized on 68.75mg Cynomel for several months now. I'm in the process of weaning off HC/Florinef and feel the best I've felt in YEARS. I've also been supplementing progesterone for about 8 months due to low levels causing a luteal phase defect. But all of a sudden starting two cycles ago, I start spotting 2-3 days after ovulation and the only thing that stops it is Prometrium (prescription progesterone) that I use vaginally. The progesterone cream that I use all cycle long does nothing to stop the spotting. > > Before I was diagnosed with hypothyroidism and started on meds, I bled every two weeks when not on birth control. This started at age 15 and never went away. I also discovered at that time I was not ovulating. As soon as thyroid meds were started (Levoxyl at the time), I began ovulating and the mid-cycle bleeding went away. > > I believe I am still ovulating, as I still get positive ovulation predictor strips and my daily average temps still rise after that time. But my basal temps don't go nearly as high after ovulation as they used to (this began 4 cycles ago) and no longer show a clear shift. > > SO. My doctor has suggested that we add some T4 medication back into my regimen to see if that fixes the issue. If I weren't trying to get pregnant, I'd probably just ignore the issue and go along my merry way since I'm feeling so well. But I am trying...so I need to fix this. > > He's offered to let me choose between adding Levoxyl to my Cynomel or switching to Nature-throid. If Levoxyl, he wants me to start with 25mg and work up to 50mg (not sure how much T3 he wants me to stay on). If Nature-throid, he's written me a script for 65mg and has made no mention of raising that dose. My question is...what would you do in my shoes? For some reason, I'm leaning towards the Levoxyl just so that I can stay on some Cynomel, since that's what I'm used to. Or is that a dumb idea? > > I'm just SO worried that this is going to set me back > > ~Rainbow~ > 30 year old Female 5'6 " 140lbs > Dx: Hashi's, AF, Wheat Sensitivity > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > Potassium 90mEq, Sea Salt 3/4tsp > My Log and Labs: http://tinyurl.com/pvgjmb > My Blog: http://hyporainbow.wordpress.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 why cant you add NT to your cytomel..that is what i take..the combo i mean?Subject: Re: T4 to stop mid-cycle bleeding?To: RT3_T3 Date: Monday, August 23, 2010, 7:23 PM I would go with the NT. Levo or any other T4 only meds if just toxic and evil. Boy and if you are trying to get pregnant I would ot touch Levo with a ten foot pole. Diane Advice is not meant to replace your doctor. No one here is a medical professional, just other patients sharing our experiences. http://www.nthadrenalsweb.org/ www.stopthethyroidmadness.com http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/NaturalThyroidHormones/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/NTHA-Chat/ > > I believe I've been optimized on 68.75mg Cynomel for several months now. I'm in the process of weaning off HC/Florinef and feel the best I've felt in YEARS. I've also been supplementing progesterone for about 8 months due to low levels causing a luteal phase defect. But all of a sudden starting two cycles ago, I start spotting 2-3 days after ovulation and the only thing that stops it is Prometrium (prescription progesterone) that I use vaginally. The progesterone cream that I use all cycle long does nothing to stop the spotting. > > Before I was diagnosed with hypothyroidism and started on meds, I bled every two weeks when not on birth control. This started at age 15 and never went away. I also discovered at that time I was not ovulating. As soon as thyroid meds were started (Levoxyl at the time), I began ovulating and the mid-cycle bleeding went away. > > I believe I am still ovulating, as I still get positive ovulation predictor strips and my daily average temps still rise after that time. But my basal temps don't go nearly as high after ovulation as they used to (this began 4 cycles ago) and no longer show a clear shift. > > SO. My doctor has suggested that we add some T4 medication back into my regimen to see if that fixes the issue. If I weren't trying to get pregnant, I'd probably just ignore the issue and go along my merry way since I'm feeling so well. But I am trying...so I need to fix this. > > He's offered to let me choose between adding Levoxyl to my Cynomel or switching to Nature-throid. If Levoxyl, he wants me to start with 25mg and work up to 50mg (not sure how much T3 he wants me to stay on). If Nature-throid, he's written me a script for 65mg and has made no mention of raising that dose. My question is...what would you do in my shoes? For some reason, I'm leaning towards the Levoxyl just so that I can stay on some Cynomel, since that's what I'm used to. Or is that a dumb idea? > > I'm just SO worried that this is going to set me back > > ~Rainbow~ > 30 year old Female 5'6" 140lbs > Dx: Hashi's, AF, Wheat Sensitivity > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > Potassium 90mEq, Sea Salt 3/4tsp > My Log and Labs: http://tinyurl.com/pvgjmb > My Blog: http://hyporainbow.wordpress.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 Sorry to interrupt this thread, but why is levoxyl considered to be toxic? Because it is synthetic? Isn't cytomel synthetic also? I always get confused about this, and I am trying to add T4 back in to my regimen, also, so I want to get the facts Thanks Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 I don't know why. All I know is every time they try to put T4 back into my meds I get sick. I feel much better on the T3 only, except till I get the dose where it belongs I get tired in the afternoon. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> Subject: Re: T4 to stop mid-cycle bleeding?To: RT3_T3 Date: Monday, August 23, 2010, 11:05 PM Sorry to interrupt this thread, but why is levoxyl considered to be toxic? Because it is synthetic? Isn't cytomel synthetic also? I always get confused about this, and I am trying to add T4 back in to my regimen, also, so I want to get the factsThanksLiz------------------------------------We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 Thanks for the responses!! Can someone remind me how many grains 65mg of NT is equal to? And how much T3 I would be getting from that dose? Dawn - That's a good idea. I keep forgetting that you can take T3 with NT too Diane - That's what I was thinking...but needed to hear it again Kathleen - I don't understand his thinking either. He never explained why he thought T4 was the answer. And he had talked about adding in T4 at my last appt before he knew about this spotting issue...so it almost came across as an excuse to put me on it. The only benefit I can think of is to constantly keep some thyroid hormone in my system. I can't take T3 at bedtime because it causes insomnia, so I'm having to dose only 3 times a day. Perhaps at night I'm " running out " and that's causing some issues. He's currently got me taking 40mg P cream all cycle long and 100mg P vaginally starting 4 days after ovulation until menses begins. I tried 200mg capsules previously and it was obviously too much, because it delayed menstruation. But even a too high dose didn't raise my temps...so it's hard for me to blame this on low progesterone. It's been just over a year since I switched to T3 only and have made a lot of progress in that time...so hopefully whatever caused my RT3 issue in the past is long gone. But if I do this, I'll definitely keep an eye on that to make sure it doesn't return. ~Rainbow~ 30 year old Female 5'6 " 140lbs Dx: Hashi's, AF, Wheat Sensitivity Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com > > > > I believe I've been optimized on 68.75mg Cynomel for several months now. I'm in the process of weaning off HC/Florinef and feel the best I've felt in YEARS. I've also been supplementing progesterone for about 8 months due to low levels causing a luteal phase defect. But all of a sudden starting two cycles ago, I start spotting 2-3 days after ovulation and the only thing that stops it is Prometrium (prescription progesterone) that I use vaginally. The progesterone cream that I use all cycle long does nothing to stop the spotting. > > > > Before I was diagnosed with hypothyroidism and started on meds, I bled every two weeks when not on birth control. This started at age 15 and never went away. I also discovered at that time I was not ovulating. As soon as thyroid meds were started (Levoxyl at the time), I began ovulating and the mid-cycle bleeding went away. > > > > I believe I am still ovulating, as I still get positive ovulation predictor strips and my daily average temps still rise after that time. But my basal temps don't go nearly as high after ovulation as they used to (this began 4 cycles ago) and no longer show a clear shift. > > > > SO. My doctor has suggested that we add some T4 medication back into my regimen to see if that fixes the issue. If I weren't trying to get pregnant, I'd probably just ignore the issue and go along my merry way since I'm feeling so well. But I am trying...so I need to fix this. > > > > He's offered to let me choose between adding Levoxyl to my Cynomel or switching to Nature-throid. If Levoxyl, he wants me to start with 25mg and work up to 50mg (not sure how much T3 he wants me to stay on). If Nature-throid, he's written me a script for 65mg and has made no mention of raising that dose. My question is...what would you do in my shoes? For some reason, I'm leaning towards the Levoxyl just so that I can stay on some Cynomel, since that's what I'm used to. Or is that a dumb idea? > > > > I'm just SO worried that this is going to set me back > > > > ~Rainbow~ > > 30 year old Female 5'6 " 140lbs > > Dx: Hashi's, AF, Wheat Sensitivity > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > Potassium 90mEq, Sea Salt 3/4tsp > > My Log and Labs: http://tinyurl.com/pvgjmb > > My Blog: http://hyporainbow.wordpress.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 65 mg of NT is one grain. Here's a link to a grains-to-mg converter: http://www.unitconversion.org/weight/grains-to-milligrams-conversion.html As far as how much T3 is in 1 grain of NT, Moderator Nick's website says: The Desiccated Thyroid meds all contain 9mcg of T3 per grain http://www.thyroid-rt3.com/starting1.htm > > > > > > I believe I've been optimized on 68.75mg Cynomel for several months now. I'm in the process of weaning off HC/Florinef and feel the best I've felt in YEARS. I've also been supplementing progesterone for about 8 months due to low levels causing a luteal phase defect. But all of a sudden starting two cycles ago, I start spotting 2-3 days after ovulation and the only thing that stops it is Prometrium (prescription progesterone) that I use vaginally. The progesterone cream that I use all cycle long does nothing to stop the spotting. > > > > > > Before I was diagnosed with hypothyroidism and started on meds, I bled every two weeks when not on birth control. This started at age 15 and never went away. I also discovered at that time I was not ovulating. As soon as thyroid meds were started (Levoxyl at the time), I began ovulating and the mid-cycle bleeding went away. > > > > > > I believe I am still ovulating, as I still get positive ovulation predictor strips and my daily average temps still rise after that time. But my basal temps don't go nearly as high after ovulation as they used to (this began 4 cycles ago) and no longer show a clear shift. > > > > > > SO. My doctor has suggested that we add some T4 medication back into my regimen to see if that fixes the issue. If I weren't trying to get pregnant, I'd probably just ignore the issue and go along my merry way since I'm feeling so well. But I am trying...so I need to fix this. > > > > > > He's offered to let me choose between adding Levoxyl to my Cynomel or switching to Nature-throid. If Levoxyl, he wants me to start with 25mg and work up to 50mg (not sure how much T3 he wants me to stay on). If Nature-throid, he's written me a script for 65mg and has made no mention of raising that dose. My question is...what would you do in my shoes? For some reason, I'm leaning towards the Levoxyl just so that I can stay on some Cynomel, since that's what I'm used to. Or is that a dumb idea? > > > > > > I'm just SO worried that this is going to set me back > > > > > > ~Rainbow~ > > > 30 year old Female 5'6 " 140lbs > > > Dx: Hashi's, AF, Wheat Sensitivity > > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > > Potassium 90mEq, Sea Salt 3/4tsp > > > My Log and Labs: http://tinyurl.com/pvgjmb > > > My Blog: http://hyporainbow.wordpress.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 > 65 mg of NT is one grain. Here's a link to a grains-to-mg converter: > http://www.unitconversion.org/weight/grains-to-milligrams-conversion.html > As far as how much T3 is in 1 grain of NT, Moderator Nick's > website says: > The Desiccated Thyroid meds all contain 9mcg of T3 per grain > http://www.thyroid-rt3.com/starting1.htm Thanks Margery!! But boy, that's a big drop from what I'm currently taking. I looked back through my notes and saw that there are 38mcg of T4 in one grain, but the body only converts about 80% of that to T3...so say 30mcg + 9mcg = only 39mcg of T3, whereas I'm currently taking 68.75mcg. That's quite a drop! I put a call in to the doc just to make sure that wasn't a mistake...or at least to see if he agrees with me staying on some Cynomel with that dose. ~Rainbow~ 30 year old Female 5'6 " 140lbs Dx: Hashi's, AF, Wheat Sensitivity Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 Hi Rainbow, Yes, it does sound like an excuse to put you on some t4. ;-) Then again, IF you don't have rt3 issues, I do think NTH is better and more natural for the body than t3 only. It's what the body would do if it could and you make t3 as you need it. I don't know your situation or why you had to go onto t3 only. It just seems that most, though certainly not all, people with rt3 problems can never go back to NTH. I've seen them try. But you're young and can try and you can always go back to t3 only again if you have to. I would really keep an eye though on your temps, labs, everything to nip the rt3 in the bud if it does start to happen. Have you considered doing the 30 day saliva test to see EXACTLY what's going on with your hormones? Maybe that would help with the fertility issue. Kathleen > > > > > > I believe I've been optimized on 68.75mg Cynomel for several months now. I'm in the process of weaning off HC/Florinef and feel the best I've felt in YEARS. I've also been supplementing progesterone for about 8 months due to low levels causing a luteal phase defect. But all of a sudden starting two cycles ago, I start spotting 2-3 days after ovulation and the only thing that stops it is Prometrium (prescription progesterone) that I use vaginally. The progesterone cream that I use all cycle long does nothing to stop the spotting. > > > > > > Before I was diagnosed with hypothyroidism and started on meds, I bled every two weeks when not on birth control. This started at age 15 and never went away. I also discovered at that time I was not ovulating. As soon as thyroid meds were started (Levoxyl at the time), I began ovulating and the mid-cycle bleeding went away. > > > > > > I believe I am still ovulating, as I still get positive ovulation predictor strips and my daily average temps still rise after that time. But my basal temps don't go nearly as high after ovulation as they used to (this began 4 cycles ago) and no longer show a clear shift. > > > > > > SO. My doctor has suggested that we add some T4 medication back into my regimen to see if that fixes the issue. If I weren't trying to get pregnant, I'd probably just ignore the issue and go along my merry way since I'm feeling so well. But I am trying...so I need to fix this. > > > > > > He's offered to let me choose between adding Levoxyl to my Cynomel or switching to Nature-throid. If Levoxyl, he wants me to start with 25mg and work up to 50mg (not sure how much T3 he wants me to stay on). If Nature-throid, he's written me a script for 65mg and has made no mention of raising that dose. My question is...what would you do in my shoes? For some reason, I'm leaning towards the Levoxyl just so that I can stay on some Cynomel, since that's what I'm used to. Or is that a dumb idea? > > > > > > I'm just SO worried that this is going to set me back > > > > > > ~Rainbow~ > > > 30 year old Female 5'6 " 140lbs > > > Dx: Hashi's, AF, Wheat Sensitivity > > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > > Potassium 90mEq, Sea Salt 3/4tsp > > > My Log and Labs: http://tinyurl.com/pvgjmb > > > My Blog: http://hyporainbow.wordpress.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 That does sound like a big decrease. Also, there is a question whether the T4 will get properly converted to T3...if not, it's an even bigger decrease. > > > 65 mg of NT is one grain. Here's a link to a grains-to-mg converter: > > http://www.unitconversion.org/weight/grains-to-milligrams-conversion.html > > As far as how much T3 is in 1 grain of NT, Moderator Nick's > > website says: > > The Desiccated Thyroid meds all contain 9mcg of T3 per grain > > http://www.thyroid-rt3.com/starting1.htm > > Thanks Margery!! But boy, that's a big drop from what I'm currently taking. I looked back through my notes and saw that there are 38mcg of T4 in one grain, but the body only converts about 80% of that to T3...so say 30mcg + 9mcg = only 39mcg of T3, whereas I'm currently taking 68.75mcg. That's quite a drop! I put a call in to the doc just to make sure that wasn't a mistake...or at least to see if he agrees with me staying on some Cynomel with that dose. > > ~Rainbow~ > 30 year old Female 5'6 " 140lbs > Dx: Hashi's, AF, Wheat Sensitivity > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > Potassium 90mEq, Sea Salt 3/4tsp > My Log and Labs: http://tinyurl.com/pvgjmb > My Blog: http://hyporainbow.wordpress.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 > That does sound like a big decrease. Also, there is a question > whether the T4 will get properly converted to T3...if not, it's an > even bigger decrease. True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed ~Rainbow~ 30 year old Female 5'6 " 140lbs Dx: Hashi's, AF, Wheat Sensitivity Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 > That does sound like a big decrease. Also, there is a question > whether the T4 will get properly converted to T3...if not, it's an > even bigger decrease. True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed ~Rainbow~ 30 year old Female 5'6 " 140lbs Dx: Hashi's, AF, Wheat Sensitivity Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 > That does sound like a big decrease. Also, there is a question > whether the T4 will get properly converted to T3...if not, it's an > even bigger decrease. True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed ~Rainbow~ 30 year old Female 5'6 " 140lbs Dx: Hashi's, AF, Wheat Sensitivity Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2010 Report Share Posted August 25, 2010 Checking labs at 5 week intervals on NT sounds sensible, I believe it takes that long for NT to stabilize and for the labs to be accurate. I hope this goes really well for you! > > > That does sound like a big decrease. Also, there is a question > > whether the T4 will get properly converted to T3...if not, it's an > > even bigger decrease. > > True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so > > I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring > > I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. > > And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. > > Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed > > ~Rainbow~ > 30 year old Female 5'6 " 140lbs > Dx: Hashi's, AF, Wheat Sensitivity > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > Potassium 90mEq, Sea Salt 3/4tsp > My Log and Labs: http://tinyurl.com/pvgjmb > My Blog: http://hyporainbow.wordpress.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2010 Report Share Posted August 25, 2010 Rainbow, if it were me, I'd want to start on a dose NT that equates to the amount of t3 you are currently taking. Otherwise, even if the r4 converts perfectly, you're still going to be on way less thyroid meds than you are now -- and will end up hypo and losing ground. :-( Can't you get the doc to let you start at an equivalent dose? Remember, all the t3 you are taking right will be out of your system within 3 days once you make the switch. He seems pretty open minded. NO, he may not listen to the saliva test, but YOU would know. I had a girfriend who was trying to get pregnant and she said it got to the point that SHE was making suggestions to the doc on what to try! :-) So you could make suggestions based on the results of your 30 day saliva test if things weren't going well in the fertility department and he wouldn't have to know you were getting your ideas from a saliva test. You could just say " Well, I was doing some research and I found... " Kathleen > > > > > That does sound like a big decrease. Also, there is a question > > > whether the T4 will get properly converted to T3...if not, it's an > > > even bigger decrease. > > > > True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so > > > > I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring > > > > I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. > > > > And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. > > > > Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed > > > > ~Rainbow~ > > 30 year old Female 5'6 " 140lbs > > Dx: Hashi's, AF, Wheat Sensitivity > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > Potassium 90mEq, Sea Salt 3/4tsp > > My Log and Labs: http://tinyurl.com/pvgjmb > > My Blog: http://hyporainbow.wordpress.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 That was my thought too. I hate to bug him again, but I'm getting pretty worried about this. Especially since my weight is already going up, and I've only dropped 12.5mcg T3 so far since adding in the 1 grain NT. I'm also confused about where to go from here. I've read Nick's technique for swapping over: http://thyroid-rt3.com/swapping.htm So during this first week, I've started the 65mg NT and dropped 12.5mcg T3. Then on the second week I plan to drop another 12.5mcg T3. But I'm confused about what comes next. After that point, since I don't have any more NT to add in, should I continue to drop 12.5mcg T3 per week until I'm only on the 65mg NT? If I do, I will have only been on the 65mg NT by itself for a week before we run new labs. Will those labs be accurate? I was a bit surprised to read that you should add more NT after just 2 weeks, as I'd always heard that it takes 4-6 weeks for an NT dosage change to fully take effect. Is that not the case? ~Rainbow~ 30 year old Female 5'6 " 144lbs Dx: Hashi's, Adrenal Insufficiency Rx/OTC: Naturethroid 1 grain, Cynomel 56.25mcg, HC 10mg, Florinef 1/2tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com > > > > > > > That does sound like a big decrease. Also, there is a question > > > > whether the T4 will get properly converted to T3...if not, it's an > > > > even bigger decrease. > > > > > > True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so > > > > > > I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring > > > > > > I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. > > > > > > And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. > > > > > > Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed > > > > > > ~Rainbow~ > > > 30 year old Female 5'6 " 140lbs > > > Dx: Hashi's, AF, Wheat Sensitivity > > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > > Potassium 90mEq, Sea Salt 3/4tsp > > > My Log and Labs: http://tinyurl.com/pvgjmb > > > My Blog: http://hyporainbow.wordpress.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Unfortunately, I don't know a whole lot about NTH as I don't convert at all and haven't taken it for years. But I can imagine you MAY indeed feel hypo for a few weeks (or gain weight) because even if you make an even swap of NTH to equate to the amount of t3 you were taking, you're right that it takes several weeks for the t4 to build and start to fully convert. I guess that's the reason for the gradual swap, so that you don't lose ALL your t3 while your're waiting for the t4 to start converting. I also thought it took more like 4 weeks for t4 to build up and convert, so I " m not sure either about the 2 week suggestion. Perhaps bump this to Nick directly? Or just start a new thread entirely on the swapping over process. Maybe you need to stay on more t3 until the t4 builds up. I have no idea, unfortunately! Kathleen > > > > > > > > > That does sound like a big decrease. Also, there is a question > > > > > whether the T4 will get properly converted to T3...if not, it's an > > > > > even bigger decrease. > > > > > > > > True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so > > > > > > > > I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring > > > > > > > > I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. > > > > > > > > And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. > > > > > > > > Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed > > > > > > > > ~Rainbow~ > > > > 30 year old Female 5'6 " 140lbs > > > > Dx: Hashi's, AF, Wheat Sensitivity > > > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > > > Potassium 90mEq, Sea Salt 3/4tsp > > > > My Log and Labs: http://tinyurl.com/pvgjmb > > > > My Blog: http://hyporainbow.wordpress.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Unfortunately, I don't know a whole lot about NTH as I don't convert at all and haven't taken it for years. But I can imagine you MAY indeed feel hypo for a few weeks (or gain weight) because even if you make an even swap of NTH to equate to the amount of t3 you were taking, you're right that it takes several weeks for the t4 to build and start to fully convert. I guess that's the reason for the gradual swap, so that you don't lose ALL your t3 while your're waiting for the t4 to start converting. I also thought it took more like 4 weeks for t4 to build up and convert, so I " m not sure either about the 2 week suggestion. Perhaps bump this to Nick directly? Or just start a new thread entirely on the swapping over process. Maybe you need to stay on more t3 until the t4 builds up. I have no idea, unfortunately! Kathleen > > > > > > > > > That does sound like a big decrease. Also, there is a question > > > > > whether the T4 will get properly converted to T3...if not, it's an > > > > > even bigger decrease. > > > > > > > > True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so > > > > > > > > I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring > > > > > > > > I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. > > > > > > > > And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. > > > > > > > > Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed > > > > > > > > ~Rainbow~ > > > > 30 year old Female 5'6 " 140lbs > > > > Dx: Hashi's, AF, Wheat Sensitivity > > > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > > > Potassium 90mEq, Sea Salt 3/4tsp > > > > My Log and Labs: http://tinyurl.com/pvgjmb > > > > My Blog: http://hyporainbow.wordpress.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Unfortunately, I don't know a whole lot about NTH as I don't convert at all and haven't taken it for years. But I can imagine you MAY indeed feel hypo for a few weeks (or gain weight) because even if you make an even swap of NTH to equate to the amount of t3 you were taking, you're right that it takes several weeks for the t4 to build and start to fully convert. I guess that's the reason for the gradual swap, so that you don't lose ALL your t3 while your're waiting for the t4 to start converting. I also thought it took more like 4 weeks for t4 to build up and convert, so I " m not sure either about the 2 week suggestion. Perhaps bump this to Nick directly? Or just start a new thread entirely on the swapping over process. Maybe you need to stay on more t3 until the t4 builds up. I have no idea, unfortunately! Kathleen > > > > > > > > > That does sound like a big decrease. Also, there is a question > > > > > whether the T4 will get properly converted to T3...if not, it's an > > > > > even bigger decrease. > > > > > > > > True. But thankfully I got a call back from his nurse and apparently the 65mg NT is only a starting dose. He plans to recheck my labs in 5 weeks on that dose and then increase if needed from there. Of course, if I feel worse during that 5 weeks I won't hesitate to call and tell him so > > > > > > > > I've been jaded by so many doctors in the past, it's tough for me to put my trust in a good one! But so far he's been pretty awesome, so I'll give his suggestions a shot. If it doesn't work, I can always go back to what I'm currently doing. I don't seem to be nearly as " fragile " as I used to be. When I have a set back these days, it typically lasts a week or less...not weeks or months like it used to. That alone is very reassuring > > > > > > > > I'll definitely keep an eye on my RT3/FT3 ratio to make sure it doesn't get out of hand. I'm not sure if this doctor is familiar with RT3 dominance, but if not I'll try to help him understand it and keep an eye on it too. > > > > > > > > And no doctor I've ever been to has put any stock in saliva testing for sex hormones. They've all told me that serum is the way to go...so it appears a 30 day saliva test would be a waste of time. Even if it showed something, no doctor would take it seriously. I'm sure you know how it goes. > > > > > > > > Here's hoping my pharmacy can fill the script and the switch goes well! Keep those fingers crossed > > > > > > > > ~Rainbow~ > > > > 30 year old Female 5'6 " 140lbs > > > > Dx: Hashi's, AF, Wheat Sensitivity > > > > Rx/OTC: Cynomel 68.75mcg, HC 12.5mg, Florinef 1/2tab, > > > > Potassium 90mEq, Sea Salt 3/4tsp > > > > My Log and Labs: http://tinyurl.com/pvgjmb > > > > My Blog: http://hyporainbow.wordpress.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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