Re: Hemochromatosis people on here

[Guest guest]

I also have HH and recently diagnosed. The Dr wants Ferritin down to 20. After

4 phlebs, I went into a horrible spell. Complete exhaustion, Lowered body

temps, and brain fog! In desperation, I increased my HC a little and it seemed

to help some.

My question is: We need Ferritin up for Thyroid, but as HH patients, we need

the Ferritin down. What are we to do????

Lethal Lee - do you try to keep your Ferritin about 50?

For now, I'm not doing my phleb this week and trying to feel better.

> > >

> > > I have hemochromatosis and I get phlebotomies. Question for anyone on here

with iron overload. My hematologist wants my ferritin below 50. Well, it is at

25 before a phlebotomy now, so it is way lower than that.

> > > I am sure that it is causing my reverse t3 problem. From what I have read,

ferritin should be above 50 and preferably for thyroid patients.

> > > Why would it need to be below 50 for someone with hemochromatosis, and

where did they come up with that number? Does anyone know? or was that number

drawn out of a hat?

> > >

> >

>

[Guest guest]

" Lethal Lee - do you try to keep your Ferritin about 50? "

Yep in fact I get definite worsening of symptoms (joint & muscle pain in

particular, increasing fatigue, headaches, irritabilty) when Ferritin is OVER

50.

I have never had ANY intolerance to any Thyroid meds NTH or T3.

Just didn't resolve my Hypo until I cleared Rt3.

Interestingly I have been able to really stretch the time between phlebs by

having everything optimised, taking ALA, lots of Milk Thistle & other Liver

support, lots of active B Vits (I read B6 in particular regulates Iron

metabolism), no Vit C supps,etc

Lethal Lee

> > > >

> > > > I have hemochromatosis and I get phlebotomies. Question for anyone on

here with iron overload. My hematologist wants my ferritin below 50. Well, it

is at 25 before a phlebotomy now, so it is way lower than that.

> > > > I am sure that it is causing my reverse t3 problem. From what I have

read, ferritin should be above 50 and preferably for thyroid patients.

> > > > Why would it need to be below 50 for someone with hemochromatosis, and

where did they come up with that number? Does anyone know? or was that number

drawn out of a hat?

> > > >

> > >

> >

>