Re: new to group (miscarriage mentioned)

[Guest guest]

hello rachel

i'm sorry about your losses - i had 2 mc and 1 chemical pg and i

know how devastating they are

i too was [mis]diagnosed as having a BU (10 yrs ago, by u/s) - 4 yrs

ago i had a son born at 33 weeks due to placental abruption - no dr

ever made a connection between my anomaly and my son's birth - i had

a mc last 6/04 and another one on 1/05 - i got tested for a bunch of

things and everything was OK - i went to see a Reproductive

endocrinologist (RE) and after a HSG in 2/05 and a

laparoscopy/hysteroscopy (3/05) i finally was correctly diagnosed as

having a SU = septate uterus - i was 'fixed' that same day

(resection). i then had to wait 2 months to ttc again and we tried

in June - this time i had a chemical pg but i think it was due to my

being 38 so we'll see how things go from here ....

anyway, i wanted to tell you my story so that you see that sometimes

drs refer to our anomalies with 'catch-all' terms - i was always

told i had a BU and even the dr who performed my son's c/sec and SAW

my uterus wrote in the report i was BU - i needed to have the

lap/hyst to correctly diagnose my SU ..... many women in this group

have been misdiagnosed - even some have been told they were UDs or

UUs and ended up SUs too .....

so my 1st question is = are you sure you're BU? how were you

diagnosed? all over this site it says that the gold standard for

diagnosis (BU/SU) is lap/hyst (outpatient surgery) -

then, to my knowledge, SUs are related to mc and BUs tend to have

other issues like preterm labor and maybe growth restriction - of

course depending on the characteristics (lenght, thickness,

composition) of your septum it can be hard for a baby to grow much

or move later in the pg - my son developed OK but he was breech - my

septum was taking 70% of the room in my uterus .....

my experience has been that [most] regular OBs don't have a clue

about this - i still can't forgive the 3 or 4 i've seen through the

years who didn't even ask me to have a HSG to verify if i was BU or

SU or what ... no OB i've seen ever thought of looking at my uterus

not even after my 2nd mc ..... so if you have a chance i would see a

RE -

as for fertility, i don't think SU or BU affect it - at least that's

what my RE told me .... so even if you were BU, as long as you have

your tubes open and your ovaries in place i think you should

conceive within the usual number of months given your age .... the

HSG can also show if your tubes are open so maybe that's another

reason to have the test ....

just like you and me there are plenty of women here who've had even

full term babies with SUs and/or BUs - my pg was completely normal

and i never had any issues until i started bleeding the day he was

born .... i guess it all depends on how comfortable you are carrying

another pg and knowing you have a MA .....

by the way most SUs can be fixed fairly easily (with the

lap/hyst/resection) and in general surgery for BU is not recommended

because it's a lot more invasive - with BU i think you need to be

watched more often just to make sure you don;t go into PTL ....

i hope i haven't scared you and i also hope you can find the

answers you need so that you can have another good pg and a 2nd baby

if you want to get details about the surgery please let me know - i

have a blob that i can send you

good luck!

gabi

redmond - WA

[Guest guest]

,

I too have a BU with a septum. Also, as you will discover from this group,

perhaps your doctor has misdiagnosed your Uterine Anomalie. With a BU, you

are more at risk for pre-term labor not miscarriage. Perhaps you are septate

uterus. With a septate uterus you are more at risk for miscarriage. In my

case, I always got pregnant but I gave birth with my DD at 27 weeks. I had

my DS fullterm but had a placental abruption....due to the irregular uterus.

My doctor also took my condition lightly....look what happened to me. You

need to treated as high-risk!

>

>Reply-To: MullerianAnomalies

>To: MullerianAnomalies

>Subject: new to group (miscarriage mentioned)

>Date: Wed, 06 Jul 2005 03:21:43 -0000

>

>Hello ladies,

> I searched for this group because I'm interested in learning more

>about my bicornuate uterus and hearing of others' experiences,

>etc...

>

>I was diagnosed during my 2nd pregnancy early on. My 1st preg

>occurred about 1 month after I was married (23 at the time) and I was

>having mixed feelings with it happening so soon. Right when I

>started to get excited, I began light spotting, and around 10 weeks I

>miscarried followed by a D&C. After 9 months of trying I became

>pregnant again (both times in July right after I saw my Gyno...I told

>him he made me fertile, lol), and requested an ultrasound early on to

>see the heartbeat and help me to put my mind at ease. The doc

>noticed my bicornuate uterus at that point, and really didn't tell me

>much about it other than that depending on where the pregnancy is can

>sometimes cause problems, and explained to me how the shape is

>different from a regular uterus. I think I was so focused on seeing

>the heartbeat and staying positive that I didn't even think to

>research the condition, which was probably a much-needed blessing.

>

>I went on to have a very normal, albeit oblivious, pregnancy and

>delivered my ds in April of 04. I had a very long delivery, because

>I had to stay in bed as the baby's heartrate kept dropping, so my

>cervix dilated very slowly. After 3 hours of pushing, I delivered a

>healthy 8.5 pound, 21.5 inch little boy with torticollis to the right

>side of his neck. We did some therapy, and he straightened out with

>very few health issues since.

>

>This past May I started feeling pregnant, so I took an HPT and

>surprise, we were pregnant again! We really weren't planning on

>trying again until next year, but were thrilled and starting

>planning. (I was only about 4 weeks when I took the test...right

>when my period was due). Around 2 weeks later I started spotting,

>had an ultrasound that day and my uterus was empty, had HCG levels

>pulled twice for the 48 hour test, and they dropped from 188 to 105.

>I started doing research about my uterus, and felt like I had a lot

>of answers and and significant feeling of guilt taken away.

>

>I now think my uterus is probably the reason for my 2 miscarriages,

>and for my poor baby having the torticollis he had. And I wondered,

>should my doctor have let me go a week overdue? I mean is it a

>better idea to induce right on the due date for women with this

>abnormality? Does it usually take women w/bu longer to conceive?

>And should I be utterly ticked at my doctor for not filling me in on

>this info himself? I sort of am already...part of me thinks he

>didn't tell me while I was pregnant w/ds to keep me from obsessing

>about it, which makes sense, but still makes me wish he had told me.

>

>Either way, I'm thankful for my son, and am convinced I will be able

>to have another baby, but am not sure what to do with the limited

>info I have.

>

>Oh yeah, my name is , and I'm from Ohio, the Cincy area

>

>

>

>

>

>

>Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/

>

>Share files:

>http://groups.yahoo.com/group/MullerianAnomalies/files/

>

>The Congenital Uterine Anomalies Home Page:

>http://www.wegrokit.com/uterineanomalies/

>

>

>

>es/

>

>The Congenital Uterine Anomalies Home Page:

>http://www.wegrokit.com/uterineanomalies/

>

>

>

>

>

[Guest guest]

,

I am also Bu, and my son also had toricollis!! (right side!) I was

convinced it was b/c he was smooshed and on the right side (his right

ear was also folded over when he was born, its fine now)

I had a m/c after ds(born 6-02) then had dd 11-04- she ws breech the

whole preg and was delivered via c-sect-

a lot of Bus are mis dx--- you may actually be SU- Bu is not usually

associated with 1st tri loss, although SU is- my loss was chromosomal

(they tested the fetus)- I was dx by HSG, then MRI-- I am pretty sure

by u/s is not conclusive- I am Bu with a large septum, so it is almost

like an Su in some ways--- if the fetus implants on the septum of an

SU, there is generally not enough blood flow to sustain, I think with

Bu this is not tru-- all 3 of my preg were on the outside wall--- ds

and dd on the right, the m/c on the left..... I would maybe make sure

you have a bu before proceeding with ttc----

good luck!

J/ BU

[Guest guest]

Hi ,

I'll try to address your questions if I can, but first I'd like to

repeat what I think someone has already mentionned: you cannot tell

from an u/s if your uterine anomaly is BU or SU. Uterine anomalies (or

MAs) are frequently misdiagnosed. You need to see a reproductive

endocronologist (RE) to get a proper dx - usually after a lap/hyst, a

minor surgical procedure. Sometimes MAs can be dx from an MRI, but the

lap/hyst is the gold standard.

So, you could be BU or SU. The good news about BU is that it is not

normally associated with a significantly higher m/c rate. Like other

MAs, however, women with BUs are at higher risk of cervical weakness

(IC), growth restriction, pre-term labour, etc. BUs are generally not

corrected surgically. The bad news with SU: very high miscarriage

rate, depending on the study you read anywhere from 35%-70+%

miscarriage rate. The good news, an SU can be corrected relatively

easily during your lap/hyst and pregnancies are near-normal after a

successful correction of an SU.

The medicial community seems to think that there is NO connection

between MAs and infertility, although some women on this board may

disagree.

In your case, the fact that you've had a successful pregnancy and gone

full term is a great sign that your uterus can handle the baby and not

go through PTL, growth restrictions, IC, etc. However, the SU *may*

have been the cause of your miscarriages. As I mentionned initially,

you should get a definitive dx of BU or SU and then decide if you want

to have the SU corrected (have the septum removed) surgically. The

overwhelming majority of SU women on this board have had the setpum

removed during a lap/hyst - simple day surgery, quick recovery, can

ttc again within two months of the surgery.

Good luck, please feel free to ask any more questions.

Cheers,

a

SU

DD Zoya almost 1 year old

[Guest guest]

Okay i have a few questions, first of all thou, thanks for the

info...my doc's arent helping at all.

Can i go to that RE person while im preg?? See i am only 19, i got

married at 17, young i know, and we dont have insurance right now,

im on medicaid. which i will be off of it 6wks after the baby...im

hoping by then, my Dh will have full time at the Post office and

have insurance. so what can i do?> this is all new to me the

insurance mess, ive been on my parents forever and now we have money

problems and i just dnt know if we can afford all that, but it would

be GREAT if i could have that while im preg so medicaid will pay for

it because~after my first trimester bed rest, they wouldnt let me go

back to work, thus the medicaid...because we are having it

ruff...where could i find an RE at? SOrry to ask so much, this is

just new to me!!!

29wks

> Hi ,

> I'll try to address your questions if I can, but first I'd like to

> repeat what I think someone has already mentionned: you cannot tell

> from an u/s if your uterine anomaly is BU or SU. Uterine anomalies

(or

> MAs) are frequently misdiagnosed. You need to see a reproductive

> endocronologist (RE) to get a proper dx - usually after a

lap/hyst, a

> minor surgical procedure. Sometimes MAs can be dx from an MRI, but

the

> lap/hyst is the gold standard.

>

> So, you could be BU or SU. The good news about BU is that it is not

> normally associated with a significantly higher m/c rate. Like

other

> MAs, however, women with BUs are at higher risk of cervical

weakness

> (IC), growth restriction, pre-term labour, etc. BUs are generally

not

> corrected surgically. The bad news with SU: very high miscarriage

> rate, depending on the study you read anywhere from 35%-70+%

> miscarriage rate. The good news, an SU can be corrected relatively

> easily during your lap/hyst and pregnancies are near-normal after a

> successful correction of an SU.

>

> The medicial community seems to think that there is NO connection

> between MAs and infertility, although some women on this board may

> disagree.

>

> In your case, the fact that you've had a successful pregnancy and

gone

> full term is a great sign that your uterus can handle the baby and

not

> go through PTL, growth restrictions, IC, etc. However, the SU *may*

> have been the cause of your miscarriages. As I mentionned

initially,

> you should get a definitive dx of BU or SU and then decide if you

want

> to have the SU corrected (have the septum removed) surgically. The

> overwhelming majority of SU women on this board have had the setpum

> removed during a lap/hyst - simple day surgery, quick recovery, can

> ttc again within two months of the surgery.

>

> Good luck, please feel free to ask any more questions.

>

> Cheers,

> a

> SU

> DD Zoya almost 1 year old