Re: Not Sure what I have! (pg mc child ment)

December 28, 2005

hi darleen

i'm gabi, 38, former SU - i'm sorry about your bad experiences with

drs - i hope you can find a good OB or reproductive endocrinologist

that can give you the right diagnosis and operate on you if that's

recommended -

i didn't have a vaginal septum, just a uterine one but i was

misdiagnosed when i was about 28 years old and the dr told me i had

a BU (bicornuate) and not to worry about it -

i did not worry and i was was EXTRA lucky and had my first (and only

so far) son at 34 in 2001 - he was born at 33 weeks because i had a

placental abruption - after a c/sec and a scary 3 week stay at the

hospital we were back home and he just turned 4 last july -

in 6/04 and 1/05 i had 2 miscarriages (mc) - the 1st one was

attributed to my age (37 at the time) and drs didn't investigate any

further - with the 2nd one i pushed to get some answers - my husband

and i and the baby boy we lost at 10 weeks were tested and we all

seemed to be chromosomally normal - i then was diagnosed with a

MTHFR mutation, a blood clotting disorder and a BU or SU -

i had a HSG (hysterosalpingogram - like an x-ray with a dye injected

into the uterus) in 2/05 and a laparoscopy/hysteroscopy in 3/05 - my

RE (reproductive endocrinologist) resected me right then and there

b/c i turned out to have a SU (septate uterus, partial septum).

after the HSG my RE had suggested me to have a MRI but by then i had

already read a lot in this group and knew that the gold standard for

diagnosing a BU or SU was the lap/hyst so i went straight to

surgery -

the surgery you mention is the laparoscopy which allows the RE to

see the outside of the uterus - they make one incision on your belly

button and one on your pubic bone and they insert a tiny camera and

gas to distend your abdomen and separate the organs inside to get a

clear view of the outside of your uterus - if it's smooth, if id

DOES NOT have a dip then you're not BU - then the hysteroscopy

follows: the insert a tiny camera through your vagina/cervix and

look at the uterus from the inside - if there's a septum (an

internal wall, either partial or total), depending in its

characteristics the dr can make a resection: cut it so your uterus

is like a normal one on the inside too -

most septums that can be resected are NON vascular and fibrous so

they're not good for a baby to implant cause sooner or later the

blood supply will be insufficient to keep an embryo growing -

some people have a combination of anomalies i.e. BU (outside dip) +

SU (inside septum) - every case is different and that's why i think

th emost important thing is to try to get a RE or OB who has

experience with MAs -

please take a look at the FILES or DATABASE section of this website -

there are lists of drs there - and you can always post a question

and maybe you'll get recommendations from women who live close to

where you are .....

the peri you saw seems to know about MAs but i don;t think s/he will

do your surgery - will s/he?

the MRI is inconclusive sometimes and some women here have been

misDx with that tool so i think the lap/hyst is your best bet for an

accurate Dx and hopefully a solution -

before your appt try to take a look at the FILES in this website -

there are plenty of questions to be asked and tons of info on

BU/SU ....

if you want please email me directly and i'll send you my account of

my 1st surgery (the lap/hyst) - i was TERRIFIED before it but my

experience was great

as for loosing weight i should loose 30 lbs at least myself but

i'm being lazy .... the only suggestion i have is to give a try to

weight watchers - i was successful with it in the past when i was a

little more motivated than i am now .....

i hope i've been of some help

good luck!

gabi

December 28, 2005

Gabi ~

Thanks so much for responding and the info. There is so much info

here, it is really mind blowing. I will definately check out the

files and database section here. I was refered to a high risk doctor

for one visit and she told me that I wouldnt see her again until i

get pregnant. I feel like there isnt anyone who really knows a whole

lot about this in my area and dont trust as much as i would like too.

I guess that will come with my journey ahead and building a

relationship with my new doctors. I am currently going to a a

specialist and traveling about 1 hour from my home to see her. I

feel like I have just been waiting to figure out what I have! Maybe I

am looking for support prematurely but I have only talked to one

other person in my area with MAs. She has only 1 kidney but it is

larger to compensate but she has never been able to have children.

It is so nice to read all about you wonderful and brave women and not

be alone. Thanks for your info, it is really helpful. Hopefully I

will know more about my situation after 01/13 and with your help, i

will bring some info and have more questions to ask. Thanks again!

Darleen

>

> hi darleen

>

> i'm gabi, 38, former SU - i'm sorry about your bad experiences with

> drs - i hope you can find a good OB or reproductive endocrinologist

> that can give you the right diagnosis and operate on you if that's

> recommended -

>

> i didn't have a vaginal septum, just a uterine one but i was

> misdiagnosed when i was about 28 years old and the dr told me i had

> a BU (bicornuate) and not to worry about it -

>

> i did not worry and i was was EXTRA lucky and had my first (and

only

> so far) son at 34 in 2001 - he was born at 33 weeks because i had a

> placental abruption - after a c/sec and a scary 3 week stay at the

> hospital we were back home and he just turned 4 last july -

>

> in 6/04 and 1/05 i had 2 miscarriages (mc) - the 1st one was

> attributed to my age (37 at the time) and drs didn't investigate

any

> further - with the 2nd one i pushed to get some answers - my

husband

> and i and the baby boy we lost at 10 weeks were tested and we all

> seemed to be chromosomally normal - i then was diagnosed with a

> MTHFR mutation, a blood clotting disorder and a BU or SU -

>

> i had a HSG (hysterosalpingogram - like an x-ray with a dye

injected

> into the uterus) in 2/05 and a laparoscopy/hysteroscopy in 3/05 -

my

> RE (reproductive endocrinologist) resected me right then and there

> b/c i turned out to have a SU (septate uterus, partial septum).

>

> after the HSG my RE had suggested me to have a MRI but by then i

had

> already read a lot in this group and knew that the gold standard

for

> diagnosing a BU or SU was the lap/hyst so i went straight to

> surgery -

>

> the surgery you mention is the laparoscopy which allows the RE to

> see the outside of the uterus - they make one incision on your

belly

> button and one on your pubic bone and they insert a tiny camera and

> gas to distend your abdomen and separate the organs inside to get a

> clear view of the outside of your uterus - if it's smooth, if id

> DOES NOT have a dip then you're not BU - then the hysteroscopy

> follows: the insert a tiny camera through your vagina/cervix and

> look at the uterus from the inside - if there's a septum (an

> internal wall, either partial or total), depending in its

> characteristics the dr can make a resection: cut it so your uterus

> is like a normal one on the inside too -

>

> most septums that can be resected are NON vascular and fibrous so

> they're not good for a baby to implant cause sooner or later the

> blood supply will be insufficient to keep an embryo growing -

>

> some people have a combination of anomalies i.e. BU (outside dip) +

> SU (inside septum) - every case is different and that's why i think

> th emost important thing is to try to get a RE or OB who has

> experience with MAs -

>

> please take a look at the FILES or DATABASE section of this

website -

> there are lists of drs there - and you can always post a question

> and maybe you'll get recommendations from women who live close to

> where you are .....

>

> the peri you saw seems to know about MAs but i don;t think s/he

will

> do your surgery - will s/he?

>

> the MRI is inconclusive sometimes and some women here have been

> misDx with that tool so i think the lap/hyst is your best bet for

an

> accurate Dx and hopefully a solution -

>

> before your appt try to take a look at the FILES in this website -

> there are plenty of questions to be asked and tons of info on

> BU/SU ....

>

> if you want please email me directly and i'll send you my account

of

> my 1st surgery (the lap/hyst) - i was TERRIFIED before it but my

> experience was great

>

> as for loosing weight i should loose 30 lbs at least myself but

> i'm being lazy .... the only suggestion i have is to give a try to

> weight watchers - i was successful with it in the past when i was a

> little more motivated than i am now .....

>

> i hope i've been of some help

> good luck!

> gabi

>

December 28, 2005